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Finally Got Diagnosis For My Bladder Issues

daphniela

By daphniela
in Related Issues & Disorders

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daphniela Explorer
daphniela
Posted

I went over the symptoms with my OBGYN and he diagnosed me with Interstitial Cystitis. I am on medicaid and they won't pay for the test or the medication needed so he diagnosed me based on symptoms. I have to follow yet another strict diet. I can't have anything high in acid, any preservatives, nitrates, or artificial colors. It seems pretty similar to gluten free with added restrictions on fruits and other foods. Can anyone help me with what I can eat?? I am going shopping in a few days. I am wondering about tomatoes. On the sheet the doctor gave me it says I can have homegrown tomatoes but not storebought. Can I have organic???

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Lisa Mentor
Lisa
Posted
I went over the symptoms with my OBGYN and he diagnosed me with Interstitial Cystitis. I am on medicaid and they won't pay for the test or the medication needed so he diagnosed me based on symptoms. I have to follow yet another strict diet. I can't have anything high in acid, any preservatives, nitrates, or artificial colors. It seems pretty similar to gluten free with added restrictions on fruits and other foods. Can anyone help me with what I can eat?? I am going shopping in a few days. I am wondering about tomatoes. On the sheet the doctor gave me it says I can have homegrown tomatoes but not storebought. Can I have organic???

This is a great source. This was posted in 2006, but I assume the diet is still appropriate:

Open Original Shared Link

missy'smom Collaborator
missy'smom
Posted

So glad that you've found out what the problem is. Hope these changes will relieve you of your discomfort.

daphniela Explorer
daphniela
Posted
  • Author
This is a great source. This was posted in 2006, but I assume the diet is still appropriate:

Open Original Shared Link

That is a good list, but I was looking for more in the area of brands for bottled water that are pH neutral, cereals that are both preservative free and free of any artifical ingredients that are also gluten free, deli meat brands with same requirements, and candy with same requirements. I cannot have chocolate or coffee either.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten?

We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten. She didn't have to worry about the acid stuff as long as she was really careful about gluten (she lives with me, eats what I cook).

RA

daphniela Explorer
daphniela
Posted
  • Author
Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten?

We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten. She didn't have to worry about the acid stuff as long as she was really careful about gluten (she lives with me, eats what I cook).

RA

No one else in my house is gluten free so I cook my own food. I sometimes don't eat cause there is nothing in the house for me to eat so I highly doubt the IC is due to gluten issues.

ravenwoodglass Mentor
ravenwoodglass
Posted
No one else in my house is gluten free so I cook my own food. I sometimes don't eat cause there is nothing in the house for me to eat so I highly doubt the IC is due to gluten issues.

Are you being really careful about cross contamination both in processed foods and in the home? I know when I feel really stressed or tired I have a tendency to eat more processed and thus more risky foods. I used to grab Amy's stuff a lot but my store now carries the Glutino frozen entrees and they don't seem to have the CC issues Amy's does. I don't know what your other restrictions are but I really like the chicken alfredo and the mac and cheese. I try hard to keep them on hand for days when cooking is physically or mentally out of the question. You would be surprised how little gluten can keep some issues going. It seems sometimes the antibodies don't care whether we have a crumb or a gobs of the stuff the reaction is the same.

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      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
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