Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Things Have Gluten In Them That You Would Not Expect


Glamour

Recommended Posts

Glamour Explorer

I think I have been glutened by Garden Fresh Gourmet and Margaritaville Tortilla chips as well as Cheetos.

Trying to be pure about gluten-free is not easy.

What about tricky teas and coffees, cooking oils, tomato sauces,, etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I don't have a problems with Cheetos, gluten wise.

I order a hot dog at a resturant today and they said it was Gwaltney - ok. Then they put them in the fryer to cook them....Darn, how to ruin a good thing.

Swimmr Contributor
I don't have a problems with Cheetos, gluten wise.

I order a hot dog at a resturant today and they said it was Gwaltney - ok. Then they put them in the fryer to cook them....Darn, how to ruin a good thing.

Cheetos has MSG in them...I stay CLEAR of MSG.

Basically I've gathered that msg is a neurotransmitter that makes you think what you're eating tastes good, lol.

Also, reading up on some of this garbage I read about poor lab rats. Some freakazoid-animal-testing-nutso was injecting dosages of MSG that was 4x the weight of the newborn rat, inducing brain lesions and a variety of other physiological effects.

However, the dosages of MSG used in the experiments (which they call "studies") were extremely high and the methods of injection, as well as force-feeding, do not accurately represent the way humans consume MSG."

:angry: So basically the baby rats were being subjected to all that JUST to see what will happen. Ugh. Makes me so mad.

Anyways, one other item is the food lion brand bratwurst. I eat them...but was reassured by a food lion meat-man that the "natural seasonings" were nothing to worry about. Can't seem to get a definite on it.

mushroom Proficient

Be particularly wary of ketchup, all sauces, salad dressings, seasonings, especially blends. I have even found gluten in marmalade and preserves, ham and lunch meats, here in NZ even bacon, sausages of course (though soy has become more of a problem in these :rolleyes: ). That's my particular gluten lists (although I have others for soy and corn and lactose and.... :P ) :lol:

Swimmr Contributor
I think I have been glutened by Garden Fresh Gourmet and Margaritaville Tortilla chips as well as Cheetos.

Trying to be pure about gluten-free is not easy.

What about tricky teas and coffees, cooking oils, tomato sauces,, etc.

Margaritaville Tortilla Chips

Ingredients:

WHOLE WHITE CORN, VEGETABLE OIL, CANOLA OIL AND/OR SOYBEAN OIL AND/OR SUNFLOWER OIL, SALT, MALTODEXTRIN, LIME JUICE, LIME OIL, SUGAR, DEXTROSE, CITRIC ACID, SODIUM DIACETATE, PARTIALLY HYDROGENATED SOYBEAN OIL, CORN STARCH, GUM ARABIC AND GLYCEROL

Perhaps it's the soybean oil...or corn...

I don't buy flavored coffees, only whole bean. Teas I buy loose leaf. I use olive oil and canola oil for cooking. Tomato sauces? Hunts or Del Monte is safe.

soulcurrent Explorer
Perhaps it's the soybean oil...or corn...

Corn? I thought corn was safe. :huh:

psawyer Proficient
Corn? I thought corn was safe. :huh:

Corn is safe from a purely celiac perspective. The protein in corn does not cause the autoimmune reaction of celiac disease (neither does soy). However, it is common for celiacs to have other sensitivities. Corn is not as common as casein (milk) or soy, but it does affect a number of celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator
Be particularly wary of ketchup, all sauces, salad dressings, seasonings, especially blends. I have even found gluten in marmalade and preserves, ham and lunch meats, here in NZ even bacon, sausages of course (though soy has become more of a problem in these :rolleyes: ). That's my particular gluten lists (although I have others for soy and corn and lactose and.... :P ) :lol:

Perhaps this so in New Zealand but in the U.S. everything you name is almost without exception gluten-free. There are a few salad dressings with gluten, but the gluten is pretty much always listed. Seasoning blends can have gluten, but it's rare and it's listed. There's exactly one bacon that I know of that has gluten (it's clearly listed) and the fake bacon at McDonald's has gluten. Ham, lunch meats and sausages are almost all safe and the gluten is listed if not.

richard

mushroom Proficient
Perhaps this so in New Zealand but in the U.S. everything you name is almost without exception gluten-free. There are a few salad dressings with gluten, but the gluten is pretty much always listed. Seasoning blends can have gluten, but it's rare and it's listed. There's exactly one bacon that I know of that has gluten (it's clearly listed) and the fake bacon at McDonald's has gluten. Ham, lunch meats and sausages are almost all safe and the gluten is listed if not.

richard

If this is so, Richard, why do all the recipes from the U.S. specify gluten free ham, gluten free salad dressing, gluten free ketchup? Why does everyone say to only use McCormicks seasonings because they are the only ones that are safe. Why do people take their own salad dressings to restaurants? It must be because these products often have gluten in them. I was merely suggesting to Glamour things she should be sure to check the labels on, or ask about in restaurants, since that is what she seemed to be asking for, not telling her to NOT eat them!

tarnalberry Community Regular

I have found ... nothing I can think of, actually, that had gluten in it but it wasn't listed in the ingredients. Of course, it depends on how thoroughly you read ingredients, what any given countries regulations are, and if you have any other sensitivities.

Swimmr Contributor
Perhaps this so in New Zealand but in the U.S. everything you name is almost without exception gluten-free. There are a few salad dressings with gluten, but the gluten is pretty much always listed. Seasoning blends can have gluten, but it's rare and it's listed. There's exactly one bacon that I know of that has gluten (it's clearly listed) and the fake bacon at McDonald's has gluten. Ham, lunch meats and sausages are almost all safe and the gluten is listed if not.

richard

I kinda took that the same way and was going to say to just read labels and look up any questionable ingredients. But I didn't want to heat any pots up, ya know?

I thought only real deli meats like Deitz & Watson and Willshire Farms, Applegate Farms, Hormel were the safe ones. There are a few others, can't remember them all.

If this is so, Richard, why do all the recipes from the U.S. specify gluten free ham, gluten free salad dressing, gluten free ketchup? Why does everyone say to only use McCormicks seasonings because they are the only ones that are safe. Why do people take their own salad dressings to restaurants? It must be because these products often have gluten in them. I was merely suggesting to Glamour things she should be sure to check the labels on, or ask about in restaurants, since that is what she seemed to be asking for, not telling her to NOT eat them!

mushroom, I don't think he was trying to correct you or contradict, just sometimes some of the newbies to the celiac thing might need it broken down barney the purple dinosaur-style. If I was reading it for the first time, I would be like, "oh crap...are you serious?"

But usually people will look for the label that says gluten free OR recognize wheat in the ingredient lists, so I'm just assuming that some might not. And if at a restaurant I would hope someone would either ask what brand condiment it is OR just not use it at all. But that's just me.

You are correct in your statement though. So is richard.

:)

mushroom Proficient
mushroom, I don't think he was trying to correct you or contradict, just sometimes some of the newbies to the celiac thing might need it broken down barney the purple dinosaur-style. If I was reading it for the first time, I would be like, "oh crap...are you serious?"

The first time I ate ham that I found had gluten in it, I was like, "oh crap..are you serious?" :lol: Same for the marmalade!! :rolleyes:

Swimmr Contributor

I think that is the typical reaction for most of us here when we find we've been glutened! :lol:

"Oh crap! Are you SERIOUS?"

I think I'm going to add that to my signature :)

carsondcat Newbie

you can find me in the supermarket aisles with a magnifying glass (it's an age thing) reading label after label, that's why i tend to stick to fresh non-processed foods. FRESH is best :P

ravenwoodglass Mentor
I think I have been glutened by Garden Fresh Gourmet and Margaritaville Tortilla chips as well as Cheetos.

Trying to be pure about gluten-free is not easy.

What about tricky teas and coffees, cooking oils, tomato sauces,, etc.

I have also been glutened by cheetos but not every time. I think it is a CC issue with those so I consider any Lay's products to be like playing roulettee.

The most surprising glutening I had to date was with a juice product that turned out to have barley in the 'natural flavors'. I started checking anything with those words after that.

There are some teas also that are processed using barley so I stick with Celestial Seasonings teas, they label all the ones that are gluten free.

I have not found a cooking oil that wasn't safe gluten wise but many have soy oil in them so I use either olive oil or Canola or Sunflower Oil.

I stick with Delmonte tomato sauces, they do have a couple of them that are not gluten free, the ones with meat flavoring added, those are clearly labeled as having wheat in the allergen line.

I have learned that gluten can hide in most anything and when in doubt I always call a company before I use it.

Glamour Explorer

What I am puzzled about and it makes me very wary, is the verbal speech I got from Oscar Mayer/Kraft foods today. If they are so confident of the products, why don't they say Gluten Free?

They say they will break down an ingredient in parenthesis or say wheat.

Same with chip manufacturers. If the chip has corn, sea salt and oil, where is the gluten contamination possibility coming from? They won't commit to saying gluten-free. Green Mountain Gringo commits to gluten-free on package.

sunnybabi1986 Contributor
you can find me in the supermarket aisles with a magnifying glass (it's an age thing) reading label after label, that's why i tend to stick to fresh non-processed foods. FRESH is best :P

Haha! You can find me in the supermarket aisles with my cell phone, calling the 1-800 numbers on the back of each label before I put it in my cart...people must think I'm crazy! ;)

ravenwoodglass Mentor
What I am puzzled about and it makes me very wary, is the verbal speech I got from Oscar Mayer/Kraft foods today. If they are so confident of the products, why don't they say Gluten Free?

They say they will break down an ingredient in parenthesis or say wheat.

Same with chip manufacturers. If the chip has corn, sea salt and oil, where is the gluten contamination possibility coming from? They won't commit to saying gluten-free. Green Mountain Gringo commits to gluten-free on package.

Different companies have different policies as far as labeling goes. Some companies will tell you if gluten containing items are made in the same plant, you usually read that on a label as "manufactured in the same plant as wheat, soy" or you will see "May contain traces of wheat, soy etc". This form of labeling is not required. If one of the major allergens is an ingredient that must be listed but not the CC warning. Also barley is not considered one of the major allergens but is used in many products hidden under natural flavors. Kraft and Oscar Myer are pretty good at labeling and won't hide gluten ingredients.

Those corn chips may have been made on the same line with a gluten product and picked up small amounts at the plant. Different celiacs will react differently to CC in products. For some they become just as sick as if the ate a slice of bread. Others will be able to tolerate with no problem.

Lisa Mentor

Also, we live in a law-suit happy society. Even though there are no gluten ingredients, companies don't list a product as gluten free unless they test.

Learning to read labels, can give you the confidence to make informed choices.

CeliacMom2008 Enthusiast
Even though there are no gluten ingredients, companies don't list a product as gluten free unless they test.

Just to be clear, just because a product says "Gluten Free" on the label it does not mean they have tested it for gluten. Some test and label as such, but others can claim Gluten Free without testing. There are no laws regulating that yet.

ravenwoodglass Mentor
Just to be clear, just because a product says "Gluten Free" on the label it does not mean they have tested it for gluten. Some test and label as such, but others can claim Gluten Free without testing. There are no laws regulating that yet.

We also have to keep in mind that the gluten free label doesn't mean that there is no gluten at all even if they do test. Most companies go by 20ppm or less if they do test. Some of us will react even to that small amount. Rice Dream is an example of an item that says gluten free but still has small amounts of barley that don't legally need to be disclosed. Labeling laws here in the US have a long way to go when it comes to the gluten issue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,954
    • Most Online (within 30 mins)
      7,748

    Godfather
    Newest Member
    Godfather
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
    • Mnofsinger
      Hi @CeliacMom502, As always, consult a medical professional on any advice you receive.  I experience have experienced this exact symptoms you're referring to and will receive them, typically after being accidentally glutened. I've recently been researching this (that's how I came across this posting), because I've been trying to nail down how long I've actually had the celiac genes "activated" or if I was just born with it. Now I wasn't diagnosed until 2023 with Celiac Disease, but not all these other health issues I've had previously point to it all connecting. In 2013 I ended up with Bell's Palsy that I had facial paralysis on one side of my face, where I couldn't even get a twitch for six months, but it took almost a year for "full recovery". I have now came to the conclusion that, because of the B12 vitamin deficiency caused by celiac disease (when not following a strict gluten free diet), caused me to have prolonged recovery from this, because the nerves were healing at a much lower rate> I'm not sure if your daughter has ever had Bell's Palsy, but ever since I have, some of my symptoms when I accidentally get glutened (including right now as I type this message 😄) include a migraine that goes across my eyes, and a shooting pain as you have described that will go across my left cheek and upper jaw, in addition to pain behind my left ear, and painful to the touch. Now, I did immediately go on a gluten free diet, and almost all these symptoms vanished after 3-4 months, but that time frame depends upon the "damage" already done previously.  Hope my situation helps even now this is now almost three years later from your message!  
    • Scott Adams
      It's nice to see celiac-safe options out there for guest homes.
    • Scott Adams
      Your situation involves interpreting elevated Deamidated Gliadin Peptide (DGP) IgG levels, which can indeed be confusing without clear symptoms or additional diagnostic tools like a biopsy. Here’s a possible approach to help clarify your next steps: Understanding DGP IgG: DGP IgG is a blood test often used to help diagnose celiac disease, particularly in individuals with IgA deficiency. However, since you’ve confirmed you don’t have IgA deficiency, the focus should shift to other celiac-specific tests, such as tissue transglutaminase IgA (tTG-IgA) and endomysial antibodies (EMA-IgA), which are more specific for celiac disease. Elevated DGP IgG alone is not diagnostic of celiac disease but may indicate gluten-related immune activity. Non-Celiac Gluten Sensitivity (NCGS): You’re correct that NCGS does not typically show abnormalities in blood tests like celiac disease does. NCGS is diagnosed based on symptoms (e.g., bloating, fatigue, brain fog) that improve on a gluten-free diet, after celiac disease and wheat allergy have been ruled out. Since you don’t currently have symptoms, NCGS seems less likely in your case. Possible Next Steps: Monitor Symptoms: If you remain asymptomatic, it’s reasonable to continue eating gluten and retest after some time. This is because celiac disease can develop or become symptomatic later, and ongoing gluten consumption is necessary for accurate testing. Repeat Testing: Consider repeating the tTG-IgA test, as it is the most sensitive and specific for celiac disease. If this is also elevated, it strengthens the case for further investigation. Genetic Testing: If available, HLA-DQ2 and HLA-DQ8 genetic testing can help rule out celiac disease if negative, as nearly all celiac patients carry one or both of these genes. However, a positive result doesn’t confirm celiac disease, as these genes are common in the general population. Dietary Trial: If testing remains inconclusive and you develop symptoms, a supervised gluten-free diet trial might provide clarity. However, this should only be done after thorough testing, as going gluten-free prematurely can interfere with accurate diagnosis. Biopsy Limitation: Since a biopsy is not available in your town, you’ll need to rely on blood tests and clinical judgment. If your tests remain inconclusive but you develop symptoms, you may need to travel to a facility that can perform a biopsy for definitive diagnosis. In summary, if I were in your position, I would continue consuming gluten, monitor for symptoms, and retest with more specific celiac markers (tTG-IgA and EMA-IgA) in a few months. If symptoms develop or tests remain ambiguous, consulting a gastroenterologist for further guidance would be advisable. Always work with a healthcare provider to interpret results and tailor next steps to your specific situation.
×
×
  • Create New...