Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened And Now I'm Clinically Depressed


eyeaspire

Recommended Posts

eyeaspire Newbie

Last Sunday night I ate a kale salad with blue cheese. The next day I drank some Floradix, forgetting that one of their varieties has gluten in it. On top of that, it turns out my lipstick has wheat germ in it. Sigh.

First day of symptoms I felt like I was coming down with the flu, had a puffy face, circles under my eyes, and neuropathy in my left hand - nothing out of the ordinary for a reaction. But as the days went by my mood plummeted to a point where I was having suicidal ideation and anxiety attacks. Before I figured out my gluten intolerance/Celiac (never officially diagnosed, but might as well be considering how horribly I react), I was diagnosed with bipolar. Taking gluten out solved that problem. Anyway, I have meds left over, so I've been taking Zoloft and Ativan, which are helping. I also went to the gym and did a bunch of aerobic exercise to help with the anxiety.

Question: am I the only one who responds this badly? How long does it last?

I've been gluten-free and mostly soy and dairy free since March. I know that reactions can get worse as time goes by, but it has only been six months!

Surely I will get hit with this again and I'm scared to death. I've put a call into my shrink to work out a game plan that doesn't include checking me into a hospital.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crimson Rookie

First off: If you're having suicidal thoughts, you need to talk to someone around you. Find some support. I know that sometimes when you're in that mind frame, you feel no one will understand or be supportive, but it's better than sitting around and listening to those types of thoughts going on and on.

Sometimes writing in a journal helps me sort it out. Because if I'm forced to look at that type of thought, I get annoyed with myself for thinking it. It usually helps me refocus my thoughts and emotions.

I remember when I first went wheat free. Before I realized I had a gluten issue too. I ate cookies that were whole wheat. It was right about christmas time. I spent three days laying on the couch crying for no apparent reason. It really sucked. But I was able to equate it to the wheat.

I would have been diagnosed bi polar as well before I started eliminating certain foods.

I think it helps to know it's the gluten effect and not who I or you really are. It will pass! Find something that helps to calm you through this.

Feel better!

dilettantesteph Collaborator

I used to regularly feel suicidal when I got glutened. This last two times, my stomach swelled up like I was 5 months pregnant, and I was a bit extra teary with emotional stuff, but no suicidal thoughts! It's been two years gluten free Maybe it is a matter of healing, maybe it is figuring out what I can really eat. I'm not sure, but it is sure nice not to feel like offing myself.

tmbarke Apprentice

For years I was feeling this way until recently this year I went to the med center thinking I was having the onset of an asthma attack - and they found nothing......but my throat was still swelling up and then my tongue - and then my ankles..........2 weeks ago during my physical, I was put on a gluten free diet......talk about depressing!

As I struggled, I started feeling like a new person! I was energetic, beginning to focus my eyes better, concentrating and smiling!

The other nite I had a mixed drink - rum and cola........woke with a swollen throat and angry! Like it started all over again. 'JUST SHOOT ME!'

The depression now comes from the battle of finding gluten free foods with gluten hidden in some form on the label and I cry! How horrible to have to do this! I might as well be vegan!

I came home and unloaded my anger at my brother for being at the store for 3-1/2 hrs to buy a cart of food!

I so need a support group cuz if I have to do this alone, I'll never pull out of this depression.

Then I found this site.

It helps to be able to relate and talk or share with someone.

I'm not sure if it's the depression of dealing with gluten-free, or the results of being glutened.....but having someone to talk to helps you to be understood, like a warm hug from a close friend.

momxyz Contributor

although going gluten free did not eliminate my daughter's anxiety, it did help wih her depression and moodiness. In the first month of the diet he got glutened 2 times - and the change in her mood was noticeable each time. There is a definite relationship between gluten intolerance and depression.

But I agree with Crimson, don't go it alone! I am glad you are going to call your psychiatrist.

DaisyJane Newbie

Aww, I totally sympathize. I feel COMPLETELY CRAZY from gluten: feelings of hopelessness, paranoia, crazy round-in-circles thought patterns - HORRIBLE. All of that can easily lead me to suicidal feelings. At the back of my mind I know it's only food affecting my mood, but when I'm in a spin, it's virtually impossible to detach from my thoughts.

Hang in there :)

  • 3 months later...
BlakeMichael Newbie

Aww, I totally sympathize. I feel COMPLETELY CRAZY from gluten: feelings of hopelessness, paranoia, crazy round-in-circles thought patterns - HORRIBLE. All of that can easily lead me to suicidal feelings. At the back of my mind I know it's only food affecting my mood, but when I'm in a spin, it's virtually impossible to detach from my thoughts.

Hang in there :)

Ya, that sounds familiar. The absolute WORST time for me was before I even suspected that I even had a gluten intolerance. I had eaten a chicken pot pie for lunch from Giant Eagle. Next thing I know I could barely get a full breath or talk, my heart was fluttering, and the room felt like it was shrinking. Sprinkle in a little paranoia and a massive amount of anxiety (was an anxiety attack in the first place) in and thats about how i felt. After the worst of it was over I still had that circular thinking problem you talked about that is nearly impossible to break. The following month and a half of being gluten ignorant was a living nightmare, anxiety attacks and depression were a daily struggle. I am undiagnosed, but I dont want to get glutened just to show up positive. I actually just got glutened the other day and i just now broke through my severe depression and anxiety. Xanax helps a lot too (generic mylan xanax,gluten-free)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Laura Wesson Apprentice

I used to feel suicidal a lot. Not planning it, but crying and thinking, "is it ever going to get any better", and feeling like I might as well kill myself.

It stopped, not after I quit gluten, but after I quit eating many, many other foods that I'd developed reactions to. I'm much more cheerful, emotionally stable and less anxious than I used to be.

Other things that have helped me have been a high-carb starch-based diet - which raises your serotonin level - and omega-3 supplements.

Laura

katinagj Apprentice

Growing up I had times where I was suicidal. It's funny because it all makes so much sense now that I am almost 100% positive I have celiac disease/gluten intolerance. I had something yesterday from a fast food restaurant that like most wouldn't be careful about possible cross contamination. I think I got glutened, because I have a headache and I've been depressed all morning for absolutely no reason. No throat swelling, however my mought is very dry..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jacki Espo replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    2. - Russ H replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    3. - trents replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    4. - Itsabit posted a topic in Dermatitis Herpetiformis
      3

      SkinSafe

    5. - trents replied to Cathijean90's topic in Introduce Yourself / Share Stuff
      1

      I’m terrified it’s too late for me😭


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,314
    • Most Online (within 30 mins)
      7,748

    stephla
    Newest Member
    stephla
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster.  Hope you have relief soon. 
    • Russ H
      It can take between 6 months and 2 years for the dermatitis herpetiformis rash to resolve. The symptoms of dermatitis herpetiformis arise from deposits of certain antibodies building up in the skin. These deposits attract immune cells leading to inflammation and blistering. It can take 10 years for the deposits to be reabsorbed although symptoms resolve long before this.
    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
×
×
  • Create New...