Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Member Testing

nu-to-no-glu

Recommended Posts

nu-to-no-glu Apprentice
nu-to-no-glu
Posted

I need to send some very general information to my siblings and mother. They all need to get tested (I have 4 siblings) and we have a variety of autoimmune diseases among us, and now that I am on the road to recovery, my dr suggested I tell them to get bloodwork done. Several of them keep saying to me "but, i don't have any digestive issues...or, I'm dealing with my own disease, already!" Anyone know good general links that might be helpful? Also, a link to the full panel, as my 1st dr didn't perform the whole thing and I want to make sure they get the accurate tests. I think if they saw all the various sympotoms it might help, but I know they don't seem interested enough to read a novel! Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Here is a link to an article right here on the home page

https://www.celiac.com/articles/1106/1/Celi...toms/Page1.html

Also the National Institute of Health is having a celiac awareness campaign here is a link to that also

Open Original Shared Link

Those should help get you started. One of the most helpful things for convincing my family to get tested was may recovery and the knowledge that it is advised that any first degree relatives get tested regardless of symptoms. They were all positive including my exhusband.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,103
    • Most Online (within 30 mins)
      7,748
    Charlene denhaese
    Newest Member
    Charlene denhaese
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or not?

      By trents · Posted

      This might be helpful to you at this point:   
    • cristiana
      Celiac or not?

      By cristiana · Posted

      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
    • trents
      Vaccines

      By trents · Posted

      But isn't it easier to just take a D3 supplement? Is the D light somehow a superior source? Links?
    • Scott Adams
      Status Update...

      By Scott Adams · Posted

      So the way it should be used is to take it before possible gluten exposure, so right before a meal at a restaurant take 1-2 capsules. Unfortunately taking it 1 hour or more after an exposure is too late.
    • Scott Adams
      Do I really need to get a biopsy?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for now, especially given your current commitments to culinary classes. You could consider working with a knowledgeable dietitian or a gastroenterologist who specializes in food intolerances and celiac disease to explore potential intolerances or other conditions without immediately reintroducing gluten. If confirming celiac disease is important for your long-term health management, you could plan for an endoscopy during a less busy period, ensuring you follow the gluten challenge protocol beforehand. In the meantime, prioritizing your well-being and avoiding known triggers seems like a practical step. Always advocate for yourself with doctors, and seek second opinions if needed—your health concerns are valid. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...