Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Sc

moonlightmaven

By moonlightmaven
in Meet Up Room

Recommended Posts

moonlightmaven Newbie
moonlightmaven
Posted

Hi, everyone. I am 38 years old and from Upstate SC. I was diagnosed 20 years ago, at the age of 18. However, I did not think at the time that my symptoms were "bad enough" to justify all of the dietary changes I would have to make. Over the years, the symptoms continued to get worse until I just could not take the pain any longer. I have been gluten-free for a couple of months now, and I feel so much better! I am kicking myself for not changing my diet sooner. There are so many more foods that I can eat than I had originally thought.

Anyway, I am looking forward to networking and getting to know others who understand some of the challenges I face.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


OneBySea Newbie
OneBySea
Posted
Hi, everyone. I am 38 years old and from Upstate SC. I was diagnosed 20 years ago, at the age of 18. However, I did not think at the time that my symptoms were "bad enough" to justify all of the dietary changes I would have to make. Over the years, the symptoms continued to get worse until I just could not take the pain any longer. I have been gluten-free for a couple of months now, and I feel so much better! I am kicking myself for not changing my diet sooner. There are so many more foods that I can eat than I had originally thought.

Anyway, I am looking forward to networking and getting to know others who understand some of the challenges I face.

Hi, Moonlightmaven. I too, live in SC and am Celiac. I love to cook and am creating my own Gluten Free cookbook. I would love to find out how to start a support group in my area and maybe even a Celiac Dinner Club. I already have a page at glutenfreetoday.blogspot.com but I am new at this blogging thing and don't know how to attract others to join a local group. Any ideas?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Richardo
      - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises???
    2. Matt13
      - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so...
    3. Rogol72
      - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains.
    4. trents
      - trents replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and...
    5. Richardo
      - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,337
    • Most Online (within 30 mins)
      7,748
    Marleyj23
    Newest Member
    Marleyj23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Matt13
      Can food allergies like milk and soy flatten villi?

      By Matt13 · Posted

      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      dermatitis herpetiformis with all grains

      By Rogol72 · Posted

      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
×
×
  • Create New...