Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Protein Intolerance


kannne

Recommended Posts

kannne Explorer

Hi

I have celiac and have been on gluten-free diet for 9 years and SCD the last year.

My father has always had problems with his stomach but he don't have celiac.

I also have protein intolerance and can not break down casein, egg, soya and corn because I have aspergers syndrome.

My father also have protein intolerance against gluten and casein. The urin test showed he did not break down gluten and casein.

Does anyone have any experience about protein intolerance?

He don't want to start diet. He says it is enough if he only reduce the amount of casein he is eating. He is not so tired and is function much better fter he reduced the casein intake. But I really would like him to stop completly with it.

Does anyone know about long term effect of eating gluten/casein when the body can not handle to break the peptid down?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

My understanding is that a real, generalized, protein intolerance also means you cannot tolerate any meats/fish/game/etc. The protein sources you list there are all common allergens. Does the protein problem extend to other forms of protein?

kannne Explorer

Maybe it is called something else?

I norweigan we call it protein intolerance.

It is the "autism diet". Does anyone know what I mean? Autistick people can't break down gluten and casein and they can turn into morphine.

tarnalberry Community Regular

Oh sure, there is some use of the gluten and casein free diet for Autistic Spectrum kids here in the US too. It's just referred to as the gluten free casein free diet (Gluten-free Casein-free). There are some people who have problems digesting most all proteins, not just those two, hence the confusion. There are a number of people on the board who are using such a diet (either for Autism or other reasons).

Long term consumption of gluten is a problem - if he is celiac, which you don't mention tests for celiac. Eating gluten can cause serious long term side effects for a celiac - nutritional deficiencies leading to anemia or osteoporosis, cancers of the digestive system, neurological imparement, and more. I don't think there is any clear cut evidence on what the long term effects of someone gluten sensitive continuing to eat gluten - but it's a constant stressor on the immune system. Ditto for dairy - I don't think there are clear studies.

GFinDC Veteran
Maybe it is called something else?

I norweigan we call it protein intolerance.

It is the "autism diet". Does anyone know what I mean? Autistick people can't break down gluten and casein and they can turn into morphine.

Hi,

I have read that some people think a gluten / casein free diet is helpful for people with autism. I don't have autism, but I do avoid gluten and casein, as I have problems with both of them. For me casein affects my sleeping, and I can't get to sleep for several days if I eat it. It also affects my gut and irritates it. Gluten really messes me up in my gut and all over.

There is some info on the web about gluten and opiates. With celiac people sometimes have a "leaky gut". That doesn't mean you have actual holes in your gut. It means that your gut/intestine membranes are more likely to let some larger protein bits through to the bloodstream. So, the way I see it, the gliaden or casein proteins can sometimes get through the gut lining into the bloodstream. Then they can affect various parts of the body including the brain, joints, thyroid etc, etc.

For me if I eat casein for several days running the affects get worse and worse. So I suggest you are right, getting off it completely is the way to go!

Welcome to the forum! :)

Many people use the abbreviations Gluten-free Casein-free here, for gluten free /casein free diet.

YoloGx Rookie

Just wanted to add that taking olive leaf extract or olive leaf tea might really help against the aspergillus! Start slow and work your way up. I don't know what kind of fungus I have but whatever it is it has been intractible. This olive leaf is really helping.Good against all kinds of fungus, microbes, bacteria, viruses... Am taking it with a few other things too like dandelion and yellow dock since I also tend to get a little constipated (they help release bile which helps with peristalsis and also acts as a kind of "bitters" that helps with digestion in the stomach). They also help against some aspects of the allergic reaction or "leaky gut" by helping to clean out the liver and are also very good for the kidneys and overall are very detoxing. I use marshmallow root to soothe and heal the lining of my intestines plus again it helps with the kidneys. Also I am sure you have heard that digestive enzymes like bromelain/papain and/or pancreatin can help with the protein digestion--though of course avoiding allergens is always best...

Bea

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,338
    • Most Online (within 30 mins)
      7,748

    jojocle
    Newest Member
    jojocle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
×
×
  • Create New...