Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More About Candida


no-more-muffins

Recommended Posts

no-more-muffins Apprentice

I see that there are several people here who have experience with candida. I think I have it. I don't have celiac and techincally I don't even have a gluten intolerance but I do know that I react to gluten. I have been sick for months despite being gluten-free for 3 months dairy and soy free for 2. Last time I at gluten accidentally I was sick for a week. I am sicker when I eat sugar.

I don't have the typical nail fungus/ thrush/ symptoms etc. I do have lots of the other symptoms though, and I did have 4 courses of antibiotics in about 3 months about a year and a half before I got sick. I have been on oral contraceptives for years. I have lots of "celiac like" symptoms. In your experience, does this sound consistent with candida? I am so desperate for answers and I feel like I am getting to the end of my possibilities.

I went to a N.D. today and he seemed ok to go along on the candida theory with me. He gave me diflucan and an out dated diet plan (including plenty of whole grains including barley as well as "whole grain flour"). I am mostly looking for some validation on this. Do you have any advice for me? My biggest obstacles through all this have truly been my drs. who have not successfully been able to help me at all. Everything I know about gluten and celiac and candida I had to learn on my own. (This isn't a debate about drs.)

For those who have had candida, how did you know. What to you think of those internet questionairres? It is hard to find info that isn't connected with products. And one more ?. What was "die off" like for you? I had major withdrawals (fatigue and headaches, and anxiety) when I went off dairy and gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Symptoms can vary quite a lot from person to person. Some of the more common ones I know of include:

A "spaced out" sort of feeling

Brain fog

Achy all over

Feeling uncomfortable in your own body, like there's something wrong all over

Skin problems such as rashes, eczema, psoriasis, etc

Irritability

Sleep issues

Lack of concentration

Sensitivity to light and/or sound

Migraines

Nosebleeds

Itching in "private" areas

Sensitivity to weather changes

Sensitivity to certain food ingredients, including sugars, yeasts, vinegars, and alcohols

Body aches and pains

Bad breath

Food cravings

Whitish coating on the tongue

What worked for me was caprylic acid capsules. It is often recommended to start out with one per day, and work up to the full dosage over a week or two. This is because the die-off can be quite unpleasant. Basically, die-off means that lots of yeast are dying, and that can release a lot of toxins into the body all at once. So starting out slow limits how much of those toxins you have to deal with at any one time. It is also recommended to avoid all sugars, yeasts, vinegars, and fruits. This is what I did, and it worked wonders. Most of the more pronounced symptoms where gone in a month or two. Interestingly, I was still eating tons of pasta and bread. So I have my doubts about the typical suggestion of cutting complex carbs. It may be necessary for some, but I don't know for certain. Perhaps it depends on what kind of microbes have proliferated. Candida is just one of untold types, though it is apparently one of the more common ones to get out of control.

There is a good portion of caprylic acid in coconut oil, so using this in place of butter/margarine, and in all your cooking and baking can help too. Other candida fighters are included in Open Original Shared Link.

no-more-muffins Apprentice

Does taking an antifungal make the die-off worse? I am bracing myself for some bad days ahead.

I am not totally eliminating all carbs. I have been eating a limited amount of corn tortillas, brown rice and quinoa. I plan to eat corn chips and mabye some pancakes made with brown rice flour. And a very limited amount of fruit. (like 1/2 per day)

It's hard to find consistent information on the diet. It varies so much.

And my dr. told me to take the diflucan for 2 weeks, eat the diet for 3 and then go hog wild and see how it makes me feel. I asked why he'd recommend that and he said so you know if your symptoms are food related. Yeah, thanks for that great advice. I know I won't be cured in 3 weeks and there's no way I am taking a huge step back like that. I think that was terrible advice.

AliB Enthusiast

Hiya - we have been chatting about this at the end of the 'Specific Carb Diet' thread if you want to have a mooch at the last few pages.

As Riceguy said, whilst Candida is certainly a good contender there are other microbes that could also be implicated. Antibiotics, in killing the 'goodies' let the 'baddies' that are not touched by, or that are resistant to the antibiotics proliferate and get into places they shouldn't be, like the upper intestine.

Some people continue to eat carbs during treatment, but I'm not so sure that it doesn't just end up prolonging the agony.

As I have mentioned on other threads, you might like to check out Bee Wilder's website (healing by Bee) as she seems to have a pretty good Candida protocol. From all the different suggestions I have seen, her site is very comprehensive and seems to cover most angles.

It can be a beggar to get rid of. I am still battling with it after 18 months, although I can see signs that I am winning, certainly in some areas.

Die-off is an issue and not an easy one to deal with. It is good to have some other support - herbal and vitamin whilst doing it, and to make sure you are drinking enough (that's my problem!) to flush the toxins out of your body.

I am taking coconut oil and oregano oil, but we have been discussing the merits of olive leaf extract on the other thread too.

Like you, I am very gluten sensitive although not diagnosed Celiac and have had to rebuild my digestion after it collapsed. It has taken me 18 months so far following the SCD, but I am a lot better than I was. Getting rid of the Candida et al is the final hurdle and one I am determined to win if I possibly can.

chatycady Explorer
Does taking an antifungal make the die-off worse? I am bracing myself for some bad days ahead.

I am not totally eliminating all carbs. I have been eating a limited amount of corn tortillas, brown rice and quinoa. I plan to eat corn chips and mabye some pancakes made with brown rice flour. And a very limited amount of fruit. (like 1/2 per day)

It's hard to find consistent information on the diet. It varies so much.

And my dr. told me to take the diflucan for 2 weeks, eat the diet for 3 and then go hog wild and see how it makes me feel. I asked why he'd recommend that and he said so you know if your symptoms are food related. Yeah, thanks for that great advice. I know I won't be cured in 3 weeks and there's no way I am taking a huge step back like that. I think that was terrible advice.

I hope you are successful. My sister is taking an antibiotic to deal with candida. I'm taking the natural approach. I don't do well with anitbiotics and for me I believe antibiotics caused this problem.

Here are some tiips that work for me. I found them on some website. (You are right there is tons of websites wanting to sell us something.) Maybe you won't need these tips and will do fine, but just in case here's what I've fouund.

Eat raw fruit on an empty stomach and alone. Lots of fresh fruit and veggies- boosts the immune system and starves candida. You may want to check out raw foods and candida.

No grains. Only fresh meats, frozen or fresh fruit and veggies.

No additives of any kind. No sugar. Honey works for me and I have a little each day with my yogurt.

Eat meat, yogurt and veggies together.

Eat nuts and beans together and separate from meat, dairy, etc.

Eat smaller and more frequent meals.

No dairy, except butter and homemade 24 hour yogurt.

Eggs are okay. Coconut oil a couple times a day.

Make sure your vitamin D, iron and B-12 levels are okay. A deficiency of these cause candida to multiply. Also take extra selenium as a deficiency is believed to cause candida also.

I follow the SCDiet with these added rules.

May you find what works for you and are healed completely!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748

    Jane Margaret
    Newest Member
    Jane Margaret
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.