Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergies As A Result Of Gluten Intolerance


junevarn

Recommended Posts

junevarn Rookie

Hi all,

I was self diagnosed through enterolab as having gluten intolerance, casein intolerance and one of the main genes for celiac. I also had fecal antitissue transglutaminase.Supposedly I don't have small intestine damage. I am awaiting blood tests. I get terrible seizure like attacks where my legs shake( actually my whole body at times), I have diarrhea and vomit uncontrollably for up to six hours at a time. I also get palpitations.

I started going to an alternative MD and nutritionist on my own dime because the doctors I have gone to in the past ended sending me to a psychiatrist.

I have been on an elimination diet for the past few weeks. So far I cant tolerate corn or chocolate. I had some gluten free bread with yeast yesterday and today and now I am totally bloated. ( Enterolab also said I had a reaction to yeast.) I also feel quite anxious and moody all of a sudden. :(

Does anyone else have reactions to other foods as well?I have been gluten and casein free since I found out in October. I guess I'll go back to the total elimination diet foods since those are the ones so far that I feel good eating. I'm just a bit depressed with all this. I need a bit of support. I'm getting so I'm afraid to eat!

At least I am seeing that I do have other food intolerances and that that is the cause of my body freaking out, but I still feel low about it.

Thanks for listening,

June


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

Other sensitivities seem to be pretty common, especially at first. Hopefully you will be like we were and gradually see some of them go away. My daughter now only has one other than gluten. She origianally had a four page long list. I am down to only a handful.

kvogt Rookie

junevarn,

I've been where you are now. At one point, I felt awful after two out of three meals or more often. I didn't have your specific reactions, but everyone is different. It is entirely possible and probable for you to have other food problems. It can be quite hard to isolate because the reaction may not take place right after a meal, but the next day or later. Since you are apparently willing to invest in a diagnosis, I suggest you look at York food allergy testing. I took the comprehensive test and tested positive for an number of foods. The good thing is that I was left with a number of safe foods. Some have derided the testing and I admist I have held some skepticism, even now for some of the foods specified. But they were right about several like milk and soy. I've dopped some of the other foods and discover they may be right about others on my list. So overall, I feel well served by their testing. At least it gave me a place to start.

Hope this helped.

Guest nini

I think in the beginning of being gluten-free, the body is so hypersensitive, that you can react to just about everything. I even went through a stage where I was having anaphylactic reactions to artificial fragrances, especially the artificial baby powder smell. Now the smells just make me kinda nauseas. I was also having reactions to nuts, and shellfish... still not brave enough to try shellfish, but I'm back on eating nuts with no problem.

skbird Contributor

I had problems with nuts, especially walnuts and pecans, before I went low carb 3 years ago (and effectively, 95% gluten free). When I added gluten back in, the nuts started bothering me - small irritations or sores in my mouth, mostly. Now that's gone again now that I've been gluten free for 6 months (didn't take that long, BTW).

Shellfish will be out forever for me. I understand now that it's a different kind of reaction, an allergy, and it doesn't have anything to do with the state of my gut. Also pretty sure nightshades are still out for me - I did get a gluten free brownie mix recently at my Grocery Outlet (they were 79 cents! instead of $4 something...) with potato starch in it but after eating a couple of them (oh they were so delish!) I started having stomach aches like I do as a prelude to my nightshade intolerance.

I was having some trouble eating rice when I was not gluten free - would make me feel like I'd had tons of coffee, but now I seem to be ok with it. I can also tolerate some sugars now, natural ones (not processed white death) and more fruit without having as much of a blood sugar reaction. It just takes time and for me, none of it has been particularly dramatic.

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Insomnia help

    3. - wellthatsfun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      nothing has changed

    4. - trents replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,103
    • Most Online (within 30 mins)
      7,748

    Sandy the Celiac Mom
    Newest Member
    Sandy the Celiac Mom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
    • Charlie1946
      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.