Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Celiac?


klmitchell

Recommended Posts

klmitchell Newbie

I've had some weird symptoms for a long time, but lately have gotten worse. Ever since I was young, I had a sour stomach (usually after lunch). I've been a vegetarian for years, so have relied on pastas, breads etc. to fill me up. When I was in college, I started getting sharp abdominal pains followed by awful diarrhea. This symptom has continued, but over the years I have gotten more symptoms. These include hearburn, joint pain, fatigue, headaches, repeated sinus infections and UTIs and more. About 4 months ago, I got a horrible pain in my left side followed by diarrhea and the pain hasn't really stopped since. The stomach/intestinal symptoms have gotten worse and more frequent. Can anyone tell me if they've experienced similar symptoms? Do you think it could be Celiacs? Thanks so much for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

I've experienced the sharp stomach pains, diarrhea, bloating, gas, low weight...all symptosm of celiac disease. Fatigue is the most common symptom associated w/ celiac disease and diarrhea is thought of as the most classic symptom. Joint pain is another symptom. You could definitely have celiac disease--after all, 1 in 133 Americans do and your symptoms match up. Definitely get tested. ;)

Oh, and welcome to the boards :D:P !

-celiac3270

ianm Apprentice

If after eating breads and pastas you start experiencing these symptoms it is a good sign that somethings not right. All of your symptoms are the most common ones for celiac.

KaitiUSA Enthusiast

There are over 200 symptoms with celiac and everyone can experience different ones or none at all. The symptoms you are describing do sound like celiac. I experienced nausea, anxiety, and weight loss.

anewsprue Newbie

I would get checked .... sounds like most of the symptoms expressed here. Welcome and good luck.

klmitchell Newbie

Thanks everyone! I am going to see a specialist on Friday and we'll see how it goes. Is there anything specific I should be asking him? This is my first trip to a gastroenterologist and I'm not quite sure what to expect.

I'll let you know what he says!

celiac3270 Collaborator

Umm...if you want to ask about the results on here, it would be good to know which tests he is running...there should be five if he's doing all of them, but he may not.

You don't really need to ask anything--just explain your symptoms, suggest celiac, and maybe have an article or two or a symptom list to...educate him about it if he doesn't really know about celiac disease. Oh, the tests...Anti-tissue transglutaminase (tTG) IgA, the total serum IgA, the anti-endomysial (EMA) IgA, Anti-Gliadin (AGA) IgA and the anti-gliadin (once again, AGA) IgG. I guess you could also ask what tests were run when you get your results back.

There's nothing you really need to ask. Your doctor will probably be doing most of the asking, at least on the first visit :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lesliean Apprentice

You have to be on gluten for any testing unless it is through Enterolab.

She should be tested for the following:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

You would benefit from a gene test too.

Some of your symptoms also sound a lot like lactose intolerance which can be independent or along with Celiac/gluten sensitivity because of temporary intestinal damage.

Does gluten sensitivity run in your family. Do family members have diabetes, thyroid disorder, neuropathy, IBS, migraines to name a few of the immunodiseases that go along with Celiacs often?

Good luck on Friday and keep us posted. I think internet sources are a great way to help guide doctors.

Leslie

klmitchell Newbie

Thanks! I'm going to print this and take it with me to be sure I get tested for everything. Bowel trouble does run in my family, I think much of it has gone undiagnosed. My aunt has ulcerative colitis, which I understand may result from a gluten intolerance.

I'll let you all know what happens Friday. It's great to have the support offered in this group! Thanks to all!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to kate g's topic in Gluten-Free Restaurants
      1

      Nandos improper preparion celiac childrens food

    2. - Scott Adams replied to Di Wallace's topic in Related Issues & Disorders
      2

      Mucus discharge

    3. - Scott Adams replied to Captain173's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused with test results

    4. - Captain173 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused with test results

    5. - Beverage replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,827
    • Most Online (within 30 mins)
      7,748

    Gary Briz
    Newest Member
    Gary Briz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
    • Beverage
      Tums is an antacid.  Calcium (also vitamin D) need it acidic for absorption, so you're not really getting any calcium benefit.  Try DGL, it coats rather than counteracts acid. You need acid anyway to digest and get those vitamins. It's usually not too much acid that causes heartburn, it's not enough acid which causes food to rot and ferment in the stomach. Try DGL, everyone I've gotten to actually try it has had great relief. https://www.amazon.com/dp/B001IAJW0K  
×
×
  • Create New...