Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed With Celiac


counsela26

Recommended Posts

counsela26 Newbie

Hello, I'm looking for some help as my daughter has been diagnosed with celiac. She is 3 yrs old. We've been gluten free sense July and things have much better however it seems as though were having trouble with her tolerating most of the food. For example I gave her gluten free grits (corn) this am and she loves them and everything was great and then she had bad belly and lots of ecplosive poopy, same thing with brown rice based noodle last week. I guess my ? is has anyone else had these issues and if yes is it the food? or is she having to much at one time? everything seems to have high fiber in it. HELP :


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

Hi. What a lot on here have found is that Gluten-free alone does not always solve all their problems, and for some it actually makes things worse, or at the very least, no better.

It seems as though she may be having problems with carbohydrates in general, and that does seem to be pretty common.

I wonder if you might find it helpful to get her on to the Specific Carbohydrate Diet (SCD) or the GAPS diet which is similar. They cut out all the starchy carbs and grains and help the gut to heal properly.

I suspect that for many of us an overgrowth of things like Candida may be behind the issues, especially if ones have been given antibiotics at some point in the past. Whilst they kill some bugs, they actually allow others to proliferate because they kill the good bacteria as well as the bad but don't touch the yeasts like Candida, which then has nothing to stop it taking over. Our 'Western' diet is very Carb-oriented and that encourages them too.

A diet that removes grains, starches, sugar and some dairy, like these diets, takes away a lot of their food source (they love Carbs) and along with good probiotics and/or plain probiotic yogurt can help get the beasties under control. There is plenty of choice left - but it is confined to good wholesome unprocessed foods.

It sounds daunting, but a good website to look at is 'Pecanbread', and that is designed specifically for children and contains loads of good information and recipes, etc. The links for that and the GAPS diet are at the bottom of this post.

I hope that your little one can get some benefit eventually. I know how frustrating it is when you can't figure out what is going on.

Ali.

Open Original Shared Link

Open Original Shared Link

Wolicki Enthusiast

I am still recovering. I am guessing that there has been significant damage to my intestines. I have found that I cannot tolerate any grains, including corn. I also has to give up most dairy and nut butters. These foods rely on the cilia in the intestines to be processed, and I guess mine are not healed yet. I also cannot tolerate processed foods.

Lean protein, fruits and vegetables are pretty safe. Boring, but safe. If you haven't started your little one on enzymes and probiotics yet, I would recommend you start. I can now tolerate limited dairy. I think and hope it will continue to improve. Definitely stay away from the gluten free products for a while. They are VERY processed and hard to digest.

Good luck to you and your little one! My youngest (9) is being tested this month, as I suspect he has Celic as well. You will find almost any problem addressed in this site. It is a great resource!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,390
    • Most Online (within 30 mins)
      7,748

    Ozz lock
    Newest Member
    Ozz lock
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...