Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Name Of Reliable Testing

ann72601

Recommended Posts

ann72601 Apprentice
ann72601
Posted

I have family members who would like to get tests done but aren't 'sick' yet. Does anyone know of any resources for getting tests done through online, reliable labs? I can't tell one from the other. Any help would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

In order to have the blood tests done to evaluate for Celiac Disease, you have to see your doctor and your doctor can order the tests.

ann72601 Apprentice
ann72601
Posted
  • Author
I have family members who would like to get tests done but aren't 'sick' yet. Does anyone know of any resources for getting tests done through online, reliable labs? I can't tell one from the other. Any help would be appreciated.

I don't need it for myself. I have a diagnosis already.

GottaSki Mentor
GottaSki
Posted

Blood tests are the starting point, for which they need to go to their doctor. They need to let the doctor know they would like to be tested because of your diagnosis. If their doctor is unfamiliar with Celiac Disease they may need to explain that Celiac can cause damage before obvious symptoms.

People may dismiss early symptoms because they can be vague. I know I did - symptoms were transient for years - in hind site I now understand that it was Celiac that caused many minor and not so minor ailments for me over the years and certainly explains my anemia in my 20s and 30s.

ann72601 Apprentice
ann72601
Posted
  • Author
Blood tests are the starting point, for which they need to go to their doctor. They need to let the doctor know they would like to be tested because of your diagnosis. If their doctor is unfamiliar with Celiac Disease they may need to explain that Celiac can cause damage before obvious symptoms.

People may dismiss early symptoms because they can be vague. I know I did - symptoms were transient for years - in hind site I now understand that it was Celiac that caused many minor and not so minor ailments for me over the years and certainly explains my anemia in my 20s and 30s.

Thank you. Several people in the family have commonalities with my own health history, so at this point, it's a starting place for them. I don't think they want or even able to spend the kind of money that the full work-up costs. Plus getting someone to take them seriously is a problem. I've read on this forum in the past, that some people have been tested through online sources and then took those results to their doctors, which is what I'm looking for.

I understand about all the layers of problems we develop; all too well. Over 10 years myself and now I'm dealing with the celiac along with disease and damage that I'm having to work through too.

It would be nice to be able to help some of the relatives not have to go through this.

Thanks again!!

carynanne Rookie
carynanne
Posted
Thank you. Several people in the family have commonalities with my own health history, so at this point, it's a starting place for them. I don't think they want or even able to spend the kind of money that the full work-up costs. Plus getting someone to take them seriously is a problem. I've read on this forum in the past, that some people have been tested through online sources and then took those results to their doctors, which is what I'm looking for.

I understand about all the layers of problems we develop; all too well. Over 10 years myself and now I'm dealing with the celiac along with disease and damage that I'm having to work through too.

It would be nice to be able to help some of the relatives not have to go through this.

Thanks again!!

There are 2 tests online that I've found, though I haven't done either of them. I'm still waiting on my labwork (it's been over a week--??), but here are the websites for them:

Open Original Shared Link A saliva test to see whether you carry the genes for celiac. Apparently about 30% of the population carries them, though, so this sounds interesting, but will not tell you if you have celiac.

Open Original Shared Link This is called a Biocard, and it is a home blood test for antibodies to gluten which I think is like a pregnancy test in that, while a positive is a good indication that you are celiac, a negative does not mean you're not. You can read more about it on that website. If anyone else has any more input on those, please speak up! *I can't figure out how to get this test in the US -- this is a Canadian website.*

happygirl Collaborator
happygirl
Posted

No matter who it is, the person interested in a true diagnosis of Celiac needs to a see a doctor to have the bloodwork run.

The biocard test is not available in the US.

The gene test does not diagnose Celiac - as you linked, about 1/3 of the population has the gene(s), so it is not diagnostic.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,261
    • Most Online (within 30 mins)
      7,748
    Celiacsugh
    Newest Member
    Celiacsugh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Celiacsugh
      gluten-free and continued upper left side pain after drinking wine

      By Celiacsugh · Posted

      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
    • trents
      gluten-free and continued upper left side pain after drinking wine

      By trents · Posted

      Welcome to the forum, @Celiacsugh! Have you been checked for a gastric or peptic ulcer?
    • knitty kitty
      Symptoms after ingesting gluten

      By knitty kitty · Posted

      @Juliana82, Is the bleeding occurring when you throw up?  Or with bowel movements?  Constipation?  Is it bright red or black and tarry?  Anal fissures?  Crohn's or Colitis?  Alcohol consumption?   Diabetes, Thiamine deficiency and anemia can cause false negatives.  Most diabetics are deficient in Thiamine.  Thiamine deficiency can also occur due to high calorie malnutrition, eating lots of carbohydrates but insufficient Thiamine from dietary sources.   The Gluten-Free Diet for Celiac Disease: Critical Insights to Better Understand Clinical Outcomes https://pmc.ncbi.nlm.nih.gov/articles/PMC10537989/
    • Celiacsugh
      gluten-free and continued upper left side pain after drinking wine

      By Celiacsugh · Posted

      Hi There! Recently diagnosed, have been gluten-free for 3 months. My main symptom at time of diagnosis was upper left dull side pain, burning, constant. After going gluten free it has improved dramatically, however I’ve noticed when I drink wine on the weekends the pain returns. Has anyone else experienced this? 
    • Wheatwacked
      Question on if i can contact my gastro doctor whenever?

      By Wheatwacked · Posted

      In the US you don't need a referal to see a specialist if you are self pay. PPO you can go directly to any specialist or doctor you prefer. HMO you’ll choose a primary doctor to manage all your care. Pricing of the insurance will vary, as will prescriptions coverage.  
×
×
  • Create New...