Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Any Bleeding?

Sparty

By Sparty
in Coping with Celiac Disease

Recommended Posts

Sparty Newbie
Sparty
Posted

For the Ladies Only! Has anyone had any bleeding? I have back pain something fierce along with bleeding.

Help please!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

blood noses

sometimes bleeding from behind

backpain

:angry:

angieInCA Apprentice
angieInCA
Posted
For the Ladies Only! Has anyone had any bleeding? I have back pain something fierce along with bleeding.

Help please!

Please see your OBGYN. Remember that celiac disease affects all your organs. Your uterus is an organ. The summer before I was diagnosed I had a hysterectomy at the age of 47 due to sever pain and bleeding. Post biopsy reveled I had Adenomyosis which my Dr. now says was might have been directly related to having unchecked celiac disease. Adenomyosis is usually not diagnosed until after biopsy because they have to view several cross-sectons of tissue.

I'm not saying this is what you might have but that you have to be aware your organs can be affected and you still need to have proper medical care for those organs and not be careless in thinking all symptoms will go away by going Gluten Free. In my situation the damage was done and the uterus had to go. The advanced Adenomyosis could not have been reversed.

Sparty Newbie
Sparty
Posted
  • Author
Please see your OBGYN. Remember that celiac disease affects all your organs. Your uterus is an organ. The summer before I was diagnosed I had a hysterectomy at the age of 47 due to sever pain and bleeding. Post biopsy reveled I had Adenomyosis which my Dr. now says was might have been directly related to having unchecked celiac disease. Adenomyosis is usually not diagnosed until after biopsy because they have to view several cross-sectons of tissue.

I'm not saying this is what you might have but that you have to be aware your organs can be affected and you still need to have proper medical care for those organs and not be careless in thinking all symptoms will go away by going Gluten Free. In my situation the damage was done and the uterus had to go. The advanced Adenomyosis could not have been reversed.

OMG....that is awful! I did see my obgyn last week and I am scheduled for a laproscopy to see if I have endometriosis. Your the second person to tell me that they had to have a hysterectomy from "issues". I guess I somehow got it in my head that the reason i was bleeding was because i had been cheating on my gluten diet. Gave me horrible back pain and ofcourse bleeding. My obgyn says the bleeding won't stop, in his opinion, just cuz i change my diet.! I guess time will tell. I have till Oct 9th to see if i stop on my own! Thank You for sharing your story.....it really does help others, especially me!

jkr Apprentice
jkr
Posted

I thought I was in menopause then I went gluten free in February and started bleeding in May. Then I started eating gluten for an endoscopy and I didn't bleed again until August when I had been gluten free for about a month after confirming the celiac diagnosis.

I really think the celiac is a factor in this. I have an appt with the OB-GYN on October 14th. I know he won't see any correlation but I do. I also have some discomfort on my lower right side. I had endometriosis years ago confirmed by a laparoscopy.

Sparty Newbie
Sparty
Posted
  • Author
I thought I was in menopause then I went gluten free in February and started bleeding in May. Then I started eating gluten for an endoscopy and I didn't bleed again until August when I had been gluten free for about a month after confirming the celiac diagnosis.

I really think the celiac is a factor in this. I have an appt with the OB-GYN on October 14th. I know he won't see any correlation but I do. I also have some discomfort on my lower right side. I had endometriosis years ago confirmed by a laparoscopy.

did you do anything to treat the endometriosis?

jkr Apprentice
jkr
Posted
did you do anything to treat the endometriosis?

No, the doctor didn't do anything other than take it out. It's been so long I don't remember too well. Don't they use a laser to get it out? I'll have to ask him when I go for my appt.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Itsabit
      - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      12

      SkinSafe

      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in...
    2. cristiana
      - cristiana replied to Sunshine4's topic in Related Issues & Disorders
      5

      Neurologic symptoms - Muscle Twitching and Hand Tremors

      I'd like to second supplementation. Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness. We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and...
    3. knitty kitty
      - knitty kitty replied to Itsabit's topic in Dermatitis Herpetiformis
      12

      SkinSafe

      Hello, @Itsabit, Your journey sounds very similar to mine. I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins. Nutritional deficiencies go along with Celiac Disease. Blood tests are not accurate measurements of deficiency states. The body robs stored vitamins from organs to circulate...
    4. knitty kitty
      - knitty kitty replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      What should I do with these test results?

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long...
    5. knitty kitty
      - knitty kitty replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      How many grams is there in one slice of wheat bread?

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,340
    • Most Online (within 30 mins)
      7,748
    valerieclaire
    Newest Member
    valerieclaire
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in my research as well. I am praying that I don’t have that! The dietary restrictions, esp when combined with eating gluten free are horrendous! Talk about malnutrition! Anyway, one step, one day at a time. I’m trying not to get ahead of myself. Not easy. 
    • cristiana
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By cristiana · Posted

      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      SkinSafe

      By knitty kitty · Posted

      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      What should I do with these test results?

      By knitty kitty · Posted

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      How many grams is there in one slice of wheat bread?

      By knitty kitty · Posted

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
×
×
  • Create New...