Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Corn Allergy Also & Looking For Help!


bikerblue

Recommended Posts

bikerblue Newbie

Hi everyone. I have been gluten free for almost two years now and have slowly since that time just been getting worse and worse with nausea, stomach cramping, fatigue, vomiting, etc. I have now realized that I have a severe corn allergy and have been off corn now for the last four to six weeks. I am really struggling. My weight has dropped quite a bit and I'm just having a hard time emotionally. I have been fighting with my health for four years now after the birth of my daughter. Since then there just hasn't been one good day without any pain, nausea or something and I feel some days it is tearing me apart. I'm not trying to lose weight but with such a limited diet it is hard and I am fearful that I am to the point that I don't want to eat because I just don't want to get sick. It is a constant struggle that I fight with every day. My kids know mom is sick again. I usually try to wait to eat a bigger meal late in the evening when things are about done around the house so in case I am sick that my whole day isn't shot.

It just feels like it is one thing on top of another and I just want to feel well. I'm so tired of dealing with the sickness. I think my body is just so sensitive at this point and I have to be so careful but yet when I think I am... I don't know.

Anyone else out there have a corn allergy along with the gluten? I could use some advice please!!!! Thank you!!!

Tami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watkinson Apprentice

Hi Tami,

I'm so sorry about how sick you have been. :( I also am allergic to corn, but I don't seem to have any stomache problems from it. My reaction seem to be a fibromyalgia worsening. (Muscle and joint pain gets worse.)

I wish I had some great suggestions that could make you well but I don't know what to say. Are you 100% sure that you are 100% gluten-free? Check all your ingredients.

Can you eat yogurt? If so get an organic one that is gluten-free (Stoneyfield is good) and try to eat one every day. It has the beneficial bacteria that aids in digestion and our immune system. If you don't want yogurt you can take it in pill form. Trader joes is gluten-free. It's called acidophyllis. There is also a digestive enzyme that you can take, I'm not sure what it is called. I take a good multi vitamin with iron and an extra B-complex vitamin. Liquid vitamins might be best for you, because you are still suffering from nausea.

Have you been tested for other food allergies. What about allergies to something in your house? Maybe mold.

You could try drinking some mint tea at night before bed. It helps with stomache upset and calms you.

Sorry to say this, but it sounds like you need to go back to the doctor. If you really are gluten-free and stay away from what you are allergic to, you should feel better. (In the stomach area anyway.) Maybe something else is going on. :(

Hope you feel better soon, Wendy

bikerblue Newbie

Hi Wendy... thank you for your response. I'm pretty sure I'm 100% gluten free. My children are also gluten free and I try to not let anything in that isn't. I eat pretty simply. Steamed veggies, meat, raw nuts. Really pretty boring. I haven't tried the yogurt but that does sound very good. I did order some products from allergygrocer which I am really enjoying.

What do you eat since you are corn free also? Today I've been pretty good but this fatigue I fight every day is really hard. I get kind of scared to eat as I don't want to feel sick but yet I know I need to. A few months ago I ended up in the hospital with severe vomiting and stomach pain that is so awful due to a gluten attack.

I've been trying to figure this all out for four years and it seems every time I think I am on the right road I get bumped off by something else. I just want to feel well and finding a doctor where I live who is supportive is pretty much impossible.

I haven't had any other allergy testing done. I get sick after eating, not always and sometimes when I don't I find myself thinking boy this is strange that I'm not... pretty bad huh? lol

I know I'll get there but it is such a struggle in the meantime!!!

Tami

watkinson Apprentice

Hi Tami,

You should definately get more allergy testing, especially since you mentioned the nuts.

I am not allergic to peanuts but they give me a terrible stomache ache. I have a mild allergy to pecans and the reation seems to be terrible fatiigue and depression. Almost a feeling of hopelessness for a few hours. I don't want even want to move. I am usually a very up person and very active, but the pecan reaction will start to happen within minutes of eating them and continue for hours.

You asked me what I eat. How about I give you the rundown from the last 2 days.

:D

Yesterday morning I had organic brown rice cereal (kina like rice krispies) with 1% milk, a banana, and some blackberries. 2 cups of tea. later I had an organic yogurt smoothie. For lunch I had a chunk of cheddar cheese and 2 gluten-free andoullie sausages (a little bigger than a hot dog, I get them at COSTCO, YUMMMM) and steamed broccoli. for a snack I had a Hershey's chocolate bar , an apple, and some green tea. For dinner I had a HUGE spinache salad with raw broccoli, red peppers, cucumber, mushrooms, and tomatoe with a gluten-free dressing that is superb, Kraft creamy sesame seed. I also made an oven fried chicken that was delish!! :D Had 2 pieces of that.

Today I had the hot rice cereal with yogurt and flax seed and cut up strawberries. For a snack, a banana and an organic chocolate milk. For lunch, 2 of those chicken legs from last night. and edumame (salted soy nuts) and a big chunk of motzarella. Tonight we'll probably have asparegus (we grow it in our garden) and pizza (Amy's)

Believe me I don't lack for food.

I only have a mild corn allergy so if I get some in my diet it doesn't kill me. It mostly makes me achey.

I do eat a fair amount of dairy, 3-4 servings a day, which you are not eating so I know that makes the menu smaller.

Try giving up the nuts and see if that helps.

You said your meals are boring, maybe you could add some spices like powdered garlic or chili powder to the the meats. I also use a red pepper and olive oil gluten-free maranade from COSTCO that is scrumptious.

One more thought I would keep a food journal. Write down everything you eat and how you feel after you eat it and throughout the day. If you see any similarities in what you eat and how you feel, you can get rid of that item for 3 weeks and then reintrduce it and see how you feel.

Good luck, keep me posted, Wendy

bikerblue Newbie

THanks for the response Wendy... boy if I ate some of that food you do (and I wish I could) I would be in a world of hurt... lol!!! I used to eat M&Ms and hershey bars all the time and now a bite makes me so nauseated and yucky feeling that is just isn't worth it!

Today I tried a few m&ms and I'm still hurting from it. I am soooo tired I can hardly stand it and yet so nauseated. I eat a lot of sweet potatoes, broccoli, cauliflower and all that steamed. Mostly meat and veggies. I do splurge with the occasional vanilla breyers ice cream and my brownies so that I can keep my weight up.

I am placing an order today for some more food. I will definitely keep an eye out for what I am eating... It seems to have been better lately but just so tired. It just seems to need to be simple and I am for the most part okay.

I'll let you know how it goes... hopefully I'm on the right track even though I seem to be losing more and more food choices by the month!!!!

Tami

watkinson Apprentice

Hi Tami,

Are you sure that M&M's are gluten-free? I'm not sure. I think that Reeses pieces are.

I am so sorry you still feel sick. :( They say it took so long for our bodies to be damaged that the recovery can take a long time too.

I read an article today talking about the possibiity of some celiacs getting an overgrowth of bacteria in the intestins once we stop eating gluten and start to feel better. It said that the overgrowth can make you feel sick, (nausious with diareah) I wonder if you could possibly have that?

Keep in touch with any news, good luck with the foods,

Wendy

angel-jd1 Community Regular
Are you sure that M&M's are gluten-free?

All of the M & M's are gluten free EXCEPT the crispy ones in the blue bag.

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Yep all M&M's are gluten free except the crispy :D

tarnalberry Community Regular

Tami, have you investigated if you may have a casein intolerance? M&M's are gluten-free (with the exception noted above) but they're not CF. Just a thought.

bikerblue Newbie

Hi everyone. Yes I have checked into the casein. I can tolerate dairy with no problems. Since I have the corn out of me I have been feeling pretty good now but I still suffer with a lot of fatigue. I tried a couple of times over the last week trying something with corn and then wonder why I did that. I definitely react to it and just need to keep it out of my system.

I have been trying some spirulina this week to see if that will help improve my fatigue. I don't notice anything so far but I'm hoping to see a change in that area. Plus I'm working on trying to keep my weight up so all seems to be going well for the most part. I pray I'm on the right path!!!

Tami

dreamhouses Newbie

Hi, I know what you mean about the corn! I've been gluten-free for six months, but felt really achy a lot. I was complaining to someone about that, and they said "well what have you added in since you went gluten-free?"...okay, I added in a lot of corn stuff to make up for the lost wheat, like tacos, corn chips, tortillas etc.. I took them out and the achy stuff went away. Doesn't seem fair, but hey, at least I know what the problem is. I figure I can probably tolerate it occasionally anyway. Also remember that sometimes we add in so much rice when going gluten-free, and that can end up being a problem for some also. Its worth trying it without the grains, and adding them back in one by one. Good luck, Valerie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.