Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scoliosis


summerteeth

Recommended Posts

summerteeth Enthusiast

I have had severe scoliosis since I was five years old. I wore a back brace for three years and had to endure cortisone shots. I was also told that scoliosis is an idiopathic condition... no one else in my family has it.

My question is: Is there a correlation between scoliosis and celiac? I have been able to connect literally every other health problem I have to celiac. Does anyone else have it? Has any one been told or read that there is a connection?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

I have mild scoliosis and pronounced kyphosis as well. I think I have read somwhere on the net there is a connection. I assume it has to do with bone density loss in the vertebrae from calcium and mineral malabsorbtion.

amberlynn Contributor

Scoliosis and kyphosis here as well. I try not to get angry about it, lol. It's mild, but no one ever caught it and it caused me a LOT of pain as a teenager (and no one caught it cause no one took me to a doctor). It's caused more problems over the years than I care to mention...

tarnalberry Community Regular

Well, structural scoliosis is idiopathic, but not all scoliosis is structural. Structural scoliosis occurs when the bones (usually the vertebrae) are "misformed" in some fashion. A number of things - from infections to connective tissue disorders to birth defects to tumors can cause structural scoliosis, and sometimes they just don't know why the bones formed oddly. Functional scoliosis, however, is generally "caused" by the person who has it; it's a product of bad posture causing the muscles to pull the spine out of position.

It's not always possible to determine if a particular case of scoliosis is functional or structural, but it is in many cases. From what I've heard from my chiropractor, it is quite certainly possible that even a five year old would develop a functional case of scoliosis (particularly from a fall off a bike, or trip over a tree root... he had to work on his son after a fall off a bike to avoid that sort of thing). If possible, I would *strongly* encourage you to find a *GOOD* chiropractor to work with who will help you determine what type of scoliosis it is and how to best minimize it.

As trents mentioned, it's fairly reasonable to assume that if you have bone density issues from celiac since infancy, it could contribute to scoliosis. But whatever the true cause, there is a lot of work you can do to help better align your spine and reduce the stress (and pain) on your body.

(I have students in my yoga classes with scoliosis, and it's one of the things we work on - to a small degree. It's not easy to work on it, but with a lot of practice and awareness it's possible. One of the yoga teachers I know in the area is in her... 70's? She has very severe structural scoliosis (you can easily see on her x-rays the wedge shape of the vertebrae that should look more like a disc) giving her, originally, a 90 degree curve in both the thoracic and lumbar spine. With a lot of work with the chiropractor, yoga, exercises every morning w/ foam rollers, and keeping awareness on her posture and the use of all the supporting muscles, she has reduced her curve somewhat, and is keeping the curve from getting worse and literally crushing her internal organs and causing death. As a side note, a number of my students have kyphosis as well - and it usually is postural in nature, and can *definitely* be worked at and reduced.)

jerseyangel Proficient

Interesting. I found out after having x-rays for a back problem in my 30's that I had a "slight curvature of the spine".

mushroom Proficient

I have never had scoliosis before, but have developed it in later years in my thoracic spine. I don't know if it had anything to do with the surgical removal of my first rib??? or how to explain its presence. No osteoporosis, no change in posture. It's a puzzlement. I'm working with a physio at the moment; do you think a chiropractor would be better? I have always been afraid of the "bonecrushers"; only use chiros who use the Activator method.

summerteeth Enthusiast

My orthopedic surgeon advised me NOT to go to chiropractors - but I did go to physical therapy for six weeks to learn exercises to strengthen my back. Eventually, when I stopped growing, my back no longer bothered me. Unfortunately, I have both a 45 degree thoracic curve and a 47 degree lumbar curve (my spine is shaped like an S). Of all the different things I have done, the back brace was the most helpful, but extremely bulky and embarrassing and restrictive. It did help with the pain, though... oddly enough ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Yeah, but most orthopedic surgeons do not BELIEVE in chiropractors. I was treated very rudely by an ortho when I told him I had been treated by a chiropractor (of course, this Rx was because the orthos had failed to diagnose what my problem was and the chiro fixed it (a different problem--I have had so many, it seems :P )

amberlynn Contributor

Oh, I forgot to mention that I was born with my scoliosis. The doc that saw me at birth mentioned it briefly to my father, and said it would never bother me (ha!).

The kyphosis was only recently diagnosed b/c I mentioned something to the chiro, and he said "Oh its this". Oh, thanks...

My back hurt so bad when I was a teen, I used to cry. I didn't find out about the scoliosis til I was 26, and only then b/c I went to my chiro b/c my 1 year old knocked me down and I couldn't get back up. I had sharp, shooting pain down my back. It was awful.

tarnalberry Community Regular

It was my doctor who sent me to my chiropractor.

I think that the problem is that it's hard to find a *good* chiropractor. A good chiro won't just have you walk in, crank you various ways, and then tell you to leave. A good chiropractor is going to talk to you about posture and strengthening exercises, may have you do traction of some variety, and may do some adjustments as well - but only in the range that you feel comfortable with. (For instance, I am working on my neck, but have done manual adjustments on my neck less than half a dozen times in the past two years, and only when I've got a neck-induced migraine going for a couple days. We'd use the actuator (a little thing that applies an impulse in a very localized location) on my neck, and now that I'm pregnant and laying on my belly is no longer an option, we'll be using it on my back.)

I think that chiropractors can be very helpful, not helpful at all, or harmful. The same can be said of GPs, orthopaedists, and other specialists. (It was a crappy orthopaedist that correctly diagnosed, but poorly treated my knee issue, and the chiro has been the first one (including PT's who did their best) who has so far *kept* me from throwing my sacrum out.)

Ahorsesoul Enthusiast

Both dd and I have scoliosis, both are celiacs.

trents Grand Master

Concerning bad posture causing scoliosis or kyphosis, I wonder if its more often the other way around. One thing I have seen that might cause spinal misalignment is weight traiing done in such a way as to strengthen the chest muscles without doing anything to strengthen the upper back muscles. The higher muscle tone in the front then pulls the shoulders and upper back forward.

CeciliaCeliac Explorer

Wow......I'm amazed at all the posts! I also have scoliosis and Celiacs. I had a spinal fusion done in 1990 after high school. (Lumbar curve of 53 degrees reduced to 8) Never experienced back problems after that. I think pregnancy set off my Celiac 6 years ago because I never ever ever ever ever ever had stomach issues before that. I really thought there may be some connection also, but was also thinking about all the titanium hardware in my back........still don't know and I have a lot of other crazy undiagnosed symptoms......also a history of connective tissue disorders in the family and very flexible joints!!

tarnalberry Community Regular
Concerning bad posture causing scoliosis or kyphosis, I wonder if its more often the other way around. One thing I have seen that might cause spinal misalignment is weight traiing done in such a way as to strengthen the chest muscles without doing anything to strengthen the upper back muscles. The higher muscle tone in the front then pulls the shoulders and upper back forward.

Do you tend to slouch to the side at the computer, or in the car, or on the couch? Do you tend to slouch forward or stick the head forward at the computer or in the car? Both of those cause imbalance of muscles on different sides of the body (side to side, or front to back). Computer use for hours on end is a HUGE cause of kyphosis.

trents Grand Master
Do you tend to slouch to the side at the computer, or in the car, or on the couch? Do you tend to slouch forward or stick the head forward at the computer or in the car? Both of those cause imbalance of muscles on different sides of the body (side to side, or front to back). Computer use for hours on end is a HUGE cause of kyphosis.

Very interesting! I've not heard that before - that lots of computing time is a major cause of kyphosis. I sat up straighter at the keyboard as soon as I read that! Actually, when I look at pictures of myself in Jr. High I can see the beginnings of kyphosis. It runs in my mother's side of the family big time. I wonder if my osteopenia from celiac disease has contributed to it, however.

georgie Enthusiast
My orthopedic surgeon advised me NOT to go to chiropractors - but I did go to physical therapy for six weeks to learn exercises to strengthen my back.

I trust my chiro MUCH more than the orthos I have seen. The chiro does bone crunching and gives me massage and exercises. My degree of curvature ( triple curve ) has been reduced from 17 degrees at its worst to almost straight. I only see the chiro about twice a year now for a check. And have almost no pain. I have managed my own back for 30 years this way. Mine developed when I was about 10 and when I first became hypothyroid.

summerteeth Enthusiast

i am absolutely shocked at how many people here have scoliosis. I do know that it is quite common - 1 in 10 women have scoliosis and something like 1 in 25 men - although the vast majority of cases are ten degrees or less. Severe scoliosis is not nearly as common (although I do work with two other women who both have scoliosis in the thirty degree range).

  • 6 years later...
ATXCeliac Newbie

I think that the celiac can cause inflammation and that can irritate existing back problems. While celiac might not cause scoliosis, it can make existing scoliosis feel much worse. 

  • 2 weeks later...
Awol cast iron stomach Experienced

Me too. Diagnosed as a child in the early 1980's but again no real suggestions for treatment. I was not severe enough for a brace. My back issues get bad if not gluten-free, stiff lower back etc when I get glutened last 2-3 months after exposure. I have been seeing DC' s since my mid 20's they help. I can tell pretty quickly with my response if they DC is a good fit for me. Stayming gluten-free is crucial to maintain an asymptomatic back and sacroilliac/hip issues. Count me in for an opinion of related to G based on personal experience.

  • 2 weeks later...
PTArt Apprentice

I have complex kypho-scoliosis and celiac.  I absolutely believe that the 2 are connected, considering that gluten intolerance has such a myriad of symptoms and related disorders.  I'm sure you have all seen that tooth formation can be affected by celiac, then why not bones as well? 

  • 1 month later...
PTArt Apprentice

I also have scoliosis and kyphosis, and i remember reading on the net that celiac and scoliosis are connected.  i have 2 rods and 12 screws in my back, surgery back in the 1980's. There are so many problems associated with gluten intolerance, it is highly likely that abnormal spine growth could be one of them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748

    Nicole King
    Newest Member
    Nicole King
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.