Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

All Of My Labs Are Normal So Far...

Tabasco

Recommended Posts

Tabasco Apprentice
Tabasco
Posted

Here are the results of my labs:

Vitamin B12 - 370 (211-911)

Ferritin, Serum - 52 (10-291)

Immunoglobulin A, Qn, serum - 321 (70-400)

Endomysial Antibody IgA - Negative

HLA DQ2 - Negative

HLA DQ8 - Negative

Deamidated Gliadin Abs, IgA - 4.0 (0.0 - 10.0)

Deamidated Gliadin Abs, IgG - 1.0 (0.0 - 10.0)

tTG IgA - 1 (0-3)

The doc's office said there is no way that I am celiac. They aren't ordering a scope. I had my skin biopsy today as well. I asked the GI nurse if I could be positive on my skin but not my labs and she said that she didn't think so. In fact, said she had never heard of that before.

I am also having a transit time study for my constipation. I swallowed small metal markers and now we're taking x-rays. I took the pill yesterday and they are either still in my small intestine or maybe in the beginning of my large intestine. Obviously, my film showed lots of "stuff" in my colon...which I knew would be there. It also showed that I have a lot of colon which I also knew. My flexures are very steep and that's where I get the most pain.

Ho-hom...not that I want to positive but I would love for there to be a single fixable problem to deal with. Having no rash and being able to use the bathroom would be wonderful!

I think I'll try the gluten free lifestyle anyway and see how I feel.

I'll keep you posted.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

The test didn't tell you what genes you do have only those you don't. In other countries, they recognize additional genes. I think trying the diet is the next logical step. You could still be gluten intolerant which would require the same treatment; the gluten free diet.

ravenwoodglass Mentor
ravenwoodglass
Posted

Also your b12 was on the low side. It can take awhile for the numbers to get under the 200 even after we have stopped being able to absorb and utilize B12. Have they done any B12 testing previously on you that you can compare with these results? If those numbers have been steadily dropping that is significant and you should be supplementing.

I do think that you have nothing to lose by trying the lifestyle for a bit and seeing if it helps.

HydraWoman Rookie
HydraWoman
Posted

The blood test and an endoscopy came up negative for Celiac for me. My reg doc, pdoc and g.i. doc all believe that I have a great sensitivity to gluten and all agree that I should go gluten free regardless of the what the tests results show.

I have been gluten free or a couple weeks and I feel great. I am sleeping deeper and not as long, I am energetic, my concentration has improved, the undiagnosed rash on my elbows is going away, my ibs symptoms which have been present for decades are virtually non-existent. I hope that you find the proper diet to help you too.

darlindeb25 Collaborator
darlindeb25
Posted

Tabasco...all those tests are telling you is, you aren't celiac. That doesn't mean you arent gluten intolerant. Gluten intolerant is just as bad, often times, I think it's worse. Doctors do not recognize us as having a problem with gluten, so they tell us not to go gluten free...we just keep causing more damage then. Had I not gone gluten free 9 years ago, who knows how bad my neuropathy would be now.

As Raven said, your B12 is too low, anything below 500 is suspect, even though the doctors say it isn't.

Tabasco Apprentice
Tabasco
Posted
  • Author

Thanks Peeps!

I had my skin biopsy and am waiting for those results. As I said before I was doing a transit time test and for the first time in a long time realized how severe my constipation is. I couldn't use anything to help it along and haven't gone, really gone, in 6 days. My belly is bloated and I feel nauseated. No wonder!

I finally started putting something on my rash and it's helping but it's still there.

I am going to start taking my supplements again. I wasn't taking them religiously anyway but i will.

Thanks again for the responses.

darlindeb25 Collaborator
darlindeb25
Posted

My sister, the celiac dietician told me to learn to love prunes. Actually, I have always liked them, and she loves them. She also always tells me I need to use flax in my diet, but flax makes me ill, so I ignore that advice, but maybe you could use it. It doesn't contain gluten, just doesn't agree with me.

Make sure your supplements are gluten free. Many say gluten free, then you will find barley grasses in the ingredients...I do not trust barley or wheat grasses.

I am very sensitive, and I do very well with Nature Made Multiple Vitamins...my B12 is made by Jarrow, my Vit D is Spring Valley (Walmart), I also take ferritin from Thorn called Ferrasorb.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,512
    • Most Online (within 30 mins)
      7,748
    AvaVI
    Newest Member
    AvaVI
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Dear forum members, I’m still trying to find out whether or not I actually have gluten sensitivity or not. Recent blood test showed a slightly elevated Bilirubine and Lipase but an abdominal ultrasound showed no problems with the liver or pancreas. My zinc and folic acid where both too low. When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal. I also have been quite anxious and little bit down for quite some time now and it seems to correlate with my gluten intake. The problem is that my colonoscopy showed no damage to my gut and my blood test for celiac always come back negative. Can you be gluten sensitive without damage to your villi? (I believe that’s what is normally seen in celiac disease). Thanks for helping! I don’t seem to get anywhere with my doctor so I thought I’d give this forum another try.  
    • knitty kitty
      Can gallbladder issues cause symptoms of celiac disease?

      By knitty kitty · Posted

      Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery.  The gallbladder uses lots of thiamine vitamin b1 to function.   The gallbladder cannot secrete bile if it doesn't have sufficient thiamine.  Thiamine provides our muscles and glands energy to move and secrete needed enzymes and hormones.  The thyroid is another gland that requires lots if thiamine to function and secrete hormones.   Our brains, just thinking at a desk job, requires as much thiamine as our muscles do if running a marathon.   Migraines are linked to thiamine deficiency. Thiamine is the first of the eight B vitamins that our body needs. Thiamine can only be stored for three weeks at most.  Our thiamine stores can be depleted in as little as three days.  We need more thiamine when we have a physical injury (like recovering from surgery or fighting the flu), if we're emotionally stressed or traumatized, and if we're physically active.  Thiamine, like the other B vitamins, is water soluble and easily excreted in urine or most in diarrhea.  B vitamins are commonly poorly absorbed in Celiac Disease.  Thiamine and the other B vitamins need to be taken together because they interact with each other to make life sustaining enzymes.  Thiamine deficiency can affect individual organs.  Gallbladder dysfunction is connected to thiamine deficiency, as is hypothyroidism.    Migraines are connected to thiamine deficiency.  Gastrointestinal Beriberi (abdominal pain, vomiting, etc.) is a result of thiamine deficiency.  Tachycardia and fatigue are also symptoms of thiamine deficiency.   Thiamine and magnesium make enzymes that are essential for life.   Thiamine is needed to absorb certain minerals like iron.  Anemia and thiamine deficiency frequently occur together.  Thiamine deficiency can cause poor blood cell production (including low antibody production).   Thiamine interacts with other vitamins and minerals.  Vitamin D is not utilized by the body until turned into an active form by Thiamine. Thiamine is safe and nontoxic even in high doses.  High doses of thiamine correct deficiencies quickly which prevent further health deterioration.  A one a day type multivitamin is not sufficient to correct vitamin and mineral deficiencies that occur in the malabsorption of Celiac Disease.   The Gluten free diet is low in vitamins as they are not required to be enriched with vitamins lost in processing.  Supplementing with thiamine and the B vitamins boosts their absorption.   Helpful Reading: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/ P. S. Try a DNA test to see if you have any known genes for Celiac Disease before doing a gluten challenge.
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results… 
    • trents
      Certified gluten free oats

      By trents · Posted

      Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
×
×
  • Create New...