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Frustration Of Bad Advice

GlutenedGuy

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GlutenedGuy Newbie
GlutenedGuy
Posted

Hi Everyone.

After being diagnosed with celiac disease a few weeks ago I decided to make a trip to the pharmacist to see if there was an over the counter celiac disease blood test that I could recommend to my blood relatives to screen for celiac disease. I was told the following:

1

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Wolicki Enthusiast
Wolicki
Posted
Hi Everyone.

After being diagnosed with celiac disease a few weeks ago I decided to make a trip to the pharmacist to see if there was an over the counter celiac disease blood test that I could recommend to my blood relatives to screen for celiac disease. I was told the following:

1

Egaeus Newbie
Egaeus
Posted
Hi Everyone.

After being diagnosed with celiac disease a few weeks ago I decided to make a trip to the pharmacist to see if there was an over the counter celiac disease blood test that I could recommend to my blood relatives to screen for celiac disease. I was told the following:

1 – “Because we live in Nova Scotia and Celiac’s is not that common in our area I would not worry about being tested.” At this point I had not told her that I had already been diagnosed.

2 – After I told her that I had been diagnosed I was told “You should test yourself every few years to make sure that you still have Celiac’s Disease because it is something that can go away over time and you may be able to return to your normal diet”.

My main concern is what other “professionals” have given me bad advice. I can feel that I still have some source of gluten in my diet so I guess this means back to square 1 trying to figure out what it is. :angry:

GG

You're worried about bad advice? And you're here?

mushroom Proficient
mushroom
Posted
You're worried about bad advice? And you're here?

I have found less bad advice here than anywhere else I've been. Here, you are just getting the opinions of those who have been here, done that. And most of them k.n.o.w!! And you're here??? :huh:

ravenwoodglass Mentor
ravenwoodglass
Posted
You're worried about bad advice? And you're here?

This board has much less 'bad' advice than any other board I have seen. This board has a lot of knowledge to it and people who have struggled sometimes for many years to figure out what has caused their problems. Many of us have done a great deal of research in peer reviewed materials and share that research both in words and in links to the articles. This is often research that our doctors have 'missed'. Folks should always build their own knowledge base and this board is a great place to get help in doing just that.

Egaeus Newbie
Egaeus
Posted
This board has much less 'bad' advice than any other board I have seen. This board has a lot of knowledge to it and people who have struggled sometimes for many years to figure out what has caused their problems. Many of us have done a great deal of research in peer reviewed materials and share that research both in words and in links to the articles. This is often research that our doctors have 'missed'. Folks should always build their own knowledge base and this board is a great place to get help in doing just that.

I stopped by yesterday after getting the latest email from Mike Adams. I was appalled at the abundance of alarmist garbage and pseudoscience being promoted. I was curious as to just how bad the problem was. I saw almost nothing but bad advice. Acupuncture for allergies, recommendations of NDs, integrative medicine. Yes, that's all Bad Advice.

What I didn't see was any peer-reviewed anything. Just credulous people giving advice to other credulous people. It drives me crazy, and it doesn't do anything to help people who are dealing with celiac disease except give them false hope, and have them waste their money on things like sublingual allergy drops.

You want good advice? Here's some:

Dealing with any food sensitivity is easy. Learn to cook. Don't eat at restaurants. Learn how to identify trigger foods by using an elimination diet. Get a gastroenterologist who cares enough to help you figure out what your problems are.

Don't rely on a pharmacist for advice. Don't waste your money on alternative(s to) medicine. It's bunk. If it has been tested and shown to work, then it's medicine. Otherwise, it's a cup of tea and a nice massage. However, there are varying degrees of competence in any field, so if you GP doesn't know anything about celiac disease, find one that does.

Don't trust anecdotes, no matter how many you hear. Anecdotes, by their self-selected nature, are a very poor source of information. Learn how to read a research paper. There's an excellent article about it on sciencebasedmedicine.org, but they're having technical problems at the moment. Above all, remember that "the first rule [of scientific integrity] is that you should not fool yourself, and you are the easiest person to fool."

lovegrov Collaborator
lovegrov
Posted
You're worried about bad advice? And you're here?

Pretty full of yourself, aren't you? BTW, thanks for all that great advice and help you're given since 2007 -- all six posts worth.

richard

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tarnalberry Community Regular
tarnalberry
Posted
Don't rely on a pharmacist for advice. Don't waste your money on alternative(s to) medicine. It's bunk. If it has been tested and shown to work, then it's medicine. Otherwise, it's a cup of tea and a nice massage. However, there are varying degrees of competence in any field, so if you GP doesn't know anything about celiac disease, find one that does.

Unfortunately, there is not money, time, and interest to test everything. So, while thousands of years of anecdotal evidence may show that something works (yoga on depression and back pain, for instance (1)), it hasn't been studied. And when there is finally some small amount of money to study something "alternative", it is often (certainly not always) shown to be effective (St. John's Wort on mild to moderate depression, for instance (2)). And in some cases, while the answer isn't clear cut, there is evidence to suggest that it's at least not bunk (acupuncture for fibromyalgia and some elements of pregnancy, for instance (3)).

And after all the reading that I've had to do about "medicine" in a healthy pregnancy, well... I can assure you that even the western medical community often ignores it's own studies about the methods they use being NOT beneficial (episiotomies, epidurals, val salva maneuver, lithotomy position, time restrictions, food/beverage restrictions, etc. (4)) as evidenced by DIRECT contradictions between outcomes in studies and advice given from the "medical professional".

1, 2, 3 - References about on simple pubmed searches, which I presume, given the tone of your post, you know how to do. I am not going to take the hour it would take to link even half of them.

4 - way too many references to list here, though "The Thinking Woman's Guide to Labor" is a good printed version, and the Cochran Database is a good online search option that does thorough metaanalysis of data in the published (and occasionally unpublished) realm.

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