Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Having A Hard Time Coping


BrandyCowley

Recommended Posts

BrandyCowley Newbie

I have really been struggling with a gluten free diet. I live in a town where there are very few specialty stores and the ones we do have are very expensive. I have very little support from family and friends and find myself slipping up all the time just so I can go out to a restaurant and eat with my friends. Why is this so difficult for me, are there any tips someone can give me to help me out with this. I have started to feel very over whelmed! Thank you for your help!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

This wasn't on purpose but just sort of happened..... each person in my family who is gluten free has found another person at work or school who is also gluten free. Having these people to talk to and share with has been so important to us. A few days ago I was able to take a cake to work to share with my co-workers just like before all this happened. My co-worker who is also gluten free was trilled, even offered to buy my kids Christmas presents!

Here's the recipe..........

Two Betty Crocker Gluten Free Yellow Cake Mixes

One can of Libby's pumpkin pie mix

Three eggs

One cup of coconut milk

walnuts

This was seriously good stuff, two thumbs up, made me feel so good to be able to share food with friends again SAFELY :D

Hope this helps, RA

Jestgar Rising Star

I rarely buy specialty foods, just meat, veggies and cheese...

sunnybabi1986 Contributor
This wasn't on purpose but just sort of happened..... each person in my family who is gluten free has found another person at work or school who is also gluten free. Having these people to talk to and share with has been so important to us. A few days ago I was able to take a cake to work to share with my co-workers just like before all this happened. My co-worker who is also gluten free was trilled, even offered to buy my kids Christmas presents!

Here's the recipe..........

Two Betty Crocker Gluten Free Yellow Cake Mixes

One can of Libby's pumpkin pie mix

Three eggs

One cup of coconut milk

walnuts

This was seriously good stuff, two thumbs up, made me feel so good to be able to share food with friends again SAFELY :D

Hope this helps, RA

Wow, that cake mix sounds delicious! How long do you bake it for and at what temperature? I will definitely be making it!

Thanks!

Janie

OptimisticMom42 Apprentice
Wow, that cake mix sounds delicious! How long do you bake it for and at what temperature? I will definitely be making it!

Thanks!

Janie

400 degrees 45 minutes - was just a halfway between the temp and time for pie and cake - we winged it

DD made a chocolate frosting last night from chocolate peanut butter, powdered sugar and coconut milk that was wonderful also

no soy, dairy or gluten

sunnybabi1986 Contributor

Hi!

I don't shop at specialty stores, they're just too expensive for me. I get most of my food from Wal-Mart and a local grocery store, and I don't buy many specialty items there, either. I've been gluten free for almost 4 weeks and it started out with me being panicked all the time because I couldn't find anything to eat and it felt like a death sentence. However, after a few weeks, it's gotten immensely easier. One thing I've learned to do is NOT search for gluten free recipes online for all my recipes. I come up with some good recipes that way, but I find a lot more recipes by searching Open Original Shared Link for general recipes for chicken, pork, beef, rice, and potatoes. None of the recipes call for "gluten free" ingredients, just fresh, healthy produce and food you can buy anywhere. I love McCormick's GrillMates because they clearly list on the back of the package if any wheat ingredients are included. Here are a few recipes I love:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

When I don't have time to make dinner, I eat a lot of:

Dinty Moore Beef Stew

Hormel Chili w/Beans

Green Giant Steamers: Roasted Red Potatoes, Green Beans and Rosemary Butter Sauce

El Monterey Shredded Beef Corn taquitos

Salad with Kraft ranch dressing

Baked potatoes

Ensure

And I snack on:

Air popped popcorn with parmesan cheese (yum!)

Blue Bunny ice cream bars

Tortilla chips with salsa

Banana w/peanut butter

Yogurt

I hope this helps some! It's not nearly as impossible as it seems, I promise! It will get easier with time, but there is definitely a sharp learning curve. After awhile, you will learn to find yummy meals to make that taste great with fresh ingredients. Good Luck, you can do it!!

Janie

ang1e0251 Contributor

Very good advice. You know, you can go to restaurants with your friends. In fact, you should because gluten shouldn't control your life. If they have to go to a place where you cannot eat, then eat before you go and just have something to drink and enjoy your friends. If you don't make a big deal about it, then they won't either. Research ahead of time where you could eat, in case they ask you, and go there with confidence in the food you researched. Again just eat before if you can't eat safely with them. Friendship doesn't depend on food, it's about being together. This works for family too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TryingtobehealthyinMass Newbie

You know, I pack some of my fave treats w/me in case I can't eat what others are having... almonds are huge for me! Also, in the past I made some tasty riceflour pancakes in bulk, flavored w/anything from cinnamon to apple chunks that can easily fit in sandwich baggies & stuff them in my purse. That way I'll have something sweet to munch on if there isn't anything I can have.... Hmmm... now that it's the holiday season, I wonder if making riceflour pancakes w/pumpkin would work? Sounds tasty to me! Hope this helps!

Hank Frank Newbie
This wasn't on purpose but just sort of happened..... each person in my family who is gluten free has found another person at work or school who is also gluten free. Having these people to talk to and share with has been so important to us. A few days ago I was able to take a cake to work to share with my co-workers just like before all this happened. My co-worker who is also gluten free was trilled, even offered to buy my kids Christmas presents!

Here's the recipe..........

Two Betty Crocker Gluten Free Yellow Cake Mixes

One can of Libby's pumpkin pie mix

Three eggs

One cup of coconut milk

walnuts

This was seriously good stuff, two thumbs up, made me feel so good to be able to share food with friends again SAFELY :D

Hope this helps, RA

Where do you find Betty Crocker gluten free cakemix??

mbrookes Community Regular

My store has the Betty Crocker gluten-free in with the other baking mixes. They also make chocolate cake, brownies and chocolate chip cookies. I have used the brownie mix and love it. It makes a fairly thin chewy brownie

This week end I'm going to use the yellow cake mix to try a pineapple upside down cake.

Also look in your regular cookbooks (I'm a collector and have several hundred) Many recipes are naturally gluten free and those that use only a little flour (like thickening a sauce) can be made with gluten-free flour or cornstarch.

Since your kitchen is already gluten free (IT IS, ISN"T IT?) you don't have to worry about cross contamination.

We entertain frequently and no one even knows they are eating "without."

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,338
    • Most Online (within 30 mins)
      7,748

    jojocle
    Newest Member
    jojocle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
×
×
  • Create New...