Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused Doctor ..


kare

Recommended Posts

kare Newbie

Hi all, Im new here.

My symptoms are: bloated abdomen after i eat ANYTHING, loss of 12 kgs in a few months (un-intentional), unusually gassy, constipated and fatigued (doctors have always told me i was just aneamic).

My doctor sent me for bloodtests, he was certain i would test positive for celiacs though my blood tests came back perfect - even my iron was great! the only thing my blood samples showed were my salt levels, which were unusually low.

the doctor is concerned and he has booked me in for a gastroscopy next month to determine what is happening and if my intestine/bowel has been damaged.

he says it is still possible i may test positive to celiacs with the gastroscopy and other possibilities are a sugar intollerance or lactose intollerance..

he has written on his referral: severe abdominal bloating and weight loss of 12kgs. cause unclear. bloods were unhelpful - all normal. to exclude coeliac and disacchiariose (spelling?) deficiency.

is coeliac similiar to celiacs? and can someone give me some idea how long a gastroscopy goes for and what side effects i may experience after, if any?

thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Hi and welcome.

Coeliac is a variant spelling of celiac used in the UK and some other countries. They are the same thing.

I was out during my two gastroscopies, so I don't remember how long they took. I had colonoscopies done at the same time, which lengthens the procedure. The preparation for a colonoscopy is not any fun. You should not expect any side effects from either procedure.

ang1e0251 Contributor

You might consider posting your blood results here with the lab's ranges. If a person is IGA deficient, the bloodwork appears normal even if you have celiac disease.

The endoscopy just took a few minutes. With the anesthesia, I don't remember any of it. I didn't have any discomfort after. I would do it again without fear.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,104
    • Most Online (within 30 mins)
      7,748

    Shesgotthebirds
    Newest Member
    Shesgotthebirds
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This might be helpful to you at this point:   
    • cristiana
      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
    • trents
      But isn't it easier to just take a D3 supplement? Is the D light somehow a superior source? Links?
    • Scott Adams
      So the way it should be used is to take it before possible gluten exposure, so right before a meal at a restaurant take 1-2 capsules. Unfortunately taking it 1 hour or more after an exposure is too late.
    • Scott Adams
      Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for now, especially given your current commitments to culinary classes. You could consider working with a knowledgeable dietitian or a gastroenterologist who specializes in food intolerances and celiac disease to explore potential intolerances or other conditions without immediately reintroducing gluten. If confirming celiac disease is important for your long-term health management, you could plan for an endoscopy during a less busy period, ensuring you follow the gluten challenge protocol beforehand. In the meantime, prioritizing your well-being and avoiding known triggers seems like a practical step. Always advocate for yourself with doctors, and seek second opinions if needed—your health concerns are valid. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...