Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Decided To Get An Endoscopy- Is It Scary?


AlexJ72

Recommended Posts

AlexJ72 Apprentice

Im afraid of being awake and having that tube shoved down my throat - am i gonna gag and vomit or dry heave? should i be put to sleep?

ive been off gluten for a while but my GI still thinks he can get some idea of whats going on inside..he doubts my intestine has healed completely so he may be able to see some residual damage

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

No, the endoscopy is not a scary procedure at all, only the thought of it is scary. You will be medicated (sedated with a drug that will make you forget the procedure entirely) and will have no consciousness of what is happening. Usually, the only after effect you are likely to experience is perhaps a mild sore throat for a day and most don't even have that. Don't be afraid of it.

Link to comment
Share on other sites
chiroptera Apprentice

I have had two endoscopies as an adult and had NO problems at all!

The first one I didn't feel a thing, although for the second I did start to wake up as they were pulling the tube which was rather freaky but not at all painful.

Really, it will be fine and if I had to have another one tomorrow I would be fine with it!

The one "funny" is that be careful who is your designated driver because you will be goofy from the sedation and you never know what you may say!!! :lol: You may just "spill the beans" on something you'd rather not! :o

Link to comment
Share on other sites
Tigercat17 Enthusiast

The upper endoscopy is a breeze. You'll be asleep the whole time. I was worried too & I keep asking the nurses & doctors to make sure I'm asleep. I'm so glad I went through with the procedure. I just had it done two months ago. That's when they found the celiac & now I know what's wrong & can heal with the gluten free diet. Now my doctor wants to do another one with the Bravo study since I'm still having acid reflux. I think my small intestines are pretty damaged & it's taking a while for me to heal. I probably had celiac for years.

At least you'll know for sure what's going on & it will give them more information. And the drugs are Real Good!

I did have a little sore throat that day, but it was no big deal. Really. Don't be afraid -You'll be fine! :)

Link to comment
Share on other sites
Ahorsesoul Enthusiast

The new drugs they use now are fantastic. You won't mind at all. I was worried because I always was vomiting after being put to sleep for surgery. I'd just had eye surgery in Sept, awake but drugged, it was great. Didn't mind a bit.

I know I was asleep during my colonoscopy but I do not remember anything except arriving at the hospital. Same with my dh, he wanted to go shopping after having his done. He doesn't remember it at all.

Took a friend for her endoscopy. She'd had one about 10 years ago that ended up not being finished and with her admitted into the hospital because she'd gotten so upset and couldn't breathe. Of course she was highly upset to have another one. She sailed through it without one problem. All because of the new drugs.You'll love it.

You can do this. Besure to report back how it went and the results.

Link to comment
Share on other sites
luvs2eat Collaborator

No prep ('cept no eating after like 11 pm...) UNLIKE a colonoscopy... they put you into a really nice sleep... heated hospital blankets... that test was one of the best I've ever had!!

Link to comment
Share on other sites
psawyer Proficient

I have had it done twice; no worries. I was sedated and have no memory of the actual procedure and there were no aftereffects other than wooziness from the sedative for a few hours.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grainfree Newbie

I echo everyone here in their experience to the endoscopy - no problem whatsoever. And the good news is, once its done, its done, and you can move on to recovery.

Link to comment
Share on other sites
luvthelake21 Rookie

My daughter was 10 when she had hers (three years ago) when we got home she called her girlfriends and told them the only thing she did not like about the test was they left her gown open in the front and she was mortified, modesty sure kicks in at a early age LOL. You will be fine. Let us know.

Link to comment
Share on other sites
  • 9 years later...
Minny Rookie

I have been reading these positive messages...thank you. I have my endoscopy in three weeks and my anxiety is already at a maximum. I have been told even with sedation I will feel everything. Someone also said you are 'pinned' down but the nurses. I am really scared. I know the results could be even more scary but I can't move beyond freezing when I think of having the procedure.  I have a very sensitive gag reflex (had a piece of bacon rind lodged in my throat when I was a child....no longer a meat eater!!! and still have bad dreams about mum trying to remove it) I struggle even cleaning my teeth. I don't know what to do. Can anyone  help? Is there anyone in England who has had the procedure and found it to be the same as the ones posted here? Thanks in advance.

Link to comment
Share on other sites
ravenwoodglass Mentor
2 hours ago, Minny said:

I have been reading these positive messages...thank you. I have my endoscopy in three weeks and my anxiety is already at a maximum. I have been told even with sedation I will feel everything. Someone also said you are 'pinned' down but the nurses. I am really scared. I know the results could be even more scary but I can't move beyond freezing when I think of having the procedure.  I have a very sensitive gag reflex (had a piece of bacon rind lodged in my throat when I was a child....no longer a meat eater!!! and still have bad dreams about mum trying to remove it) I struggle even cleaning my teeth. I don't know what to do. Can anyone  help? Is there anyone in England who has had the procedure and found it to be the same as the ones posted here? Thanks in advance.

Have you talked to a nurse or your doctor about these fears? They might be able to reassure you. Hopefully some of our members from the UK will respond but you may want to start a new thread to ask them about their experiences with endos in your country.

Link to comment
Share on other sites
Minny Rookie
6 hours ago, ravenwoodglass said:

Have you talked to a nurse or your doctor about these fears? They might be able to reassure you. Hopefully some of our members from the UK will respond but you may want to start a new thread to ask them about their experiences with endos in your country.

Thank you I didn't think of doing that

M

Link to comment
Share on other sites
Minny Rookie

Hi

Sorry, I don't know how to start a new thread!!!! Can you help?

M

Link to comment
Share on other sites
ravenwoodglass Mentor
2 hours ago, Minny said:

Hi

Sorry, I don't know how to start a new thread!!!! Can you help?

M

If you go to the top of the Prediagnosis thread (or any other) you will see a red box that says 'start new topic' if you click on that you will be able to start a new thread.

Link to comment
Share on other sites
chocolatesunrise Explorer

I am also very encouraged by all the positive things people are saying about endoscopy. I have one scheduled in about three weeks as well and I am terrified!!  So good to hear about all these positive experiences!!

Link to comment
Share on other sites
Donna Sue Newbie
On 8/23/2019 at 5:07 PM, chocolatesunrise said:

I am also very encouraged by all the positive things people are saying about endoscopy. I have one scheduled in about three weeks as well and I am terrified!!  So good to hear about all these positive experiences!!

I had one a couple of weeks ago. I was given an anesthetic. I did fine ,no memories. My throat was a little tender for about three days. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,810
    • Most Online (within 30 mins)
      7,748

    Niki111084
    Newest Member
    Niki111084
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It will not undo all of the healing.  If it did, diagnosis of celiac disease would be much easier!  To have enough damage to see on an endoscopy requires several weeks of gluten ingestion. 
    • Jean Shifrin
      HI, I am new to this and am still in 'repair' mode, which I know will take time. But I'm wondering if anyone knows what happens if you ingest gluten after you have made a lot of progress in repairing your villi. Does anyone know if you just have a short-term issue? Or does an accidental ingestion of gluten derail all the work you've done and set you back to square one? Thanks.
    • Scott Adams
      Hydrolyzed wheat is wheat protein that has been broken down into smaller components through a chemical or enzymatic process called hydrolysis. This ingredient can be found in various products, including cosmetics, personal care items, and some food products. For people with celiac disease, hydrolyzed wheat is generally not safe to consume because it still contains gluten proteins, even in its broken-down form. Though hydrolysis reduces the size of these proteins, it doesn’t fully remove the components that trigger an autoimmune response in people with celiac disease. In food products, hydrolyzed wheat protein still poses a risk and should be avoided. With regard to the McDonald's French fries, the total amount of hydrolyzed wheat in the flavoring is small, and the amount that ends up in an order of fries is even smaller, and likely below 20ppm. McDonald’s states that the fries are gluten-free by ingredient and free from cross-contact with gluten-containing foods in their dedicated fryers. Third-party tests and statements by McDonald's confirm gluten levels are below the FDA threshold for gluten-free labeling (20 parts per million or less). So, while McDonald’s USA fries may be gluten-free based on testing, some people with celiac disease still approach them cautiously due to the past concerns and individual sensitivities.
    • trents
      Here is an excerpt from this article: https://pmc.ncbi.nlm.nih.gov/articles/PMC82695:   Studies have shown that various peptidases of fungal, plant, animal, or bacterial origin are able to hydrolyze gluten into harmless peptides. According to SDS‐PAGE pattern, proteolytic enzymes hydrolyze gliadins (Heredia‐Sandoval et al., 2016; Scherf et al., 2018; Socha et al., 2019; Wei et al., 2018, 2020). Bacterial peptidase (Krishnareddy & Green, 2017), fungal peptidase (Koning et al., 2005), and prolyl endopeptidases (PEPs) (Amador et al., 2019; Janssen et al., 2015; Kerpes et al., 2016; Mamo & Assefa, 2018) thoroughly degrade gliadin fractions to decrease gluten concentration and influence celiac disease. Aspergillus niger derived PEP (AN‐PEP) were assessed in clinical cases for their impact on modifying immune responses to gluten in celiac patients (Lähdeaho et al., 2014). Guerdrum and Bamforth (2012) reported that PEP addition in brewing technology decreased the prolamin and all of the identified immunopathogenic gluten epitopes in beer production (Akeroyd et al., 2016). On the contrary, many of the recent investigations which employed enzyme‐linked immunosorbent assay (ELISA), mass spectrometry, and Western blot analysis reported that PEP did not thoroughly destroy the whole gluten proteins (Allred et al., 2017; Colgrave et al., 2017; Fiedler et al., 2018; Panda et al., 2015), which indicates that beers treated with PEP are not safe for celiac disease patients. Anecdotally, this excerpt supports what we hear from the celiac community on this forum with regard to "gluten free" hydrolyzed wheat products and that is that some still react to them while many don't.
    • Scott Adams
      There aren't good studies that have been done on celiac disease remission, and I'm going from a distant memory of an older post here, but the longest remission that Dr. Stefano Guandalini from the University of Chicago Celiac Disease Center has witnessed was ~10 years, then the symptoms of celiac disease and the damage came back. The real issue though, is that you still could increase your risk of various related diseases and disorders by eating gluten, but again, celiac disease remission has not been studies enough to know what health risks you might face.
×
×
  • Create New...