Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Opinions. Purposely Glutened Myself


pufffee

Recommended Posts

pufffee Apprentice

Hi

I have been gluten free for about two months. I cheated once on purpose about two weeks ago with a couple slices of pizza after 10 days of dairy free diet as well. My stomach immediately got bloated pretty bad, not painful just bloated. I had D not any different from before. Next morning and day


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AKcollegestudent Apprentice

First off, you're not going to be magically better in two months. It doesn't work like that. And it does take a while to get over a glutening, even though your body might not have recovered enough to give you really fun reactions to gluten. Secondly, I'm confused by what you mean by limited dairy--are you doing only "lactose free" dairy items? If so, how is that working out for you? Because it sounds like, at the very least, you should probably go off of dairy completely again--there are actually more proteins than just lactose that the body reacts to. I react to casein, as do many of the people on this board.

I think you want me to tell you that this sounds like you don't have celiac and I'm not going to do that. Because you very well could still have issues with things, even if you were negative on all the tests.

pufffee Apprentice
First off, you're not going to be magically better in two months. It doesn't work like that. And it does take a while to get over a glutening, even though your body might not have recovered enough to give you really fun reactions to gluten. Secondly, I'm confused by what you mean by limited dairy--are you doing only "lactose free" dairy items? If so, how is that working out for you? Because it sounds like, at the very least, you should probably go off of dairy completely again--there are actually more proteins than just lactose that the body reacts to. I react to casein, as do many of the people on this board.

I think you want me to tell you that this sounds like you don't have celiac and I'm not going to do that. Because you very well could still have issues with things, even if you were negative on all the tests.

Hi There,

I mean limited dairy by low intakes of dairy and I also will take a lactaid as well. This is just until my blood results. I am not looking for anyone on here to tell me I am not Celiac or not. I was looking for some help on reactions. It seems every single person I have seen on here that has expressed they were glutened has way more severe reactions, Basically noticable reactions. To be gluten free for months and Splurge on gluten not just accidently or CC. and not notice anything is to me a big sign, at least for now. If I left decisions up to Dr's I would not be Celiac candidate as of Biopsy and blood work back in June. I do not have allergy to casein, that is something completley different and related issues are with skin among other things. But I agree with you that there are many other possibilites.

Have you been glutened? WHat happens?

Swimmr Contributor
Hi There,

I mean limited dairy by low intakes of dairy and I also will take a lactaid as well. This is just until my blood results. I am not looking for anyone on here to tell me I am not Celiac or not. I was looking for some help on reactions. It seems every single person I have seen on here that has expressed they were glutened has way more severe reactions, Basically noticable reactions. To be gluten free for months and Splurge on gluten not just accidently or CC. and not notice anything is to me a big sign, at least for now. If I left decisions up to Dr's I would not be Celiac candidate as of Biopsy and blood work back in June. I do not have allergy to casein, that is something completley different and related issues are with skin among other things. But I agree with you that there are many other possibilites.

Have you been glutened? WHat happens?

My reactions are usually bloating and/or D and the occasional inability to "go" for a day or two. Staying bloated was one of the ONLY noticeable reactions...to begin with (besides migraines and irritability, which I rode off as I was just a B).

Then I learned that my anxiety and migraines were a reaction and that was after I started having them more.

Now any time I ingest anything with regular salt in it, I get DH. I went through what I thought was an acne stage when I hit 24...when really it was my body progressing with gluten/wheat intolerance. I have been tested, it's negative. My lipids, thyroid, etc are all fine EXCEPT vitamin D...which I'm low on. So I have to take supplements. But I also think that is because I also never really drank much milk...not ONLY because I have an intolerance. Alot of people with Celiac share a vitamin deficiency. But not ALL. Also if you go even two weeks (correct me if I'm wrong) without gluten and have a test done, it will come back negative. You have to have it in your system for it to show positive. And I'll be damned if I'm going to purposely eat gluten just to have a piece of paper saying I have what I already know I have.

Also take into consideration that while you may not be having a noticeable reactions, your body still is getting damaged.

The longer I go without gluten/wheat, the worse I react when I do get ahold of it. Don't attempt to purposely gluten yourself...it's damage and the more damage you do, the longer it's going to take to recover. Try your best NOT to get glutened and when you do accidently get ahold of it, I assure you, you will more than likely notice it...BIG time.

:) Good Luck :)

ravenwoodglass Mentor

If you want to do a challenge then you should do a true challenge rather than eating mixed foods once and then deciding that the food is fine because you don't think your reacting or think that you are unable to tolerate either when only one is the problem. Drop both the dairy, in all forms, and gluten for a week or two. During this time eat only unprocessed whole gluten and dairy free foods. When your feeling okay then get some triscuits or cream of wheat and eat that 3 times a day for a week but don't add the dairy back in. If you react you will then know that gluten is bothering you. If you get ill drop the gluten and wait till the effects subside and then do the same with dairy. It can take a while to heal and if you have only been gluten-free for 2 months unless you are eating a fresh unprocessed foods diet and nothing else it is hard to avoid getting CC or outright glutened. That can make the first few months touch and go for a bit and make folks question if they may have other issues or if gluten really isn't a problem.

You may want to consider Enterolab testing for antibodies to gluten, casien, soy, eggs and perhaps yeast. You haven't been gluten-free long and they may be able to pick up the antibodies to the foods that you are reacting to. We don't make antibodies to stuff our bodies will accept so even though they do not diagnose celiac they can help us figure out what we need to avoid.

pufffee Apprentice
If you want to do a challenge then you should do a true challenge rather than eating mixed foods once and then deciding that the food is fine because you don't think your reacting or think that you are unable to tolerate either when only one is the problem. Drop both the dairy, in all forms, and gluten for a week or two. During this time eat only unprocessed whole gluten and dairy free foods. When your feeling okay then get some triscuits or cream of wheat and eat that 3 times a day for a week but don't add the dairy back in. If you react you will then know that gluten is bothering you. If you get ill drop the gluten and wait till the effects subside and then do the same with dairy. It can take a while to heal and if you have only been gluten-free for 2 months unless you are eating a fresh unprocessed foods diet and nothing else it is hard to avoid getting CC or outright glutened. That can make the first few months touch and go for a bit and make folks question if they may have other issues or if gluten really isn't a problem.

You may want to consider Enterolab testing for antibodies to gluten, casien, soy, eggs and perhaps yeast. You haven't been gluten-free long and they may be able to pick up the antibodies to the foods that you are reacting to. We don't make antibodies to stuff our bodies will accept so even though they do not diagnose celiac they can help us figure out what we need to avoid.

Thanks Raven, I did 10 days of gluten-free and and dairy free and noticed nothing. My mother has confirmed Celiac and with that I knew what I am getting into and doubt I had any CC during my 2 month diet. I am going Weds for Dairy Absorbtion test and what you suggested allegery test for wheat, milk, caisen, eggs and yeast. People on this site have really bad issues with D and I know everyone is different but I hope what I have is just lactose intolerence and a sensitive stomach and digestive system. I will see. I had all my blood work and Biopsys for Celiac while on a gluten diet so they would be as accurate as possible. I will figure it I guess.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    2. - Scott Adams replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    3. - KDeL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    4. - Peggy M replied to louissthephin's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Does Kroger Offer Affordable Gluten-Free Options?

    5. - Scott Adams replied to Sunshine4's topic in Related Issues & Disorders
      4

      Neurologic symptoms - Muscle Twitching and Hand Tremors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,278
    • Most Online (within 30 mins)
      7,748

    Pinkwells19
    Newest Member
    Pinkwells19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
×
×
  • Create New...