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Specific Carbohydrate Diet (SCD)


AliB

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Ms Jan Rookie

Just need to let out some frustration: Yesterday I got such a desire for fried bacon and eggs, so knowing I can't manage eggs, I thought okay for a little bacon for the first time in 3 mths (it says in Elaine Gottschall's book that a little amount of normally smoked bacon is okay once a week). I went and bought it, fried and ate the bacon, and felt great. For a few hours. In the evening I started feeling wobbly and tired, and this morning I woke up with full scale head aches that have stayed all day. So annoying! It takes so little, and I'm pushed off my good track ... (only realized later that the bacon contained E301 and E250, but still I only had a little portion).

So here I am, back on a new batch of chicken soup and sauteed broccoli ...

How do you all deal with these minute sensitivities?

I mean, I'm so careful; I'm off all grains, all dairy, sugar/honey, eggs and anything else SCD illegal, I cook all meals myself - and then just one little mishap, and I can be counted out. Please tell me it will get better?

I have been on this diet for three months now, and I so need to hear that there's a stable, healthy light out ahead ...

Jan


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rinne Apprentice

Hi Jan. :)

I am finding it slow going also, I have been on the diet for four and a half months and although I am seeing improvement I still have symptoms. The C which had gone away has returned recently and strangely I think it is a good sign as it may mean one of the flares common to the diet every few months for the first year or two.

I tried a little bacon a while ago and had the same experience. I think it is just too hard to digest, likewise red meat which I have cut out for the time being. Every time I had hamburger I just burped a lot which to me is a sign that my digestion is struggling.

I hang onto the fact that I am seeing small improvements and I know I was stalled before this, I am committed to at least one year.

Here's hoping you are feeling better soon. :)

fig girl Rookie

Hi everyone,

I haven't been able to get on lately...i don't know where the time goes most days. It's bedtime every night before i know it!

Jan - thanks for the information on the sublingual B12 a few posts back. I hope you're feeling better from the bacon. It's so discouraging to feel bad after trying something. This month will be 7 mths for me on SCD and I'm still pretty restricted but for the past month or so i've just ate only the legal foods that I'm tolerating and it seems to be helping. I've tried fish oil off and on and i think the brand i'm on is not agreeing with me. I took one yesterday and my joints were hurting last night and today. :( I've got to search for a source of omega 3 that i can tolerate - i try to eat salmon about twice a week but i think some omega 3's everyday would help me.

Rinne - I'm doing the same - giving SCD a year and see how i feel. I do feel much better than before SCD so it is helping but just very slowly.

I may try the caprylic acid also for my candida since garlic makes my stomach sore.

I seen my GP last week to get my B12 level checked and she wanted to check my vit D level again also. She had checked my vit d last July i believe and it was at 43 and recommended taking 3,000 i.u.'s per day but she said the lab they had sent it to she's found isn't as accurate as another lab so this time she sent it to the more accurate lab and it came back at 23. She said for me to increase it to 5,000 i.u.'s per day - she said some people have to take that amount and Pele i think you said you have to take that amount also? Thanks for mentioning in a post to make sure it's Vit D3 which mine is. I started feeling better very shortly after increasing the vit d.

My B12 came back ok but she did mention that some people may have a normal level but it's still not getting to their cells. She recommended a B-complex plus supplement along with a P5P50 activated B6 supplement to take with the B-complex. She said taking them both together helps some people to absorb it in their cells. Maybe this is helping me to feel better also.

pele Rookie

Sounds like everyone needs some encouragement. At 4-5 months I was still a digestive basket case. Things really started to improve after 6 months.

I have been on this diet for over a year. I feel great as long as I stay away from things that I know I can't handle, like dairy, and as long as I stay with the thyroid and adrenal support that I need. If I mess with these things I get very, very tired.

My digestion feels pretty normal. I eat lots of nuts, eggs, fruit, plus of course meat and veggies. A couple of months ago I stopped feeling like I needed to consume probiotic pills all the time. It seems strange not to have any intestinal pain. In retrospect, I didn't know how much pain I had until it stopped--kind of like banging your head against the wall.

I did try bacon twice. I got really, really sick both times and won't try it again. Felt like I had food poisoning or a bacterial infection.

Applegate Farm Turkey Bacon doesn't have any adverse effect on me. It does contain a little turbinado, but if you are craving bacon, it's not too bad. I used to "cheat" with it, but lost my desire for it a few months ago.

I'm thinking I might try fresh corn on the cob this summer. Maybe I'll plant some in the garden.

So if you like the diet and feel that you are better than you were, then stick with it.

Ms Jan Rookie

Thanks guys for the encouragement :) .

It's so nice to hear that the diet is working for others. And nice with a bit of an idea on the time frame - yes, I'm probably expecting too much too soon. Generally, I am doing better, it's just such a slow uphill battle. And when I have these setbacks, like this time (have been in bed all day, unable to do anything, just throwing up and shivering and with bad headaches).

But for sure I'll stay on the SCD at least for a year. I don't really have much of a choice, as I anyhow can't eat most of the foods we exclude on the diet.

It's really good to know that things changed for you after 6 months, Pele. That gives me some more hope :rolleyes:

And no more bacon for me !! Do you know if I have to worry a lot about these set-backs, also when I've sometimes eaten SCD illegal stuff (like in some of the supplements I'm taking). Or will it be okay even with a few mishaps if I just stick to the diet as strictly as possible ?

Jan

rinne Apprentice

Jan I think Elaine Gottschall said it was necessary to be fanatical with the SCD but I think we all just have to do the best we can. I fudge on the coffee, I just refuse to drink weak coffee and last week I took a Tylenol because I burned myself really badly and that pain on top on the digestive pain was too much. The Tylenol helped and I didn't seem to have any negative consequences for having taken it.

Worrying does no good, it changes only the stress levels and that is bad. :)

Thanks for the encouragement pele, it does help to know there is the possibility of a pain free life.

In the end I was too lazy to go downtown to find the caprylic acid and olive leaf extract, next week-end, but I did find some grapefruit seed extract and have been taking it, I seem to be having a positive response to it although it has only been three days so it is early to say.

fig girl Rookie

Thanks Pele for the encouragement! It gives me hope too and i do feel like i've improved more lately. I'm doing ok with just eating the legal foods i'm tolerating so i think i'll stick with that for another month or so then maybe try eggs again and nuts again. I envision myself being able to eat all of the scd legal foods one day and that would be enough for me....as long as i feel good i'll gladly give up scd illegal foods for the rest of my life.

You guys have inspired me on the caprylic acid. I bought some Capryl today so i'll try those tomorrow. I was looking for some wild salmon oil but they didn't have any and they had the Capryl on sale. When i tried garlic it seemed to help me feel better (more energy, joint pain better) except for the stomach pain so maybe the caprylic acid will not bother my stomach.

I agree Rinne that we just have to do the best we can. In the past i've often tried too many new foods at once so i wouldn't know what was causing what. I've noticed as i've been on the diet for a while my symptoms are less severe now when i eat something legal that i'm not tolerating yet so that helps me to keep moving forward and hopefully heal more and more.


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fig girl Rookie
Well, I haven't been following this thread at all, so sorry if this is old news or something that doesn't work for the SCD.

I found that a sublingual methylcobalamin (active form of B12) helps with brainfog, amongst many many other benefits.

As for magnesium, I've read conflicting information about which forms are more or less absorbed, but I do know that citric acid intensifies the laxative effect. The oxide form seems to be the most effective at a given dosage. Try five parts magnesium to one part citric acid.

Not to start an argument here, but, I know many on the SCD eat nuts, meats and other high protein foods. I've read that protein can ferment in the gut, creating ammonia, thus feed yeasts. So I wonder if this may be the key to why I was able to get rid of candida relatively easily, even while consuming VERY large quantities of complex carbs (pasta, potatoes, baking powder biscuits, rice, etc). Cutting simple carbs like sugars is obvious, but it seems to me there's something more. Something important. With so many having such a difficult time with it, I keep looking back at my experience, trying to figure out what I did right. I didn't eat much high protein foods - mostly eggs and peanut butter. Rarely did I eat any beef, turkey, or tuna. Hardly ever ate yogurt, no honey since that's sugar, no vinegar or fruit. It was even before going gluten-free! I did eat a lot of margarine though, but I've not read anything about fats and candida.

So either the caprylic acid I took as incredibly potent, or the overgrowth was minor (even though symptoms were horrible and wide-ranging), or what I had wasn't the same as what many others are dealing with, or ?? Aside from the protein thing, I'm at a loss to explain it.

Thanks Rice Guy for mentioning about the proteins. I still can't tolerate nuts and if i eat too much protein at one meal my digestion is compromised. I seem to do better when i don't over do it on the protein.

mftnchn Explorer

Hi all,

I'll never catch up with all the posts so will just jump back in and respond to a few of the latest discussions. I'm SCD 9 months now. Been really busy, but also have a similar experience to what Rinne said with regard to the climate on this forum in recent months.

Bouts with constipation on SCD--on another forum, a person on SCD for 5 years said she has found that this happens whenever there is a period of detoxing. I think this fits with what I have seen as well. This is a major issue for me. I am now using Oxy-Mag--and it is working extremely well. I take 1/2-1 tsp at bedtime along with a scoop of (Thorne) buffered C powder. I try to take another scoop of the buffered C once again during the day as well unless I am having diarrhea. Funny this is happening more now, hopefully a sign of healing. Interestingly, I test low on magnesium even when taking huge doses of it. My doc calls this "magnesium wasting." Intracellular levels are ok at present, but serum levels always are low. I take shots of magnesium as well as oral.

Brain fog: I agree it goes along with constipation, but even more with detox. I get this along with fatigue when I am detoxing. Things to try are: fresh lemon squeezed into your drinking water, and drink extra, activated charcoal taken well away from food. I like to get up in the middle of the night or after a couple hours sleep and take the charcoal. Your body detoxes more at night. Extra glutathione (I take shots), skin brushing, sauna, coffee enemas (ecoffee is what my friends and I call it). The last one is the one that helps me by far the most. It increases glutathione levels and helps the liver release bile along with toxins, which is then expelled.

Long term SCDer's have said that the first year can be the worst for having ups and downs and healing crisis. The suggestion is to find your few safe foods. Start with intro but then tweak it to what works for you, same with adding in foods. Whenever you get symptomatic, go back to your safe foods for a few days. Although you do need to be aware of what your sensitivities are, don't obsess about what food "caused" your relapse as this can happen regardless. Just go to your safe foods and then retry the others when you feel better. A food diary helps. Remember intestinal healing is very slow, but eventually the sensitivities should decrease.

Interestingly, my doctor just ran a IGG food panel test on me as a way to see how gut healing is progressing. I found that fascinating. I don't have the results yet.

Candida: I haven't had major issues with this in spite of long term antibiotic treatment for lyme disease. Interesting, huh? But I have had a lot of parasite issues. From what I have learned, I highly highly recommended that any of you with ongoing symptoms have this checked.

Here's the test to have: Metametrix Microbial Ecology. Its $204, has to be ordered by your doctor, and my insurance has paid it. This test checks for the parasite's DNA so is picking up way more infections (most testing is very poor for parasites). My doctor said he is finding all kinds of infections in his patients that are usually only found in other areas of the world when his patient has never left home.

When I went on SCD, it had a huge cleansing effect and I saw a lot of horrible things come through, easily recognizable. :ph34r: I then took a month of herbal cleanse. So when I had the parasite test, things looked pretty good overall--but I still had strongyloides infection plus an unknown protozoan. I'm still treating for these. The first round of meds didn't wipe out the strongyloides. I just finished the first part of the second round. My doctor says that getting these treated may clear up my remaining gut symptoms, here's hoping!!! I do get fatigue and brain fog from the treatment, not when I am actually taking the pills but a few days into it or after it. My doc calls it "hyperimmune syndrome" type of response. It lasts a day to several days and can be pretty severe wipe-out fatigue.

Hope some of this helps! Glad to see some new "faces" here on the thread.

mftnchn Explorer

Protein in diet: I'm actually opposite, I need a higher protein and lower carb diet. We are all so varied, aren't we? I've malabsorbed protein in the past and tested with very low amino acids (results said it appeared I was not eating protein). Also with lyme disease, more protein and less carb is recommended.

pele Rookie

When Elaine said "fanatical adherence" in the book, she was advising parents of sick children not to give in to temptations to feed them things like birthday cake and ice cream. She was not talking about adults monitoring their own bodies and diets. I have the same issue with pecanbread. That is a site, approved by Elaine, to help parents of autistic children. The guidelines on pecanbread are not necessarily Elaine's recommendations for adults with gluten damage.

I don't want to encourage anyone to get way off-track, but this is not a religion and no one will go to hell for minor cheating. If you feel that a little weak coffee or an occasional piece of ham or sweet potato is not hurting you, then you are probably right.

The beauty of this diet is that when you get all of the crap out of your diet, it becomes much clearer what bothers you and what doesn't. As you go along, you will add and subtract things and feel better and better with the fine tuning.

Everyone starts this with different kinds and amounts of damage. I have heard it said that it takes celiacs a month to heal for each year of illness.

rinne Apprentice
Protein in diet: I'm actually opposite, I need a higher protein and lower carb diet. We are all so varied, aren't we? I've malabsorbed protein in the past and tested with very low amino acids (results said it appeared I was not eating protein). Also with lyme disease, more protein and less carb is recommended.

Thank you so much for your posts, it so helpful to have the perspective of someone who has been on the diet longer. I appreciated knowing that my hunch that the C returning was a positive sign of the diet working.

I found that I increased my protein intake when I was first ill, it just seemed that was what my body wanted but recently I am finding it too heavy in my system and have cut back a lot. I think it is important to trust what your body is craving assuming those cravings aren't for things you know will damage you.

The board. :(

.....

The beauty of this diet is that when you get all of the crap out of your diet, it becomes much clearer what bothers you and what doesn't. As you go along, you will add and subtract things and feel better and better with the...

Good point about the fanatical although I think that to know if it will work for you it may be important for the first couple of months to adhere to it strictly, once you have decided it is going to work for you then of course you can play with it. I agree, it is not a religion and shouldn't be made into one, that is one reason I appreciate CROHNSBOY who does take liberties with it and is doing great.

Ms Jan Rookie
Here's the test to have: Metametrix Microbial Ecology. Its $204, has to be ordered by your doctor, and my insurance has paid it. This test checks for the parasite's DNA so is picking up way more infections (most testing is very poor for parasites). My doctor said he is finding all kinds of infections in his patients that are usually only found in other areas of the world when his patient has never left home.

When I went on SCD, it had a huge cleansing effect and I saw a lot of horrible things come through, easily recognizable. :ph34r: I then took a month of herbal cleanse. So when I had the parasite test, things looked pretty good overall--but I still had strongyloides infection plus an unknown protozoan. I'm still treating for these. The first round of meds didn't wipe out the strongyloides. I just finished the first part of the second round. My doctor says that getting these treated may clear up my remaining gut symptoms, here's hoping!!! I do get fatigue and brain fog from the treatment, not when I am actually taking the pills but a few days into it or after it. My doc calls it "hyperimmune syndrome" type of response. It lasts a day to several days and can be pretty severe wipe-out fatigue.

Thanks a lot, yes this is both very helpful and ecouraging ! :D

I'm on an herbal parasitic cleanse, funnily with the same kind of circles of exhaustion, you describe. I've just taken it to be die offs - it's distinctly different from other brain fogs I've had. But I think I must get checked, as I'm pretty convinced I've those strongyloides besides other beasties (I have these weird itchy crawling lines, appearing under the skin mostly in the evenings). Is your dr convinced that the drugs will eventually rid you of all the parasites, incl. the strongyloides?

Hope they do that Metramatrix test here in Denmark where I'm for the next few months. Because normal tests have never picked up anything for me, even though I've lived for years in the tropics and in between have clearly shown signs of infestations.

And thanks also for the encouragement with the diet. :) I know I'm on the right tracks, there are just set-backs like the one I just had, that can be really difficult to pull through.

Jan

Ms Jan Rookie

By the way, anyone having any good advice for how to deal with one of those poisonings I just went through?

It's like I have to keep vomiting until I vomit up all the acid and bile in my stomach - really like cutting up my throat from the inside. :( And at the same time headaches so bad, I can do nothing but lie in bed. I use all the standard cleansers: like peppermint oil and tea, verveine, lemon and have tried clove oil; but it just doesn't seem to help any more when I'm hit as bad as this. I don't get C or D, just this terrible nausea and vomiting for 3-4 days. And today when I'm finally coming out of it, I'm still very weak.

Isn't there any simple remedy to help get through such a poisoning?

fig girl Rookie

Thanks Sherry for posting the great information - it's very helpful! Good to *see* you! I too felt better for a while in the beginning eating a lot of protein but then started feeling acidy when eating more than usual. About a week ago i stopped taking a probiotic capsule before bed and now just take one in the morning and that seemed to help along with not over doing it at one sitting on the protein. I sure hope your second round of treatment does the trick for you and clears up your gut symptoms....that would be great!

I'm glad to know the constipation can be a detox symptom...hopefully that's the case for me. I'm more regular now than in the beginning of the diet but i'll still not go for 2 days and/or skip a day at least once a week. I get brain fog more too with the constipation. The ecoffee sounds like it helps you a lot....i'll have to work up some nerve if i decide to try that. :lol: I don't know why but it makes me a little nervous to think about trying it - probably because i've never done an enema on myself. I have had the water enemas before my colonoscopy's though and they weren't too bad.

I started taking Capryl yesterday - i've just taken one pill a day for the last 2 days and seem to have more energy which it may be too soon to tell but the garlic gave me more energy also pretty quickly. No stomach pain or anything with the Capryl so that's good. Maybe i'll go up to 2 pills a day tomorrow.

fig girl Rookie

Good point about the fanatical although I think that to know if it will work for you it may be important for the first couple of months to adhere to it strictly, once you have decided it is going to work for you then of course you can play with it. I agree, it is not a religion and shouldn't be made into one, that is one reason I appreciate CROHNSBOY who does take liberties with it and is doing great.

[/quote

Rinne - I think Crohnsboy is very inspiring and motivating! :)

fig girl Rookie
Everyone starts this with different kinds and amounts of damage. I have heard it said that it takes celiacs a month to heal for each year of illness.

Thanks for posting this Pele - i hadn't heard this. In thinking back i can recall things happening as a child that may indicate i've had problems all of my life. I'm 44 so it might be safe to say that it may take me 44 mths to heal completely and that's ok by me. :) I'm in it for the long haul!

fig girl Rookie
By the way, anyone having any good advice for how to deal with one of those poisonings I just went through?

It's like I have to keep vomiting until I vomit up all the acid and bile in my stomach - really like cutting up my throat from the inside. :( And at the same time headaches so bad, I can do nothing but lie in bed. I use all the standard cleansers: like peppermint oil and tea, verveine, lemon and have tried clove oil; but it just doesn't seem to help any more when I'm hit as bad as this. I don't get C or D, just this terrible nausea and vomiting for 3-4 days. And today when I'm finally coming out of it, I'm still very weak.

Isn't there any simple remedy to help get through such a poisoning?

I'm glad you're finally coming out of your poisoning. I'm sorry you've had such a rough 3-4 days. I don't have any helpful suggestions but try to drink lots of water/fluids to help flush it out and rehydrate. Get some rest too which it sounds like you're doing. A big hug to you....hope you feel lots better soon. :)

mftnchn Explorer
I'm on an herbal parasitic cleanse, funnily with the same kind of circles of exhaustion, you describe. I've just taken it to be die offs - it's distinctly different from other brain fogs I've had. But I think I must get checked, as I'm pretty convinced I've those strongyloides besides other beasties (I have these weird itchy crawling lines, appearing under the skin mostly in the evenings). Is your dr convinced that the drugs will eventually rid you of all the parasites, incl. the strongyloides?

Hope they do that Metramatrix test here in Denmark where I'm for the next few months. Because normal tests have never picked up anything for me, even though I've lived for years in the tropics and in between have clearly shown signs of infestations.

Jan

Hi Jan,

My doctor said that it shouldn't be too hard to treat, although from what I read it can need several repeats. Basically, you treat, then retest, the re-treat, etc. From what I read, it can be eliminated as long as you treat the number of times needed to get at all the life cycles. And stop being re-exposed. Also my doctor is treating my husband because we could pass it back and forth.

I think my herbal treatments plus SCD had gotten rid of most of the nasties, but just not the strongyloides. The unknown protozoan that is being found, my doc says that is coming up pretty frequently in the testing. He decided to treat because a) it came up on two successive tests 2 months apart, B) I'm still symptomatic, and c) the literature on lyme disease is reporting finding unknown protozoan on wet mount specimens of blood and seems to be a significant part of the illness for many patients. So he is using a protocol for protozoan in general. So we don't know how effective it will be.

The Metametrix kit has instructions for international shipping--basically you have to just do your own shipping back to them. You can contact the lab via their website at www.metametrix.com and they can tell you how to work with a doctor to order, I am sure. You may be able to just order the kit, and then have a doctor in Denmark fill out the physician part to receive the report.

My doctor calls it "hyperimmune syndrome" rather than "herx" or "die-off" and my understanding is that it is different from the herx experienced in lyme disease. But I don't understand it totally. I guess as long as we are having these cycles of exhaustion with treatment it means it is doing something??

Sherry

mftnchn Explorer
By the way, anyone having any good advice for how to deal with one of those poisonings I just went through?

I don't get C or D, just this terrible nausea and vomiting for 3-4 days. And today when I'm finally coming out of it, I'm still very weak.

I'm not really sure either what might help. I boil ginger root slices in water, and you can add honey to taste (as it is kind of "hot" tasting), and then sip it. It is very helpful for nausea for me.

On another SCD forum, one person said that when getting very symptomatic, she eats only meat and broth for 1-2 days and it seems to be very healing for her. She said every time she does it she also experiences a new level of baseline healing.

Sorry I missed what you think is the cause??

Sherry

mftnchn Explorer
Thanks Sherry for posting the great information - it's very helpful! Good to *see* you! The ecoffee sounds like it helps you a lot....i'll have to work up some nerve if i decide to try that. :lol: I don't know why but it makes me a little nervous to think about trying it - probably because i've never done an enema on myself. I have had the water enemas before my colonoscopy's though and they weren't too bad.

Thanks, its nice to be welcomed! :) Its a little nerve-wracking for anyone to do ecoffee, but it rapidly became easy and second nature for me. I found the best bag is a "fountain" enema bag that has a larger opening in the top that stays open and you can just pour into it. Makes it also very easy to clean the bag. I also found that there is a green coffee just developed for this use, it works especially well. S. A. Wilson, I get it online. Otherwise, use organic coffee. Start with a small amount, like a cup, and do it twice. Hold or try to hold for 10 minutes. Then work up to a larger amount.

Sorry, maybe TMI for some of you. But I've benefited so much with this for detox, seems a shame not to let you know. ;)

rinne Apprentice

I thought about what I said in regards to being strict in the beginning and wanted to say more.

For the first two months of the diet I ate cheese and yogurt made with cow's milk, it did not agree with me but I stubbornly kept eating it thinking, well the diet says I can have it.... :lol: Finally I realized that I would have to give it up and did, and then it took me a few weeks to get up the nerve to try the goat yogurt as I was sure I was going to have the same response. It didn't, in fact once I started including the goat yogurt I began to see small positive changes.

I was still having a lot of pain though and wondering if that would ever change, at those points I just remembered that the SCD was/is a kind of last resort for me. I have been in pain for five and some years now, two of those years were spent largely horizontal because the pain was so intense that that position was the only one that took it from and 8 on a scale of 10 to a 6.

This week the pain has dropped to a 1 or 2 and sometimes for a little while there is no pain at all and this in the midst of having my C returning.

My conclusion is that we have to find our own way through this diet and we can do that by learning to listen to and respect our bodies.

Ms Jan Rookie
I'm glad you're finally coming out of your poisoning. I'm sorry you've had such a rough 3-4 days. I don't have any helpful suggestions but try to drink lots of water/fluids to help flush it out and rehydrate. Get some rest too which it sounds like you're doing. A big hug to you....hope you feel lots better soon. :)

Thanks fig girl, it's really kind of you to sympatize. :)

Luckily I'm much better today. :D Had like a whole purging all morning, so I guess a lot of detox was going on while I was sick. And perhaps it really was one of those healing crisis that some of you have explained about. I hope so ...

And wow, Rinne, I just read about your ordeal. :( That's a tough one. Every time I start feeling sorry for myself, I just have to read about what some of the rest of you are going through ... Glad the SCD is helping. If your stomach is that sore with pain, you might want to be extra careful with the grape fruit seed extract, it's kind of tough stuff until one gets used to it. Whereas the olive leaf extract, in my experience is softer on the system. But we're all different, maybe it works the other way around for you ... just a thought to watch out for.

Jan

rinne Apprentice
...If your stomach is that sore with pain, you might want to be extra careful with the grape fruit seed extract, it's kind of tough stuff until one gets used to it. Whereas the olive leaf extract, in my experience is softer on the system. But we're all different, maybe it works the other way around for you ... just a thought to watch out for.

Jan

I am glad to know you are feeling better today. :)

Thanks for the tip on the grapefruit seed extract, I am going slow on it. It is wonderful to feel better and to know that I am healing after such a long time of doubt.

mftnchn Explorer

Rinne I totally agree about listening to your own body. I find it very confusing though at times because there is so much going on with me.

I think that is why having a basic guideline for starting point, like the SCD intro, and pecanbread.com stages has helped me. But beyond that I have definitely tweaked it over time to find my most safe foods.

Hoping very much to add some back in soon but will wait until I finish treating the parasites and get the rest of my test results.

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    • Jenn D
      Hi. Did your ema levels ever go negative? My son is 2 years in gluten free and they are still positive.  I'm scared he has refractory celiac disease. Please if anyone has any info greatly appreciate it. His ttg is 3 which is considered normal.
    • MomofGF
      I will have that info soon but it was a laundry list of a test and 9 viles. ok so there were some days she was gluten she barely ate because of the reactions. I told her 3 weeks of atleast 10g’s a day and no gluten-free days. Thanks so much for your help! I didn’t know my suggestion for gluten-free days would have hurt her.    I will come back with the list to make sure the req was proper!! 
    • trents
      A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the testing. Was there a blood test done for IGA deficiency? Can you post the test names that were done with the scores and with the reference ranges used by the lab? By the way, with celiac disease the issue is not being able to digest gluten. Celiac disease is an autoimmune disorder defined by the fact that ingestion of gluten triggers an immune system response that attacks the membrane that lines the small bowel. The immune system mistakenly identifies the protein gluten as a biologic invader.
    • MomofGF
      Hey all!! M i want to thank everyone for their suggestions and advice - I am a single mother of 4 (now 3) and was helping with my oldest leaving the nest. I have another child with medical issues and with work (it’s our end year), life has been crazy and I haven’t had the time to answer.    so we got a blood test done for my daughter that can’t digest gluten. She had been eating gluten for 2 weeks. The blood work came back normal? How is that possible. I see her with my own eyes and it’s not normal. Is that not long enough?  I am thinking about having her eat gluten another week then go to the hospital and see what they say.    She did have 3 gluten-free days in those 2 weeks but she was getting afraid to eat and I told her to may take a day off - was this a bad thing to do? Girl was having constant back pains and muscle soreness as well. Headaches/migraines…should I wait longer. I did see 4-6 weeks of Gluten consumption prior to testing… kind of at a loss now.    Thanks to everyone for whatever advice you can give.   Enjoy your Sunday 😃👋👋      
    • Scott Adams
      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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