Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More About Candida


no-more-muffins

Recommended Posts

no-more-muffins Apprentice

I see that there are several people here who have experience with candida. I think I have it. I don't have celiac and techincally I don't even have a gluten intolerance but I do know that I react to gluten. I have been sick for months despite being gluten-free for 3 months dairy and soy free for 2. Last time I at gluten accidentally I was sick for a week. I am sicker when I eat sugar.

I don't have the typical nail fungus/ thrush/ symptoms etc. I do have lots of the other symptoms though, and I did have 4 courses of antibiotics in about 3 months about a year and a half before I got sick. I have been on oral contraceptives for years. I have lots of "celiac like" symptoms. In your experience, does this sound consistent with candida? I am so desperate for answers and I feel like I am getting to the end of my possibilities.

I went to a N.D. today and he seemed ok to go along on the candida theory with me. He gave me diflucan and an out dated diet plan (including plenty of whole grains including barley as well as "whole grain flour"). I am mostly looking for some validation on this. Do you have any advice for me? My biggest obstacles through all this have truly been my drs. who have not successfully been able to help me at all. Everything I know about gluten and celiac and candida I had to learn on my own. (This isn't a debate about drs.)

For those who have had candida, how did you know. What to you think of those internet questionairres? It is hard to find info that isn't connected with products. And one more ?. What was "die off" like for you? I had major withdrawals (fatigue and headaches, and anxiety) when I went off dairy and gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Symptoms can vary quite a lot from person to person. Some of the more common ones I know of include:

A "spaced out" sort of feeling

Brain fog

Achy all over

Feeling uncomfortable in your own body, like there's something wrong all over

Skin problems such as rashes, eczema, psoriasis, etc

Irritability

Sleep issues

Lack of concentration

Sensitivity to light and/or sound

Migraines

Nosebleeds

Itching in "private" areas

Sensitivity to weather changes

Sensitivity to certain food ingredients, including sugars, yeasts, vinegars, and alcohols

Body aches and pains

Bad breath

Food cravings

Whitish coating on the tongue

What worked for me was caprylic acid capsules. It is often recommended to start out with one per day, and work up to the full dosage over a week or two. This is because the die-off can be quite unpleasant. Basically, die-off means that lots of yeast are dying, and that can release a lot of toxins into the body all at once. So starting out slow limits how much of those toxins you have to deal with at any one time. It is also recommended to avoid all sugars, yeasts, vinegars, and fruits. This is what I did, and it worked wonders. Most of the more pronounced symptoms where gone in a month or two. Interestingly, I was still eating tons of pasta and bread. So I have my doubts about the typical suggestion of cutting complex carbs. It may be necessary for some, but I don't know for certain. Perhaps it depends on what kind of microbes have proliferated. Candida is just one of untold types, though it is apparently one of the more common ones to get out of control.

There is a good portion of caprylic acid in coconut oil, so using this in place of butter/margarine, and in all your cooking and baking can help too. Other candida fighters are included in Open Original Shared Link.

no-more-muffins Apprentice

Does taking an antifungal make the die-off worse? I am bracing myself for some bad days ahead.

I am not totally eliminating all carbs. I have been eating a limited amount of corn tortillas, brown rice and quinoa. I plan to eat corn chips and mabye some pancakes made with brown rice flour. And a very limited amount of fruit. (like 1/2 per day)

It's hard to find consistent information on the diet. It varies so much.

And my dr. told me to take the diflucan for 2 weeks, eat the diet for 3 and then go hog wild and see how it makes me feel. I asked why he'd recommend that and he said so you know if your symptoms are food related. Yeah, thanks for that great advice. I know I won't be cured in 3 weeks and there's no way I am taking a huge step back like that. I think that was terrible advice.

AliB Enthusiast

Hiya - we have been chatting about this at the end of the 'Specific Carb Diet' thread if you want to have a mooch at the last few pages.

As Riceguy said, whilst Candida is certainly a good contender there are other microbes that could also be implicated. Antibiotics, in killing the 'goodies' let the 'baddies' that are not touched by, or that are resistant to the antibiotics proliferate and get into places they shouldn't be, like the upper intestine.

Some people continue to eat carbs during treatment, but I'm not so sure that it doesn't just end up prolonging the agony.

As I have mentioned on other threads, you might like to check out Bee Wilder's website (healing by Bee) as she seems to have a pretty good Candida protocol. From all the different suggestions I have seen, her site is very comprehensive and seems to cover most angles.

It can be a beggar to get rid of. I am still battling with it after 18 months, although I can see signs that I am winning, certainly in some areas.

Die-off is an issue and not an easy one to deal with. It is good to have some other support - herbal and vitamin whilst doing it, and to make sure you are drinking enough (that's my problem!) to flush the toxins out of your body.

I am taking coconut oil and oregano oil, but we have been discussing the merits of olive leaf extract on the other thread too.

Like you, I am very gluten sensitive although not diagnosed Celiac and have had to rebuild my digestion after it collapsed. It has taken me 18 months so far following the SCD, but I am a lot better than I was. Getting rid of the Candida et al is the final hurdle and one I am determined to win if I possibly can.

chatycady Explorer
Does taking an antifungal make the die-off worse? I am bracing myself for some bad days ahead.

I am not totally eliminating all carbs. I have been eating a limited amount of corn tortillas, brown rice and quinoa. I plan to eat corn chips and mabye some pancakes made with brown rice flour. And a very limited amount of fruit. (like 1/2 per day)

It's hard to find consistent information on the diet. It varies so much.

And my dr. told me to take the diflucan for 2 weeks, eat the diet for 3 and then go hog wild and see how it makes me feel. I asked why he'd recommend that and he said so you know if your symptoms are food related. Yeah, thanks for that great advice. I know I won't be cured in 3 weeks and there's no way I am taking a huge step back like that. I think that was terrible advice.

I hope you are successful. My sister is taking an antibiotic to deal with candida. I'm taking the natural approach. I don't do well with anitbiotics and for me I believe antibiotics caused this problem.

Here are some tiips that work for me. I found them on some website. (You are right there is tons of websites wanting to sell us something.) Maybe you won't need these tips and will do fine, but just in case here's what I've fouund.

Eat raw fruit on an empty stomach and alone. Lots of fresh fruit and veggies- boosts the immune system and starves candida. You may want to check out raw foods and candida.

No grains. Only fresh meats, frozen or fresh fruit and veggies.

No additives of any kind. No sugar. Honey works for me and I have a little each day with my yogurt.

Eat meat, yogurt and veggies together.

Eat nuts and beans together and separate from meat, dairy, etc.

Eat smaller and more frequent meals.

No dairy, except butter and homemade 24 hour yogurt.

Eggs are okay. Coconut oil a couple times a day.

Make sure your vitamin D, iron and B-12 levels are okay. A deficiency of these cause candida to multiply. Also take extra selenium as a deficiency is believed to cause candida also.

I follow the SCDiet with these added rules.

May you find what works for you and are healed completely!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.