Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going In For Endoscopy Tomorrow

beth67

By beth67
in Coping with Celiac Disease

Recommended Posts

beth67 Rookie
beth67
Posted

I found out I have celiacs two months ago and have been gluten free and enjoying not having stomach pain. My doctor wants to do an endoscopy to see if there is any damage or tumors. I've been eating gluten for two days to prepare and it hasn't been fun. I've been getting really bad cramps. So bad I've had to hang onto the kitchen counter until they pass. Can anyone tell me what it's like to have an endoscopy and how you feel afterwards.

Thanks,

Beth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


butterfl8 Rookie
butterfl8
Posted

Depends if they put you out, or do concious sedation. I was supposed to have the concious sedation, but the night before I had a last meal of pizza. Well, that didn't work so well, so I was up nearly the whole night. Slept through the whole procedure and woke up without a memory of what had happened. My sister just had her's, and she was put out. My husband had one a few years back, and he said that they put him out enough that he didn't really care what was going on with his throat, but he enjoyed watching the screen to see the results. So I wouldn't worry about the procedure itself. Sorry you've had to gluten yourself though, that's not fun, to say the least. Good luck!

-Daisy

gf-soph Apprentice
gf-soph
Posted

Hi beth

Mine was fine. I was sedated but conscious, and all I can remember was them starting to put the tube in my mouth, nothing after that. I came to a while after they were done, with a slightly sore throat. A family member took me home, I napped that afternoon and was a bit out of it for the rest of the day. Felt fine the next day - the anticipation was worse than the actual procedure for me.

Good luck!

Sophie

beth67 Rookie
beth67
Posted
  • Author

I'm back from my endoscopy and it really wasn't that bad. I have a fuzzy memory of a black tube and some discomfort and someone holding my hand. When I woke up they said I wasn't under enough and had to give me some more drugs. Don't remember anything else though. I enjoyed not having any aches and pains there for awhile when I woke up because I have low back and sacro iliac joint pain but now the drugs are waring off and I'm feeling achy again. Probably achy from eating gluten for the last two days to prepare for the biopsy. There was no sign of cancer or ulcers but in the report I got it said something about the lining being flattened which confirms the ciliac diagnosis. Now I'm officially off gluten for the rest of my life. Since I had to eat it for the test I had a little fun. I had french bread, a doughnut, and cookies. It was fun for a little while until I had to hang onto the kitchen counter so I wouldn't collapse from the cramping that I knew was coming. I think I'll go make some gluten free bread in my new breadmaker with a gluten free setting. It comes out really good. Thank you all for the feedback about the procedure.

Beth

ravenwoodglass Mentor
ravenwoodglass
Posted
I'm back from my endoscopy and it really wasn't that bad. I have a fuzzy memory of a black tube and some discomfort and someone holding my hand. When I woke up they said I wasn't under enough and had to give me some more drugs. Don't remember anything else though. I enjoyed not having any aches and pains there for awhile when I woke up because I have low back and sacro iliac joint pain but now the drugs are waring off and I'm feeling achy again. Probably achy from eating gluten for the last two days to prepare for the biopsy. There was no sign of cancer or ulcers but in the report I got it said something about the lining being flattened which confirms the ciliac diagnosis. Now I'm officially off gluten for the rest of my life. Since I had to eat it for the test I had a little fun. I had french bread, a doughnut, and cookies. It was fun for a little while until I had to hang onto the kitchen counter so I wouldn't collapse from the cramping that I knew was coming. I think I'll go make some gluten free bread in my new breadmaker with a gluten free setting. It comes out really good. Thank you all for the feedback about the procedure.

Beth

I am glad you got through it okay and are now able to go back to being gluten free and continue the healing.

kaki-clam Enthusiast
kaki-clam
Posted

Mine was no problem at all....i am terrified of needles, so that was the worst part. I was semi awake and i remember him telling me to swallow the tube but that is it. The whole thing took like half an hour and then half hour recovery...good luck, it will be fine! No sore throat or anything after!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Hidden Gluten in distilled vinegar

      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip. The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all. Nothing budged. I tried Milk of Magnesia...
    2. Manaan2
      - Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Hidden Gluten in distilled vinegar

      @knitty kitty The information you've provided is invaluable! I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!). This weekend my husband and I plan to solidify all the details for a start point, then adjust as...
    3. BIg Nodge
      - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information. I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS...
    4. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too. I was supposed to do testing to find out metal's I was allergic to because I can't wear jewelry of any kind. Mayo felt I had other allergies also.
    5. Scott Adams
      - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,855
    • Most Online (within 30 mins)
      7,748
    Tuba1971
    Newest Member
    Tuba1971
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hidden Gluten in distilled vinegar

      By knitty kitty · Posted

      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
×
×
  • Create New...