Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Blood Test Black So Confused

BKKloppenborg

By BKKloppenborg
in Coping with Celiac Disease

Recommended Posts

BKKloppenborg Newbie
BKKloppenborg
Posted

Ok first off, i went to a family remember and they suggested this person (Eastern Medicine) and she said they have helped out my Uncle a lot on what to eat and not to. Seems to work well for him, i wouln't know. So i gave it a shot, since western doctor isn't seem to help at all. Well this is what it said. It dosn't make any frickin sense to me at least.

Eggs, Anything its in also (Total no no ok can belive that after other day i got supper sick from them), Then here is when it gets wired.

Rest:

It says to avoid Fruit with cane suger and beet suger together. (4 hours min between at least NO IDEA here)

Fruit: Apples, Pears, Berries, etc (I don't know about this one) never had a issue with apples and i eat lot of them. Sometimes sore throat after bannanas, and melons.

Wine, Cider, etc

Soft Drinks: None at all? WTF wired here to i don't know

Charcoal Filters: Water filters, Ciggs. Ok this one if really wired for me. I do smoke, and also drink water out of a Pur system at home and work. (Never had issues)

Essentail Oils, Cleaning Products, scented things. (DO agree this stuff drives me nuts)

No Nutrittional Supplements, (Fruit based) Wtf here also..

No White flour, or Wheat Flower, (I think wheat flower has Fuit or The acid in there) Citric, and ascorbic.

no Fake Artificial Sweetner

Add Cell Salt Nat Mur 5 pills a day 2-3 months. ??

Can anyone translate? lol Do you guys think this is true?

While i was eating and getting sick, Maybe it was egg. Does Cinnimon Toast Crunch have eggs?

When i got sick one night all i have was Ice Cream one night

Also one night got sick from the Trader Joe's Glutten Free tacos. (Have no eggs i checked) Does have the citric acid.

Eat food early

avoid food with high fat, for oil...

I didn't feel good drinking Vodkla Even a drink or two feel it next day more then Usual. (Made a opps it was Wheat based)

Wow any comments/Suggestings

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I am going to suggest that you avoid what they are telling you to avoid and make an appointment to get the results throughly explained to you. Write down your questions and bring them in with you, write down the doctors answers to be sure that you understand them and that they have understood your questions.

mbrookes Community Regular
mbrookes
Posted

All that "Eastern" medicine sounds suspect to me... awfully close to wierd science.

Find a good nutritionist. Your "Western" doctor or a teaching hospital should be able to reccommend one. Then learn how to become truly gluten free. If you think you have other allergies (eggs, dairy) be tested for them.

Your gut is in a mess if you have just been diagnosed Celiac. Eat easily digested foods for at least 6 months to heal. Then add ather things back gradually.

Celiac is a reaction to gluten... not a result of what foods you eat together or the time between eating certain foods.

I'm not saying your Eastern specialist is not sincere and maybe right for some people. There are, however, a lot of charlatans that will take your money without any ability to really help you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,339
    • Most Online (within 30 mins)
      7,748
    valerieclaire
    Newest Member
    valerieclaire
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By cristiana · Posted

      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      SkinSafe

      By knitty kitty · Posted

      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      What should I do with these test results?

      By knitty kitty · Posted

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      How many grams is there in one slice of wheat bread?

      By knitty kitty · Posted

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
      SkinSafe

      By Itsabit · Posted

×
×
  • Create New...