Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Wore A Dress Today!

momxyz

By momxyz
in Dermatitis Herpetiformis

Recommended Posts

momxyz Contributor
momxyz
Posted

okay I am risking bragging here... hoping I won't experience the retribution of an outbreadk :P

I got this rash, last October (2008) on my feet, ankles, and upper lower legs that made it impossible to wear a dress! Fortunately my job makes nice pants an acceptable alternative. That's ok in the winter and early spring....

but I had a real issue in June. there was this family wedding. I went against all fashion rules and wore dark black pantyhose with my dress... it was the only way to coneal that ugly rash.

I went gluten free early August.. Had another family wedding at the end of that month! although the rash was a little better, still needed to conceal with the dark black pantyhose.

Fast forward to end of October. Sudden death in the family, requiring quick out of town trip for the funeral.. no time to shop. I had in my drawer an "off black" pair of pantyhose, perfectly appropriate, but much more sheer than what I had worn in the summer.

Guess what! My self-diagnosed (and treated, thru gluten free eating) rash had minimized so much, that the remaining almost healed spots, and residual scars, were not that visible thru the panythose!!

it may sound like such a little thing to brag about.. but...I can't help it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


positivenrgfairy Apprentice
positivenrgfairy
Posted

It's always exciting! keep bragging!

;)

esammarie Newbie
esammarie
Posted
okay I am risking bragging here... hoping I won't experience the retribution of an outbreadk :P

I got this rash, last October (2008) on my feet, ankles, and upper lower legs that made it impossible to wear a dress! Fortunately my job makes nice pants an acceptable alternative. That's ok in the winter and early spring....

but I had a real issue in June. there was this family wedding. I went against all fashion rules and wore dark black pantyhose with my dress... it was the only way to coneal that ugly rash.

I went gluten free early August.. Had another family wedding at the end of that month! although the rash was a little better, still needed to conceal with the dark black pantyhose.

Fast forward to end of October. Sudden death in the family, requiring quick out of town trip for the funeral.. no time to shop. I had in my drawer an "off black" pair of pantyhose, perfectly appropriate, but much more sheer than what I had worn in the summer.

Guess what! My self-diagnosed (and treated, thru gluten free eating) rash had minimized so much, that the remaining almost healed spots, and residual scars, were not that visible thru the panythose!!

it may sound like such a little thing to brag about.. but...I can't help it!

How fabulous!!!! It is worth bragging about. The rash, which I call Plague, can look terrible and make you feel worse. I, too, feel elated that my knees don't look so purple and scabby. The scars are there but they aren't as angry looking and new breakouts of Plague haven't happened since I was diagnosed and went gluten free in September.

Congratulations and flaunt those legs!!

momxyz Contributor
momxyz
Posted
  • Author
How fabulous!!!! It is worth bragging about. The rash, which I call Plague, can look terrible and make you feel worse. I, too, feel elated that my knees don't look so purple and scabby. The scars are there but they aren't as angry looking and new breakouts of Plague haven't happened since I was diagnosed and went gluten free in September.

Congratulations and flaunt those legs!!

I think I hear new shoes calling to me.....

Glamour Explorer
Glamour
Posted

My legs, arms, chest and butt look like a war zone. I don't know when I will be able to show some skin, much less wear a dress. Hose would drive me up the wall and they would have to be opaque, which are back in syle.

Congratulations on the Dress...work it girl!

ang1e0251 Contributor
ang1e0251
Posted

Congratulations!! You should totally brag! Being able to wear hose at all and then they don't have to be Amish black out hose is a huge victory! Next step ... capris!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,263
    • Most Online (within 30 mins)
      7,748
    Carol mintuck
    Newest Member
    Carol mintuck
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • xxnonamexx
      Elimination diet think I may be Gluten tolerant next steps to get tested? Questions

      By xxnonamexx · Posted

      Thanks for the insights. So 4 weeks I should eat 4 slices of whole wheat bread while maintaining gluten free diet otherwise then schedule blood tests? Would eating the gluten damage my body intestine already if its bad? What do I need to look for in a whole wheat bread to find out if its 10g of gluten. I don't want to take too much. I want to be able to tolerate it as well otherwise this test will be hard.
    • trents
      UK Member Looking For Help - Recent Test

      By trents · Posted

      Your physician will likely refer you for a GI consult for the purpose of an endoscopy with biopsy of the small bowel lining to check for the damage to the villi caused by celiac disease. As Christiana said, keep eating generous amounts of gluten until all testing is over or you will invalidate any future testing or procedures.
    • xxnonamexx
      What would a diagnosis tell me?

      By xxnonamexx · Posted

      If I feel better after eliminating gluten from my diet I am curious if I get diagnosed via blood test what would that tell me differently besides avoiding gluten? Also if I had to do an Endoscopy and took biopsy how would that help me besides to tell me avoid gluten strictly? Also I read about finding a dietician but again what would they tell me differently besides avoid gluten? Thanks I am new to this and not diagnosed officially yet but trying to get a better understanding. I read so much about gluten staying in your body for weeks, years after you eat it etc. Makes me afraid to go out to eat for dinner to avoid cross contamination or travel or if I avoid gluten and all of a sudden get sick b/c gluten was in my body months earlier.
    • trents
      Elimination diet think I may be Gluten tolerant next steps to get tested? Questions

      By trents · Posted

      Welcome to the forum, @xxnonamexx! First, some terminology clarification. There is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). NCGS is also referred to simply as gluten sensitivity. You will also hear the term "gluten intolerance" which is a generic term for either. But in the real world, these terms often get used indiscriminately so there is confusion. With Celiac disease, which is an autoimmune disorder, damage is done to the villous lining of the small bowel when gluten is ingested. Celiac disease and NCGS share many of the same symptoms, especially in the GI category. There is no test for NCGS. Celiac disease must first be ruled out. So, it seems to me that you could have either celiac disease or NCGS and until you undergo a proper gluten challenge and get testing done you will have to live with the ambiguity.  Guidelines for the "gluten challenge" for those already having embarked on the gluten free diet but wanting to get tested have been revised in the past year or so. The current guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks in order to give valid test results. Personally, I think two weeks is too short and I would go for four weeks. About 8% of celiacs cannot tolerate gluten free oatmeal because the oat protein "avenin" is so similar to gluten. Adult celiacs who practice a consistently free gluten free diet can expect substantial healing of the SB villous lining in 1-3 years. We do hear anecdotal reports of people with healed villous linings being able to return to gluten consumption but they are just that - anecdotal. I do not endorse that approach.
    • cristiana
      UK Member Looking For Help - Recent Test

      By cristiana · Posted

      Okay, that's useful.  Yes, it sounds like you are out of range, which is suggestive of coeliac disease.  Your next step must be to see your GP and see what they suggest but for the time being, keep on eating gluten as s/he may want to order an endoscopy which is the next stage in the diagnosis journey.   If you have any questions meanwhile, do come back to us.  
×
×
  • Create New...