Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Corn Allergy Also & Looking For Help!


bikerblue

Recommended Posts

bikerblue Newbie

Hi everyone. I have been gluten free for almost two years now and have slowly since that time just been getting worse and worse with nausea, stomach cramping, fatigue, vomiting, etc. I have now realized that I have a severe corn allergy and have been off corn now for the last four to six weeks. I am really struggling. My weight has dropped quite a bit and I'm just having a hard time emotionally. I have been fighting with my health for four years now after the birth of my daughter. Since then there just hasn't been one good day without any pain, nausea or something and I feel some days it is tearing me apart. I'm not trying to lose weight but with such a limited diet it is hard and I am fearful that I am to the point that I don't want to eat because I just don't want to get sick. It is a constant struggle that I fight with every day. My kids know mom is sick again. I usually try to wait to eat a bigger meal late in the evening when things are about done around the house so in case I am sick that my whole day isn't shot.

It just feels like it is one thing on top of another and I just want to feel well. I'm so tired of dealing with the sickness. I think my body is just so sensitive at this point and I have to be so careful but yet when I think I am... I don't know.

Anyone else out there have a corn allergy along with the gluten? I could use some advice please!!!! Thank you!!!

Tami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watkinson Apprentice

Hi Tami,

I'm so sorry about how sick you have been. :( I also am allergic to corn, but I don't seem to have any stomache problems from it. My reaction seem to be a fibromyalgia worsening. (Muscle and joint pain gets worse.)

I wish I had some great suggestions that could make you well but I don't know what to say. Are you 100% sure that you are 100% gluten-free? Check all your ingredients.

Can you eat yogurt? If so get an organic one that is gluten-free (Stoneyfield is good) and try to eat one every day. It has the beneficial bacteria that aids in digestion and our immune system. If you don't want yogurt you can take it in pill form. Trader joes is gluten-free. It's called acidophyllis. There is also a digestive enzyme that you can take, I'm not sure what it is called. I take a good multi vitamin with iron and an extra B-complex vitamin. Liquid vitamins might be best for you, because you are still suffering from nausea.

Have you been tested for other food allergies. What about allergies to something in your house? Maybe mold.

You could try drinking some mint tea at night before bed. It helps with stomache upset and calms you.

Sorry to say this, but it sounds like you need to go back to the doctor. If you really are gluten-free and stay away from what you are allergic to, you should feel better. (In the stomach area anyway.) Maybe something else is going on. :(

Hope you feel better soon, Wendy

bikerblue Newbie

Hi Wendy... thank you for your response. I'm pretty sure I'm 100% gluten free. My children are also gluten free and I try to not let anything in that isn't. I eat pretty simply. Steamed veggies, meat, raw nuts. Really pretty boring. I haven't tried the yogurt but that does sound very good. I did order some products from allergygrocer which I am really enjoying.

What do you eat since you are corn free also? Today I've been pretty good but this fatigue I fight every day is really hard. I get kind of scared to eat as I don't want to feel sick but yet I know I need to. A few months ago I ended up in the hospital with severe vomiting and stomach pain that is so awful due to a gluten attack.

I've been trying to figure this all out for four years and it seems every time I think I am on the right road I get bumped off by something else. I just want to feel well and finding a doctor where I live who is supportive is pretty much impossible.

I haven't had any other allergy testing done. I get sick after eating, not always and sometimes when I don't I find myself thinking boy this is strange that I'm not... pretty bad huh? lol

I know I'll get there but it is such a struggle in the meantime!!!

Tami

watkinson Apprentice

Hi Tami,

You should definately get more allergy testing, especially since you mentioned the nuts.

I am not allergic to peanuts but they give me a terrible stomache ache. I have a mild allergy to pecans and the reation seems to be terrible fatiigue and depression. Almost a feeling of hopelessness for a few hours. I don't want even want to move. I am usually a very up person and very active, but the pecan reaction will start to happen within minutes of eating them and continue for hours.

You asked me what I eat. How about I give you the rundown from the last 2 days.

:D

Yesterday morning I had organic brown rice cereal (kina like rice krispies) with 1% milk, a banana, and some blackberries. 2 cups of tea. later I had an organic yogurt smoothie. For lunch I had a chunk of cheddar cheese and 2 gluten-free andoullie sausages (a little bigger than a hot dog, I get them at COSTCO, YUMMMM) and steamed broccoli. for a snack I had a Hershey's chocolate bar , an apple, and some green tea. For dinner I had a HUGE spinache salad with raw broccoli, red peppers, cucumber, mushrooms, and tomatoe with a gluten-free dressing that is superb, Kraft creamy sesame seed. I also made an oven fried chicken that was delish!! :D Had 2 pieces of that.

Today I had the hot rice cereal with yogurt and flax seed and cut up strawberries. For a snack, a banana and an organic chocolate milk. For lunch, 2 of those chicken legs from last night. and edumame (salted soy nuts) and a big chunk of motzarella. Tonight we'll probably have asparegus (we grow it in our garden) and pizza (Amy's)

Believe me I don't lack for food.

I only have a mild corn allergy so if I get some in my diet it doesn't kill me. It mostly makes me achey.

I do eat a fair amount of dairy, 3-4 servings a day, which you are not eating so I know that makes the menu smaller.

Try giving up the nuts and see if that helps.

You said your meals are boring, maybe you could add some spices like powdered garlic or chili powder to the the meats. I also use a red pepper and olive oil gluten-free maranade from COSTCO that is scrumptious.

One more thought I would keep a food journal. Write down everything you eat and how you feel after you eat it and throughout the day. If you see any similarities in what you eat and how you feel, you can get rid of that item for 3 weeks and then reintrduce it and see how you feel.

Good luck, keep me posted, Wendy

bikerblue Newbie

THanks for the response Wendy... boy if I ate some of that food you do (and I wish I could) I would be in a world of hurt... lol!!! I used to eat M&Ms and hershey bars all the time and now a bite makes me so nauseated and yucky feeling that is just isn't worth it!

Today I tried a few m&ms and I'm still hurting from it. I am soooo tired I can hardly stand it and yet so nauseated. I eat a lot of sweet potatoes, broccoli, cauliflower and all that steamed. Mostly meat and veggies. I do splurge with the occasional vanilla breyers ice cream and my brownies so that I can keep my weight up.

I am placing an order today for some more food. I will definitely keep an eye out for what I am eating... It seems to have been better lately but just so tired. It just seems to need to be simple and I am for the most part okay.

I'll let you know how it goes... hopefully I'm on the right track even though I seem to be losing more and more food choices by the month!!!!

Tami

watkinson Apprentice

Hi Tami,

Are you sure that M&M's are gluten-free? I'm not sure. I think that Reeses pieces are.

I am so sorry you still feel sick. :( They say it took so long for our bodies to be damaged that the recovery can take a long time too.

I read an article today talking about the possibiity of some celiacs getting an overgrowth of bacteria in the intestins once we stop eating gluten and start to feel better. It said that the overgrowth can make you feel sick, (nausious with diareah) I wonder if you could possibly have that?

Keep in touch with any news, good luck with the foods,

Wendy

angel-jd1 Community Regular
Are you sure that M&M's are gluten-free?

All of the M & M's are gluten free EXCEPT the crispy ones in the blue bag.

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Yep all M&M's are gluten free except the crispy :D

tarnalberry Community Regular

Tami, have you investigated if you may have a casein intolerance? M&M's are gluten-free (with the exception noted above) but they're not CF. Just a thought.

bikerblue Newbie

Hi everyone. Yes I have checked into the casein. I can tolerate dairy with no problems. Since I have the corn out of me I have been feeling pretty good now but I still suffer with a lot of fatigue. I tried a couple of times over the last week trying something with corn and then wonder why I did that. I definitely react to it and just need to keep it out of my system.

I have been trying some spirulina this week to see if that will help improve my fatigue. I don't notice anything so far but I'm hoping to see a change in that area. Plus I'm working on trying to keep my weight up so all seems to be going well for the most part. I pray I'm on the right path!!!

Tami

dreamhouses Newbie

Hi, I know what you mean about the corn! I've been gluten-free for six months, but felt really achy a lot. I was complaining to someone about that, and they said "well what have you added in since you went gluten-free?"...okay, I added in a lot of corn stuff to make up for the lost wheat, like tacos, corn chips, tortillas etc.. I took them out and the achy stuff went away. Doesn't seem fair, but hey, at least I know what the problem is. I figure I can probably tolerate it occasionally anyway. Also remember that sometimes we add in so much rice when going gluten-free, and that can end up being a problem for some also. Its worth trying it without the grains, and adding them back in one by one. Good luck, Valerie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.