Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet (SCD)


AliB

Recommended Posts

kkcarlton Newbie
Those enzymes dont sound SCD legal. :(

If you try the Neem, note that it might get a little worse before better for 3 or 4 days. But hang in there. It is a great anitmicrobial and cannot hurt in that respect. But keep on with the SCD and the probiotics as well.

OK, thank you. I am going to read a little more about Neem. I am taking so many things already. I want to get better, but I wonder if there isn't something else going on like SIBO, ileocecal valve syndrome, or other.

Can anybody suggest a good digestive enzyme? Renew Life DigestMore Ultra seems good but SO expensive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 2.4k
  • Created
  • Last Reply
ShayFL Enthusiast

I use the Renew Life and love them. They ARE expensive, but I feel they work.

DMarie Apprentice
DMarie - I took Cortef for a little while and it IS hard coming off of it. Have you had your other homones checked like estrogen, progesterone, DHEA, and testosterone? Mostly progesterone? Most of us have too much estrogen and when stressed, progesterone, which is a pre-cursor to cortisol, gets shunted away to be turned into cortisol. As you are reducing the Cortef you may want to consider using some natural progesterone cream. I found this website www.progesteronetherapy.com to be very helpful. The woman who runs it will answer emails and she also sells a nice, natural progesterone cream, but it's actually not that obvious when you go to the site. She also doesn't try to pester you into buying her cream when you ask her questions.

Kristina - yes, my doctor regularly does lab work. I think it has been a few cycles since she has checked progresterone, etc. I am actually on compounded DHEA, due to it being low. Thank you for the website link! I will look into this.

My doctor has been wanting me to try to reduce for awhile. The last time I tried, it just didn't go well. It has been awhile since I tried reducing, so I thought I would try again. I think the main thing is that for me, this needs to be very GRADUAL with very small (2.5 mg) reductions in dosage. With the history that I have, I am not sure if I will ever be off it totally - but I sure would like to think I could get it reduced to 20 to 25 mg a day (even 30 mg a day would make me feel better). I think I am at the top end of what might be considered physiological versus pharmacologic.

I have various burning sensations going on in my stomach (after eating). I am thinking the nexium is probably necessary at this time. :(

kkcarlton Newbie

Hi Dawn - I had to reduce mine in 2.5 mg increments also and I was on 20 mg a day so I feel for you. It is very hard since your adrenals tend to be suppressed and then have to start working again. What about supporting your adrenals otherwise as you taper off with B5, licorice, etc. or a multi-supplement like Michael's Adrenal Xtra (Open Original Shared Link). You may be taking something already but I thought I would suggest it just in case.

ShayFL - thank you for the note on the Renew Life enzymes. I guess I will go ahead and get them.

Does anybody know if this rice protein would be ok on SCD?

Open Original Shared Link

Open Original Shared Link

I know rice is not allowed but this seems to be just the protein from the rice.

Thanks,

Kristina

AliB Enthusiast

Interesting article about Neem.........

Open Original Shared Link

Think I'll get some...............

I was thinking about that article by Natasha McBride that I posted. She feels that the problem lies with not enough stomach acid - yes for many that may be true, but I actually think that the problem starts in the mouth.

I don't know about you, but I wake every morning with a mouth like a sewage pit. Why? It has to be due to bacterial action overnight. Every time I eat or drink those little beggars are being dragged down through my digestive tract and even if I am taking remedies and probiotics to counteract them they are being replenished all the time from my mouth.

Most of the herbals and supplements we take are in capsule form and don't benefit us until they get into the stomach or the duodenum, etc. The yogurt helps because it goes into the mouth, but that is only now and again.

I thought it was interesting that many in India actually grind the neem leaves into a paste and take them on rising - a good way of counteracting the beasties in the mouth?

Mia - I bought some (no I chickened out of making it!) Sauerkraut today - cabbage, salt and wine :wacko: and had some before my main meal tonight. I think I might take some before I go to bed too and see if it helps the 'sewage' situation in the morning!

I have ordered some Betaine - I have some digestive enzymes, but the amount of HCL is so low it is pretty useless. It will be interesting to see if that helps.

Dawn, they do say not to take HCL if you have an ulcer. Perhaps you have a 'raw' area within your stomach and it is only the Nexium that is keeping the inflammation down by reducing the acid. It has to be due to bacteria being in there that shouldn't be - the stomach is normally one of the least 'populated' areas of the digestive tract, but something is in there that shouldn't be and is causing inflammation. I wonder whether you might benefit from gradually cutting the nexium down. The more the acid increases, the less comfortable the beasties will be.

Take probios either first thing in the morning or last thing at night when the stomach is empty so they have a better chance of getting at the pathogens. Taking mine at night does seem to be helping gradually.

mftnchn Explorer

I'm using prescription digestive enzymes, so can't help with brands. Very interesting about Neem, I'm going to keep that in mind if I still don't make headway with my bloating. Right now I'm doing a parasite treatment.

ArtGirl Enthusiast
Does anybody know if this rice protein would be ok on SCD?

Open Original Shared Link

Open Original Shared Link

I know rice is not allowed but this seems to be just the protein from the rice.

Per serving of 1T, it has 1.8gr of carbohydrate of which 1gr is a sugar. I don't know if this is low enough to be SCD legal, but I'm very interested in it even so. I had to give up on protein powders years ago because of the dairy/soy/corn/etc.etc. issues It would be a real help to have a source of protein for my low blood sugar when I'm out and about and don't have anything with me to eat. I also did well with having some first thing when gettin up in the morning.

I think I'd email them and ask directly if there is any source of gluten, i.e. in the vanilla flavor. But at first glance it looks safe for the gluten. Just don't know about SCD legal. I guess it would depend on how much you had at a time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer
I have various burning sensations going on in my stomach (after eating). I am thinking the nexium is probably necessary at this time. :(

I was thinking of suggesting DGL (a form of licorice) but it isn't SCD legal:

Open Original Shared Link

Reading that makes me wonder if you have had any of the inflammatory markers checked.

Kristina, I think my bloating and weight gain with gluten (and some other things) seems like an inflammatory response. Yet my blood tests for inflammatory markers come out very good (my doc is extremely pleased because I have lyme). Seems like it is more localized to the gut for me. I am still seeking answers but SCD has helped for sure. Because I have seen a lot of parasites over the past one year, it is another indication of a very compromised gut. There seems to be a cleansing going on especially since starting SCD so I think I am on the right track. Like Shay, I am not suggesting this might be the case for you, but sharing just in case it is helpful in your search for answers.

I think we all have to remember to be patient. Like with celiac, the gut takes 1-2 years to heal. I don't mind waiting, but just want to know I am doing the right things, you know what I mean??

AliB Enthusiast

'Nuvver interesting article about Neem - Shay, I am hooked!

Open Original Shared Link

Gonna get some dried leaf so that I can get it into my mouth and down rather than capsules. It sorts out Ulcers - Dawn, it's got to be worth a try surely??? It is also used to treat Diabetes - I am especially interested in that aspect.

I have found some on Ebay - how successful you will be over there in the States at obtaining I'm not sure, but it does seem to be getting a wider 'audience' now.

There is all sorts of preps - toothpaste, head lice shampoo, anti-dandruff shampoo, emollient creams for Psoriasis/Eczema, soap, oil, nail fungal treatments, face wash, insect repellent, pet shampoo, dried neem leaf for adding to horse feed as an antibacterial and antifungal, tablets, capsules - I was amazed by what is available!

If as an antibacterial it solves so many problems and health issues it is just yet another factor that adds to my conviction that it is bacteria and parasites that are behind so much of our Western disease.

DMarie Apprentice
I was thinking of suggesting DGL (a form of licorice) but it isn't SCD legal:

Open Original Shared Link

Reading that makes me wonder if you have had any of the inflammatory markers checked.

I think we all have to remember to be patient. Like with celiac, the gut takes 1-2 years to heal. I don't mind waiting, but just want to know I am doing the right things, you know what I mean??

Sherry - Okay, so that was going to be one of my next posts - what supplements should I be looking at that would be beneficial to people with digestion issues? Also what are inflammatory markers? Is that a test that can be done via any lab - or is it from a specialty lab? I have an appt with my thryoid/adrenal doctor on Dec 23rd, so trying to gather together info so that perhaps I can get her to help me. Right now I am already taking psyllium daily - because I determined that it was more detrimental to NOT have more regular movements than to take illegal psyllium. I was reading a little on DGL the other day - and wondered if it would be helpful.

Kristina - thanks for the info on the adrenal supports. I hadn't thought about that - but perhaps that would help. I think I am going to have to wait a couple of weeks before trying to pull out another 2.5 mg dose (which will only get me down to 35 mg a day). Perhaps some other support would help in the process. I started a B complex supplement a few weeks ago. I think I need to get some Vit C as well.

Ali - actually, I was able to remove 1 dose of Nexium per day. They are capsules, so I cannot drop it any further than what I have now. I think the capsules I have are the lowest dosage it comes in. I might check into another med like nexium that comes in smaller doses - because maybe that is what I need to do. I will be asking my doctor about this - hoping she knows something about digestion.

The thought occured to me that perhaps it was just going to take a LONG time for some healing to take place in my stomach and perhaps I really wouldn't notice a big difference with the mucous until much later in the process.

Meanwhile, I have tested it out today. I went off diet for lunch (had corn - which was probably the worst offense). I don't notice the mucous any more than usual - but did have a headache right away, and tummy feeling not quite right this afternoon. While it was bad to venture off (I did it deliberately, as I have been struggling with the thought - is this diet helping me or not)...it was good because it does help to highlight what the diet is helping with. I am still very bloated from lunch - and this is how my stomach was continuously before. Also I have what I call a head buzz - which only happened with wheat before (it isn't too bad, but it is there). I don't like the feeling at all. To keep with something more difficult (like the diet) I just need to *know* that it is helping in some concrete ways. Just like staying gluten-free is not hard for me - as I HATE how I feel if I eat it. Seeing the difference in how I feel eating SCD foods versus consuming a starch like corn - it just highlights what is good and why I would want to keep walking this path.

So, I was quite happy to have an SCD supper. I still need to expand my cooking horizons though, because that would help (I did have an SCD chicken stir fry last night which was tasty - the whole family liked). I actually made almond nut flour pancakes tonight. They were pretty good; I had them with eggs - and I was a happy camper!! Reminded me of a favorite meal I had before when I didn't feel like cooking - cheesy eggs with gluten-free cinnamon toast. I was just as happy with my nut flour pancakes. Which is going to spur me on to try some SCD bread this weekend. Then I can make myself sandwiches, which will be nice for lunch (looking forward to some SCD chicken or tuna salad). ;)

DMarie Apprentice
NO...the essential oil is not for consumption.

I took this brand:

Open Original Shared Link

There is a thread about Neem somewhere on the forums. Others had success with bloating using other brands as well. I liked these because they were small and I only had to take one a day. I took mine in the morning (empty stomach) with George's aloe (4 oz) for a good 6 weeks. But relief came early on.

Shay - Neem sounds very interesting. Turns out this is sold at my local Sprouts. ;) I have taken Triphala before (when doing a candida diet about 6 or 7 years ago) - but I don't remember much about it (as in why I took it or if it helped). Funny - but it was the candida diet that clued me in about the gluten.

ShayFL Enthusiast

I have been studying Ayurveda lately. It is one of the oldest healing modalities, so I figure it cannot hurt to learn about it and try some remedies. I am on the Triphala right now. It is a mild laxative, but it has not caused me ANY troubles. And my BM's are looking good......LOL An old Indian saying says that if you take Triphala for a year, you will live to be over 100. :)

Right now I have started "oil pulling". I ran across it and researched it online extensively. There are oodles of forums from low carbers, diabetics, dental issues, psoriasis, etc. with TONS of people saying they have benefited from it. It kills the bacteria in your mouth and draws out toxins which you spit out with the oil after 10 - 20 minutes of swishing. Google it if it interests you. Very fascinating.

I just started today. I OP with coconut oil this morning and safflower before dinner. earthclinic.com is a good place to start.

It might interest you Ali!

I will let ya'll know how it goes. I am only on day 1. I will give it a go for 30 days. They say you can expect some detox symptoms, but none today so far. I am mainly interested in it restoring my gums and teeth which supposedly it excels at doing.

I am a renegade. My body is my ongoing experiment. :)

DMarie Apprentice

Absolutely fascinating Shay! :P I looked up the thread on Neem - very interesting indeed!

I actually spent some time looking up info on Ayurveda last weekend; I remember you had referenced it many pages ago (you said your dosha was Pitta if I remember right). It is interesting as well. It seems I was testing as being Vata-Kapha (I think if I remember).

I went through various anti-fungals while I was on the candida diet. I had rotated through GSE and Oregano Oil, amongst others. I am wondering about doing that again.

I need to get a plan here - what do I focus on first? I definitely need pro-biotics. I think rotating through anti-fungals would probably be a good idea as well. The Neem looks very interesting also. I just need to be careful I don't overwhelm myself! I have tended to do that in the past - and just powered through whatever it was I was trying. I think my body might appreciate me being just a bit kinder to it now though. ;)

Actually, I think the virgin coconut oil was what I reacted to a couple of weeks ago (I sauteed my apples in them). It seems that has anti-fungal properties, if I remember right.

Perhaps this is what I need to be doing to get my body to move along.

Oh, and I have become convinced that one of the reasons my need for the cortef I am on is at the high end is because of inflammation - most likely in my digestive track. Seems to make sense when evaluating where I am at and the various problems I have. So I think I need to start getting more pro-active again about cleansing and killing off any bad stuff that might be hampering other efforts I am making to become healthy.

kkcarlton Newbie

Dawn - coconut oil has very high anti-fungal properties and is also an anti-parasitic and anti-bacterial. I am not sure what your reaction to it was, but it can cause die off. As for inflammation, turmeric is good against inflammation but you need a lot of it, but even more so natural progesterone cream. It's an anti-inflammatory. I sound like I am selling it don't I? LOL I don't, just a big fan of it. :)

All - the neem sounds really good but I remembered I have some Olive Leaf Extract here at home. Given our financial situation I will probably finish those first. I also plan on doing a 5 to 7 day cleanse starting January 1st. I wanted to start tomorrow, but there is just too much going on right now with Christmas coming up. I used to do cleanses when I still lived in Austin, TX. It involved 7 days of taking high probios, milk thistle, two products from ARise and Shine called Chomper and Herbal Nutrition, another product called Pacha Mama which is psyllium mixed with cascara, peppermint, clove, and other herbs, drinking nothing but veggie juice, veggie broth, and rice protein shakes, and getting a colonic every single day for those 7 days. Talk about feeling cleansed after that. I did several of them and each time felt incredible afterwards. Not only did I lose weight but I had great energy and after the cleanse my digestion was SO much better. The 7 day cleanse with all the supplements (there were more than what I mentioned) and colonics runs $795. I don't live in Austin anymore and that's too much money for us right now, but I plan on just imitating it minus the colonics. Instead I will do clear water enemas every morning and night. Hopefully this will clean my intestines out and also my liver since I know that liver dysfunction can cause many of the symptoms I am experiencing. Here's a link in case anybody is interested. Open Original Shared Link

Hopefully with all that and getting strict on SCD otherwise I will start to feel better AND get some of this weight off. I am not overweight despite the weight gain, but just bigger than I am used to being and it's mostly in my lower body. Well, the distended stomach but I know that's either gas or fluid since my stomach went from really flat to really big in one day. And the weight gain in my lower body is part fat and part fluid retention so it's not pretty.

I still don't understand how I went downhill so quickly in a matter of 2 or 3 months. And not knowing for sure if it's "just" gut dysbiosis is driving me nuts. There is a part of me that wants to go back to my doctor and have her run more tests but I might be wasting more and more money that I could be spending on good supplements.

kkcarlton Newbie

Hi All - me again with some more questions. I am about to read chapter 9 of the book (Introducing the Diet) and I am so impressed with it. I almost did not get it because I figured I was already doing everything I can and was well informed, but I have learned a lot.

So my questions are, can I take supplements that contain maltodextrin? And what's everybody's thought regarding eating eggs? I love eggs and I get mine from friends who have "happy chickens", the kind that get to run around all day and pick food, but according to a saliva test I am intolerant to them. Some people say it's a healing reaction because it's impossible to be intolerant to pure, unadulterated food and that eggs are healthy. I would LOVE to eat eggs again and that way I could make mayonnaise, too. Thoughts on this?

Thank you all for being here. This forum, and this thread in particular, are a Godsend and SO helpful.

Oh, one more thing. How do you explain all this to your spouses? My husband has seen me go through so many diets and supplements that he is getting weary and frustrated. Also, I have a history of an eating disorder so when I tell him I need to be even MORE strict than I already have been I am not sure how he will take it.

Kristina

mftnchn Explorer

Thank you Shay. I haven't done a huge amount of reading yet on the oil pulling, but count me in on the experiment! I am delighted to find something more to do detox with, that is SCD safe and won't mess up any other treatments I am doing. And ecstatic that something might help whiten my teeth which have gotten really bad the last several years. I tried olive oil today, but may just do the sunflower for awhile when I get home later today. I also need help with gum health and plaque build up so this is really worth a try. Cheap too. And constipation also on the list!!!

Kristina, I haven't changed any of my supplements, some are not SCD compliant. That's my next step to address this winter when I am in the USA. I can't afford to waste what I have already purchased and seem to be doing okay. It might help me move further along though once I am compliant even with meds. Maltodextrin isn't okay I don't think.

If you don't tolerate eggs, stay away from them initially on SCD and try them later. Actually food ingesting and monitoring of symptoms is the best test.

I think each spouse is different in what works to bring this up. Perhaps you could make a meal plan with amounts and calculate the calories and nutrients. Share it with him with a commitment to eating that much a day so he won't worry. Maybe explain the symptoms and since you don't have funds to pursue things medically, you'd like to try several more natural things in case you can find a way to resolve the problem before you are able financially to pursue further testing. The enemas might make him worry though.

kkcarlton Newbie

Hello Again,

I just looked up maltodextrin and read that it's a polysaccharide. The digestive enzymes I had before had maltodextrin and I have a supplement called Vitalzym that has it so I won't be taking it anymore. I think my other supplements are ok. Although, is such a small amount significant.

Well, I tried eating eggs today and the result was that I ended up having an even more distended stomach and more fluid retention in my lower body. Very frustrating! In addition, I got a lot of anger about an hour after eating them and I think it was from the eggs. Guess I won't be having them for a while.

We were at the firedepartment's Christmas party tonight (my husband is a volunteer firefighter) and I messed up. I had a small bite of the cake I made. It was so hard to resist. I also had some ham. I am not sure what is going on with me because I used to be able to be SO strict and it seems the worse I feel the harder it is to be strict. I guess tomorrow is a new day.

Regarding the oil pulling. I have friend in Germany who is sort of a naturopath (Heilpraktikerin) and she recommended it to me last year. I did it for a little while but did not notice any changes. My husband looked it up and found several sites that say it's a quack. I don't know what to believe. I hope it works for you all and if it does I might start it back up. I was using sunflower oil or coconut oil. I was not aware that it whitens your teeth.

Kristina

DMarie Apprentice

Kristina - The reaction I had with the apples/coconut oil was that shortly after eating it, my face felt very warm/flushed. When I went to look in the mirror, my cheeks/face was quite pink! My co-worker verified that I did indeed look quite pink.

I also used to live in Austin! That was some 12 or 13 years ago now - almost like another lifetime! It has gotten so crowded there. We live in far north Fort Worth now. Every time we drive through when going to San Antonio - we always seem to hit traffic in Austin; doesn't matter what time of the day it is.

I am not taking a whole lot of supplements right now, but I do use melatonin on occasion - and I know that is illegal. As I add things I plan on doing my best to find legal things - but I am not going to get too upset about it. I think that by and large I will do things by the book; the occasional thing that might be off (such as I had a couple of tbs of tamari in my stir fry the other night) - I am not going to make myself crazy over. I worried alot over this at first, but decided I needed to stop that!

I can really relate to your question about how to deal with a spouse about this when they have watched us go through so much. I, too, worried about this. I have tried a lot of things over the years, some of it not cheap (and of no help either). It is wearying and frustrating for all. My husband tends to prefer doctors and medical tests - though he has seen how they have not been able to help me - it has been me helping me (I am the one who figured out the gluten problem and also found the adrenal fatigue). Doctors also didn't have a clue what was wrong with my one daughter for almost 2 years when she was suffering from horrible headaches, nausea, fatigue, dizzyness, etc (yep - gluten too - kick myself that it took me that long to consider it - but her symptoms were so different than mine, and the food diary didn't seem to show anything consistent). So, my husband does listen to what I am saying, considers it; but I am definitely more into alternative medicine than he. ;)

My husband listens, but I don't think totally understands. His one comment was, "That is just too hard to follow, it would seem that you are setting yourself up for failure," or something like that. But I think that he sees that it is really healthy eating. He likes the nut muffins as well. :D Also, after sharing with him about my little foray off diet yesterday for lunch and how I felt - I think that helps him be more supportive. I liked Sherry's suggestions as well - perhaps that might work (explaining that you are just trying to use natural ways to address health issues as money is tight). I am planning on trying some anti-fungals again - and I don't plan getting into explaining that. I am just leaving it with the healthy eating plan.

I, also, struggled with an eating disorder during my teen years and into my 20's (mine was bulimia). I have often wondered if most of my problems stem from this. No one can say for sure, of course - but I feel pretty convinced that it is a strong contributor.

I had thought the oil pulling was quite interesting and wondered about it. I will be very interested to see how it goes for those that are trying it (and if I decide to try it, I will certainly post what I find as well). :) I would love if something could whiten my teeth, among other things! ;)

DMarie Apprentice

Okay - so new things for this weekend - I made an easy almond bread (looks like pancakes - but hey - it works to hold fillings!) and cranberry muffins. I will have to find the SCD recipe link and post the recipes. My husband really likes the cranberry muffins!

I have some goat milk yogurt in the crockpot now. I did taste the goat milk - it was okay. A little different, but overall okay. However I used cows milk yogurt for starter. I figured that was minimal. We will see what happens.

However, I did have some legal cheese/cows milk yogurt in the easy almond bread I made. I had some stomach cramps this evening - which i figure was likely from that (could be wrong - but felt like the cramps I have gotten from milk before). Bummer. :(

pele Rookie
Oh, one more thing. How do you explain all this to your spouses? My husband has seen me go through so many diets and supplements that he is getting weary and frustrated. Also, I have a history of an eating disorder so when I tell him I need to be even MORE strict than I already have been I am not sure how he will take it.

Kristina

I think we had more trouble adjusting to me going gluten-free than the SCD. I went gluten-free in March 07 while my husband was away. When he came back I told him he was cooking for himself. He didn't quite believe me at first, then got over it. He loves to cook and has very different tastes than I do. I was poisoning myself trying to cook for us both--my body asked for red pepper, garlic, ginger and cumin and he wanted bland pasta and bread. We have each developed diets that are a far cry from the compromise menus I used to come up with. He was bemused when I went on the SCD, but I think that most importantly he is relieved that I am healthier.

Don't think of the SCD as strict. Think of it as free of processed food. Hopefully your SO will see you getting well and be happy.

Oh, and my DH just used my diet as an excuse to avoid a party he didn't want to go to. "Sorry, we can't go. My wife can't eat anything there." Funny. If I want to go out, I just take my own food.

mftnchn Explorer

I can relate to that....I'm not all the social to begin with, and now that I have to take my own food I find myself choosing to not go more often than not. I need to figure out a balance, like how many I will do in a week, and figure it into my energy level and schedule. Its not good to withdraw.

Also for those who mentioned eating disorder. There is a lot of info connecting the psychological with health. There's the book the Gut and Psychology by the author that Ali refers to, for one. Not a new concept. Dr. Klinghardt has a website that is very interesting. He has treated a lot of mercury and heavy metal toxicity, then got more into treating lyme disease to. He says that the patients that got stuck and nothing worked, responded after doing some emotional stuff and everything started working again.

There is something that could be tried on your own that is quite fascinating and has some validity because it has elements of well researched therapy approaches. A free manual to download and can be done a few minutes a day. Called emotional freedom techniques or EFT. Do a google search and check it out.

I'm not suggesting you all are still in an eating disorder situation, just that there can be internal things that we all hold on to that can undermine our health and anything we can do to process this has a great impact on regulating our immune systems and helping our body respond better. I need to get back to doing this in my daily regimen. I think I might try it with the constipation, as it works with physical symptoms too.

Just a wild thought...and it might serve to encourage and calm those of us who are facing financial pressure and health worries.

kkcarlton Newbie

Dawn

AliB Enthusiast
All
ShayFL Enthusiast

Kristina...Google SCD + quack. You will find sites that say the SCD diet is bunk and hokem. Also if you go to www.quackwatch.com you will learn that any and everything you have tried/will try that is "alternative" is quackery to the people that run that site. I do not worry about sites that dismiss ANY healing modality when you can find TONS of anecdotal reports that something works. Instead, I just try it (as long as it isnt expensive or dangerous in anyway). Like the SCD, not expensive and in fact less costly than all of those organic gluten-free grains and could not possibly hurt me. So I tried it. The oil pulling is the same, cheap, not dangerous and all it really costs me is a little time in the morning. So I am giving it a go!!

Day 2 of the oil pulling....nothing yet. But will keep you guys updated. :)

DMarie Apprentice
Dawn

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,414
    • Most Online (within 30 mins)
      7,748

    Linda Herman
    Newest Member
    Linda Herman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor.
    • trents
      I think you know enough to conclude that your son either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). As soon as you removed gluten from his diet his stools firmed up. It is also very common for celiacs to be intolerant of dairy and soy, so that is another piece of corroborating evidence. If I were you, I would consider getting your sone genetically tested for the genes we know are associated with celiac disease. There are two main genes looked for, HLADQ2 and HLADQ8. Having either or both provides the potential for developing celiac disease. But since about 40% of the general population have one or both of the genes it cannot be used to diagnose celiac disease. But it can be used as a rule out measure if both are absent, thus pointing one in the direction of NCGS. If one or both are present, there is the possibility of either celiac or NCGS. NCGS is 10x more common than celiac disease by the way. The two conditions share many common symptoms. The difference being that NCGS does not damage the lining of the small bowel as does celiac disease. Celiac disease is actually an autoimmune disorder. At any rate, both conditions require a gluten free diet so, at the end of the day, that is the antidote for both. Some experts feel that NCGS can be a precursor to the development of celiac disease.  I would also make mention of the fact that once gluten is removed from the diet and then added back in for the gluten challenge, reactions are often more violent as all tolerance has been lost.
    • cristiana
      Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one.  I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience.  The only major gluten hit I've had in more recent times resulted in chills, dizziness and vomiting about 2-3 hours after eating gluten.  It was truly horrible.  The fact that I vomited was new for me - I didn't get diarrhea which had been my classic reaction in the past.  It was as if in going totally gluten free my body has decided to react more violently to gluten, and quite differently.  Reactions can change over time - the fact that your son is reacting differently doesn't necessarily mean that gluten isn't the culprit. Anyway,  this study is interesting in that it states that it is possible to react 12 hours later. https://www.schaer.com/en-us/a/how-long-after-eating-gluten-do-symptoms-start#:~:text=A survey published in Alimentary,by 12 hours or more. I am afraid the only way you will probably know for sure is to repeat the challenge again, but I can completely understand your reluctance to do that.  I wonder if I can ask a couple of questions: Regarding the rash - has that also subsided since giving up gluten?   There are quite a lot of photos of dermatitis herpetiformis to see online, I wonder if you think what your son had/has was similar? Also, do you have coeliac disease in the family?  It is inherited and if you have others in the family, that could point more strongly to your son having coeliac disease. Cristiana
    • Beck1430
      Hi there, I'm looking for some advice for my 2 year old. After he turned one he started eating more foods like pasta and breadsticks and our supermarket finally started to stock a soy free bread (he has an intolerance to dairy and soy) so he started eating bread for the first time.  He began having foul, loose nappies, which I assumed must be teething, but this went on and on for a couple of months. Coupled with that, he started having patches of red scaly skin, a little bit like eczema but more widespread. He was also very tired and quite miserable. Given that it all coincided with him starting to eat a lot more gluten, his dietician recommended I eliminate gluten to see what happened. His poos immediately changed back to normal and were finally formed, and he’s been off gluten since last summer.   Fast forward 6 months and we did a wheat challenge yesterday, giving him a small breadstick at about 11am. He seemed ok through the day but 11pm he woke up vomiting, and was sick 3 more times over the course of 90 minutes and was writhing in pain on the floor crying about “poo” which never came, and today he has done a normal poo.  My two questions are: Is it possible that this was a reaction to the gluten if it came 12 hours after ingestion? Or is that too long to cause vomiting? I wonder if it’s more likely an unrelated bug but can’t work out where from as we’ve had a quiet week. Would there not be loose stools too if it was a reaction to gluten? Before going gluten-free, this was his main symptom!   If it could be the gluten that caused this, where do we stand with ever testing for coeliac? Now that I know more about the testing I don’t know why his dietician didn’t recommend we do that before removing it from his diet before. Seems cruel to make him ill for the sake of a test. Grateful for any pointers or advice. Thank you!   
    • ChrisSeth
      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
×
×
  • Create New...