Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling & Eating


jasonD2

Recommended Posts

jasonD2 Experienced

I used to buy food frequently from the Whole Foods hot bar and prepared food section until I found out that there is a chance the food can be CC'd with gluten even though there are no gluten ingredients listed. So I stopped, which has made traveling extremely difficult...now im microwaving fish, spinach and potatoes in my hotel room which is horrible, but it seems like the only way I can eat safely. For a while Whole Foods was my salvation and giving that up has really depressed me

If I were to get a piece of grilled chicken or fish at whole foods would it be safe to eat if i just washed it off completely prior to eating?

Does anyone still eat at the WF hot bar w/o problems? My recent stool test showed that my gluten antibodies are very high so I suspect that im still getting gluten in my diet. Aside from the occasional accidental glutenings on the road I really have been very careful, so Im guessing it must be the WF's food that has kept my antibody levels high.

Any suggestions or thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

Post a listing of everything you've eaten and drank in the last 48 hours. Incclued brand names and how (and in what) it was cooked. Remember to list anything that goes into your mouth; soda, toothpaste, mouthwash, candy and additions to coffee/tea. List brand names of coffee/tea also as some flavored coffee/teas may containe gluten Maybe someone here will see the problem.

missy'smom Collaborator

I recently took a trip. Before leaving I wrote down what and where we would eat for the three days-menus. Took some time to get it all down on paper and ironed out but it worked well. Ate on the road/in the car alot-had a fridge and micro in the hotel when I stopped for the night. I stocked up on small size canned/pouches of tuna, chicken, and salmon for my proteins. Nuts for my carb. Bought travel sizes of mayo, lemon juice, salad dressing, soy-sauce etc. from minimus.biz. They have some stuff marked gluten-free but others you have to research/know the individual brands yourself. Bought side salads enroute from the grocery or restaurants and when it was time to eat, drained the meats-they can be drained into an empty plastic bottle, capped and tossed at your next stop. Mixed a pack of mayo into the meats and dumped on the salad. This is better as a snack or lunch. For kiddo, I packed gluten-free crackers, shelf stable salami, fruit etc. We took along a cooler the first day out and had our first complete meal on the road packed for everyone to eat in the car. I also packed a cooked breakfast with veg. and meat that we kept in the cooler and put it in the fridge in the hotel room when we got there and warmed it in the micro in the a.m. Took along a few strong paper towels and a small travel size bottle that I filled with dish soap and washed the dishes(lunch containers) in the sink in the bathroom, carefully wiping them out into the trash with a paper towel before washing so as not to clog the drains. Made sure to take the trash out soon too. Worked great. Kiddo was able to get yogurt, fruit and milk or juice from the complimentary hotel breakfast to supplement the gluten-free cereal we brought along-one portion in a small container. In the past, I have brought along frozen breakfasts in tupperware on the plane and warmed them up when we got to the connecting airport-homemade gluten-free pancakes-with a little syrup on- and ham. If you are traveling through the midwest, Hy-Vee grocery stores have gluten-free sections. I was suprized at what a great selection they had at the location we stopped at! In some parts of the east coast, Meijer's or Kroger is where to look, besides WF or the healthfood stores, although it varies by location. Where there's a will, there's a way! You'll figure it out. It takes some planning and patience. When you get back or run into snags, take a minute to evaluate your trips and make note of what works and what didn't and take some time to problem solve about what you can do next time. I learned from this trip that I need to pack more shelf stable items and plan for an extra day, as we were delayed. In the back of my mind, I knew that is wise but I didn't act on it this time. I'll just do it automatically from now on.

jasonD2 Experienced

I think everything Im eating is safe but here goes:

Meats: Chicken breast (WFs), canned salmon (WFs), lean steak (publix greenwise and TJs)

Carbs: Quinoa (TJs and Whole Foods brand), Brown rice (Lundberg), red potatoes (Whole foods), Rice cakes (Lundberg), sweet potatoes (WF's), canned tomatoes (eden organic), yellow squash (WF's), canned olives (WF's), hearts of palm (WF's), Olive oil (TJs), Sea Salt (TJs), pepper (Farmers market), seasonings (basil and oregano from TJs)

Snacks: Corn chips (Mission), Lara Bars, Pecans (Publix- gluten-free), pumpkin seeds (TJs- label says packaged in a facility that also handles treenuts and soybeans)

Veggies: green beans, avocado, romaine lettuce, spinach (all whole foods)

Tea: peppermint & chamomile (TJs brand)

toothpaste: Biotene

Supplements: Thorne Biogest enzyme, ther-biotic complete probiotic (Klaire labs), symbion probiotic, nature's way zinc lozenges, vitamin shoppe glutamine, source natural sublingual B complex, oxypowder (Global Healing Center)

beverages: whole foods spring water

jasonD2 Experienced

any red flags?

thanks

missy'smom Collaborator

Just my opinion, but I would eliminate the corn chips for a few weeks and see how you feel, if it makes a difference. I haven't eaten them myself. Their statement seems reassuring but I am very leary of CC with all flours/meals. I have had reactions. Mission may be doing everything right but who's not to say that their cornmeal/flour isn't contaminated. Under 5ppm gets me sick. I had problems with almond meal and didn't realize it at first but became suspicious after using it for a while and switched to a dedicated gluten-free company that grinds their own and then it became clear that indeed the previous brand was CC'd.

jasonD2 Experienced

Dunno- seems like everyone on here has had no problems with mission chips, but i will lay off them for a bit anyway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

RRRRR typed it all up and then lost it. OK so I'm going to Traverse City for three days on a business trip. I emailed the celiacs support group from that area and they sent me a list of 20 restaurants that are celiacs aware and most had gluten free menus. We also contacted The Great Wolf Lodge and Bowers Harbor Inn who both gracously agreed to cook for me to my specifications. I love my job! I will also be packing nuts, rice milk ect in the car just in case.

Is it possible for you to contact a support group in the area you are visiting? I was freaked out when I first got this assignment but now I'm excited! Bowers Harbor Inn has a ghost and we've all been instructed to dress nice so she will welcome us into her home. What a gas!

GFinDC Veteran

Hi Jason,

Have your doctors checked you for Chrohn's Disease? It might be worth asking them about it if they haven't.

jasonD2 Experienced

No don't have Chrohns-

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,134
    • Most Online (within 30 mins)
      7,748

    Kayla Conklin
    Newest Member
    Kayla Conklin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Skg414228! You say that your DGP-IGA score is high and you give the absolute test score but you do not give the scale or units used by the lab doing the analysis so we cannot comment further on your conclusion. Different labs use different reference ranges for the same tests. There is no industry standard for these celiac antibody tests. So, could you also post back with the scale and the units? If you already have an endoscopy/biopsy scheduled, the important thing is to hold off on going gluten free until that is done. There are some things besides celiac disease that can cause elevated celiac disease antibody levels so it is still possible you may be looking at something else. This is especially true when you are not IGA deficient and the tTG-IGA is within normal range. But you are correct in saying that very high antibody antibody scores strongly weight the probability in favor of celiac disease. Keep us posted. By the way, kudos to your physician for ordering a more complete antibody panel. Many will only order the tTG-IGA.
    • Skg414228
      I went to the gastroenterologist for what I thought was IBS. They thought it sounded like celiac. I got a blood test with normal everything except a deamidated gliadine peptide iga of 688. Total iga was in normal range so not deficient.    My question is with a dgp iga like that is it pretty much only celiac at that point. I haven’t seen anything else that would cause the dgp iga to be that high. Already have the biopsy scheduled so nothing is going to change I’m just curious what else it could be and is the number high enough that I should really be preparing expecting a positive biopsy and it’s just a confirmation at this point? 
    • Aussie Celiac
      Sometimes celiacs can also have other things like lactose intolerance which is fairly common. Also research fodmap foods, it's quite complicated but there are some other foods which can cause digestive issues. For me it's too many onions and garlic.
    • Wheatwacked
      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
×
×
  • Create New...