Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet (SCD)


AliB

Recommended Posts

Gobbie Apprentice

Wow, gobbie, what do you eat?

Here is a link to the breaking the vicious cycle website that will give you info on the SCD, including the leagl foods list:

Open Original Shared Link

Thank you so much for the link, checking it out now.

What do I eat.. I know :0

My menu is always the same and very limited if I want to look after my health.

I can only eat a certain amount of varied fresh vegetables and fruits.

Ofcourse not all the kinds as I still have few allergies even to fresh stuff like nuts lol.

Things are alright as long as I am eating at home.

The major problem is dining out cos I can't eat anything lol.

Hard to socialise that way..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 2.4k
  • Created
  • Last Reply
psawyer Proficient

May I ask what IMO is?

It means "In my opinion."
Gobbie Apprentice

It means "In my opinion."

Oh, thank you!

lol.

  • 3 weeks later...
GFMichigan Newbie

Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

  • 1 month later...
Guest Ellen Martino

Hi, this is my first post! I've just spent a good week researching SCD like crazy and I think I'm finally ready to tackle the diet, slowly but surely. I've been going back and forth about it, my symptoms are not as severe with most of the people I read about, but I have had bloating and gas filling up my stomach every time I eat, no matter what I eat for almost 2 years, and I know I need to clear out my system and heal (and get rid of those nasty grains and starches). I also was very apprehensive at first, because over the past year I have lost about 15 pounds (I was not overweight) so I was scared that I would get to under 80 pounds (i'm 4'11 and female) with the diet. So the question was - should I do the intro and go through the stages slowly or not? I decided that yes, my body needs a reboot, and especially after reading this site that you recommended:

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

I understand that for true healing to take place I should follow their advice about progressing through the stages very slowly. It seems like the e-book has a lot of great info, and the free chapter kind of sucked me in. Have you downloaded the whole e-book? I'm very tempted to buy it, since it gives a lot of step by step info about how to progress through stages, how to cook food, etc. I know a lot of people say, do whatever is best for you, but I need structure damnit! Anyway, I was wondering if anyone had any success following the advice of the book and would it be worth it to purchase it?

I'm so happy to be finally part of the conversation, I've been reading this forum for a week straight and only got up to page 70! Lots of great people, very interesting info!

~Ellen

jenngolightly Contributor

I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

  • 2 weeks later...
Carol Frilegh Enthusiast

Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

I have been following the SCD for ten years and probably will follow it for life. I have been able to add a few things after all this time but don't do it often. Please be aware the blog you mention is written by people who have not been on the SCD diet for a long time and all the information may not be applicable to a strict version of SCD. The gentlemen have written a book which claims to tell you what Elaine Gottschall left out. Elaine researched the SCD for nearly four decades and it is presumptuous to assume one knows what she left out. The authors certainly seem very enthused and sincere and deserve praise for their extensive and interesting articles. If you want to verify authenticity on SCD foods supplements and instructions, refer to:

www,breakingtheviciouscycle.info

www.pecanbread.com

Some of the SCDLifestyle information has been gleaned from these two websites above in addition to the book on SCD, "Breaking the Vicious Cycle." Use extreme caution with store bought foods and know you are using them at your own risk even if the ingredients have been verified.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carol Frilegh Enthusiast

I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

https://www.celiac.com/authors/143/Carol-Frilegh

  • 2 weeks later...
Katie B Apprentice

Hi there,

just wondering if anyone has had success going off of the diet? I believe in its validity but don't want to restrict myself forever.

Any advice would be appreciated!

  • 2 weeks later...
kannne Explorer

I have been on 100% SCD doing the stages since august 09.

Now I am able to tolerate 8 vegetable (boiled to death..) and lean meat + white fish :)

  • 3 months later...
gary'sgirl Explorer

It looks like no one has been on this thread for a while, but I was hoping that maybe some of you who have tried the SCD would tell your story. That is if it worked for you or not and if you have any advice about it.

I am going to buy the book today and I think this is the most hopeful thing I have come across since I have not had any improvement from going gluten free.

I was diagnosed with Celiac November 2009 and have been gluten free for 11 months.

Along with taking gluten out of my diet I have also taken out many many other food groups including all the top problematic ones.

Thanks for any replies!

~Sarah

ClevelandRocks Newbie

I am wondering if this diet helps Candida issues and if not, how I can also kill the Candida while on the SCD diet? Anyone have experience with this?

  • 1 month later...
jess7396 Newbie

Hello, I am new here. My daughter has recently become ill with what we will only be able to assume is (partly) Celiac or severe gluten intolerance. Prior to July, she was a fairly healthy (though very thin) child (age 10), with her only major complaint over the years being horrible canker sores that would take over her mouth on a regular basis (I have always suffered them as well, as did my father).

In July she suddenly became very ill with many digestive symptoms. To make the long story short, we know that she carried the HLA DQ-2 and HLA DQ-1 alleles, and that she now reacts violently to gluten with digestive symptoms as well as horrible migraines and peripheral neuropathy.

She is 100% gluten-free and will remain so, so we decided to forgo biopsy as it seems to be a risk with little benefit, since she clearly needs to be gluten-free either way.

The only other thing we know is that she shows evidence of a prior EBV infection, perhaps that was what started this whole mess?

On to my point in posting on this thread. I've read quite a bit about GAPS and SCD over the months she has been sick (she is not completely better, though much improved on the gluten-free diet).

What I am wondering, as we consider this option and discuss going through such a diet with her- has anyone here actually been "cured" of celiac disease with this diet? I understand that by nature these diets are gluten-free and very easy on the digestive system, so I understand that she may well benefit from the diet in making her "all better", but I am curious about the idea that after a couple of years, perhaps she might be able to all things, simply being sure grains are "properly prepared" and a small part of her diet, etc.

I'd welcome any thoughts on this, thank you for your time.

~Patty

  • 7 months later...
taysic Rookie

I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

jenngolightly Contributor

I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

Happy to hear that you're feeling better. I had the same reaction! I didn't have to stay on the diet forever. I started adding other foods back in at about 11 months. I'm still mostly SCD, but not completely. I feel great now!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

    3. - cristiana replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - EssexMum posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,636
    • Most Online (within 30 mins)
      7,748

    Sonnenblume327
    Newest Member
    Sonnenblume327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.