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Well,thats It Then....results Are In!

Twiggy

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Twiggy Rookie
Twiggy
Posted

After nagative endomysil blood tests and negative gastroscopy results the doctor has diagnosed me as gluten intolerant.She advised me that like ceoliac patients i should avoid gluten like the plague.She admited that test results are not always accurate and said that if i wanted to repeat the test i would have to reintroduce gluten into my diet for the next 6 months.There is no way! i would rather boil my own head than eat gluten ever again.So betwean us we decided that if i was going to go gluten free there was no need for further testing as the treatment would just involve what i am already doing anyway.I think i may just accept this and get on with my gluten free life,i cant be bothered persuing a label for my condition,i am just happy i am rid of those horrid symptoms.The reason for this post is to ask all of you more clued up folks if you think i made the right decision?? please respond,i feel your input will calm my thoughs :)

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Rudi Newbie
Rudi
Posted
After nagative endomysil blood tests and negative gastroscopy results the doctor has diagnosed me as gluten intolerant.She advised me that like ceoliac patients i should avoid gluten like the plague.She admited that test results are not always accurate and said that if i wanted to repeat the test i would have to reintroduce gluten into my diet for the next 6 months.There is no way! i would rather boil my own head than eat gluten ever again.So betwean us we decided that if i was going to go gluten free there was no need for further testing as the treatment would just involve what i am already doing anyway.I think i may just accept this and get on with my gluten free life,i cant be bothered persuing a label for my condition,i am just happy i am rid of those horrid symptoms.The reason for this post is to ask all of you more clued up folks if you think i made the right decision?? please respond,i feel your input will calm my thoughs :)

Hi Twiggy,

My wife had a blood test and endoscopy done recently and the results were negative for celia disease. She has the same symptoms of many people here on this forum and two weeks ago, she decided to go GLUTEN FREE, even though we don't have difinitive answers as to what is causing her symptoms. Its frustrating not getting any answers, however she has been feeling better since she went gluten free and is afraid to even try anything with gluten for fear that her symptoms will return. I think you made the right decision, the diet is not harmful and in many respects better for you. Welcome to the post, there are many people here who are very knowledgeable and have great advice...they have certainly helped me and my wife. Good luck! :)

Twiggy Rookie
Twiggy
Posted
  • Author

Thanks Rudi,i have to admit i share your wife's fear of gluten containing foods.I cant bear the smell of bread and the smell of cooking pasta either,maybe its a defence mechanism to keep me safe.Nothing tastes as good as i feel since ive stopped eating gluten (6 weeks ago) so i dont feel like i am missing out on anything.I do find it comforting though that if go out to eat and accidently get glutened, the worst i will suffer is a couple of days of gasto probs but its not actually a danger to my long term health like coeliac Desease sufferers.I agree also that the diet is more healthy than a gluten one as it limits processed food and i am a big believer that they cause cancer.Hope your wife continues to feel better too.x

ranger Enthusiast
ranger
Posted

I think you are doing the right thing. Many on this forum tested negative But gluten still made them sick. As they say, the proof is in the pudding, and my pudding is thickened with cornstarch. Glad you're feeling better.

lizard00 Enthusiast
lizard00
Posted

If gluten makes you sick, then avoiding it is the right thing to do. After one week of being gluten-free, I realized I was scared of gluten, too. I went gluten-free and haven't looked back. I tested negative, too, but my doc is pretty convinced I have celiac and has diagnosed me as such. But you are right, it doesn't really matter if you have the label or not; the treatment is the same.

I hope you continue to feel better!!! :)

Twiggy Rookie
Twiggy
Posted
  • Author

Thanks guy's i appreciate your replies :)

mommida Enthusiast
mommida
Posted

I never had Celiac officially diagnosed for myself. I have heard people with official diagnoses have had to pay higher life insurance premiums or had problems with "pre-existing" conditions medical coverage.

If gluten free makes you feel better, that is enough of an answer.

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Twiggy Rookie
Twiggy
Posted
  • Author

I am actually amazed at the ammount of people who say to me ''oh i cant tolerate bread either'' it just goes to show how many people are affected even in a slight way by gluten :angry:

Twiggy Rookie
Twiggy
Posted
  • Author

Dratt! I accidently glutened myself on tuesday and ive been payiong the price for the last 2 days......my tummy sounds like a cauldren.....ouch.My family need gass masks <_<

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    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

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    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

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    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

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