Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Allergy Or Gluten Intolerance?

passionfruit877

Recommended Posts

passionfruit877 Apprentice
passionfruit877
Posted

Hi!

I've been on a gluten free diet for about 2 months now. This diet has been great for me! Most of my bloating is gone, that icky feeling of constant fullness is gone, and my constipation is gone (sorry about that one, but it has been one of my biggest problems). I was treated for constipation for 2 years before the diet, and nothing worked. I was told I just had IBS. Up until now I was convinced I was gluten intolerant (my doctor knows I'm on the diet, he asked about a family history of Celiac).

However, I was curious how soon after being "glutened" a gluten intolerant person gets symptoms?

I have noticed several times now I was glutened, mostly at restaurants, and my reactions are fairly immediate. For example, we went to Red Lobster and half way through eating my rice I noticed little pieces of pasta in it. Before even leaving the restaurant the tips of my fingers on my left hand went numb, and I felt a tightness in my chest, not like I couldn't breathe, but like there was resistance to my breathing. I usually have the chest tightness combined with bloating when I get glutened (it has happened a few times) and it happens maybe 10 minutes after eating (the numbness only happened once).

I thought this was normal, but does anyone else get this, or am I having an allergic reaction? I just happened to be reading a website that said gluten usually creates problems 1 to 2 days later. I don't know what to do now that I think it might be an allergy, is it dangerous?

I was so sure that I was gluten intolerant (and maybe even had Celiac, I'm 22 and 4'11'' and 95 pounds with bad sinus allergies.)

I am going to talk to my doctor again, but i was just wondering from people who probably know the most about it. What does it sound like to you? And can a test tell the difference? Thank you so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted

Gluten hits me very quickly, less than an hour to up to two hours.

jerseyangel Proficient
jerseyangel
Posted

It's different for everyone--gluten hits me after a few hours.

Your symptoms could be the result of an allergy. An allergist can do skin testing--it's also possible to be both intolerant and allergic. With your breathing and chest symptoms, I think it's a good idea to have it checked out.

Lynayah Enthusiast
Lynayah
Posted

I have wondered if I have an allergy to wheat as well as gluten-intolorance. My nose runs when I'm "hit," and it happens right away. The GI problems hit shortly thereafter.

It's interesting . . . for YEARS I thought I had weird sinus problems as well as an allergy to mold. I ALWAYS had at least two full-blown sinus infections per year (horrible, HORRIBLE infections, and goodness knows to what extent the antibiotics messed with my GI system).

So far, since giving up gluten, my sinus passages have cleared. It was one of the first things I noticed after going gluten-free. I remember lying in bed, turning to my husband and saying, "I can BREATHE!" It has been such a blessing not to have a box of tissue in every room any more. My nose isn't a faucet now; it's a nose!

I can't wait to see if I can get through the rest of the year without a sinus infection. Dare I say it? . . . So far, so good! : )

So, bottom line: Your question about allergy is a good one. I am looking forward to seeing what others might post here. Thank you for this topic.

jststric Contributor
jststric
Posted

I think I'm simply intolerant but of many things, not just wheat/glutens. It usually takes me a day and a half to two days to start feeling symptoms. Sinuses is one of many and I can have some symptoms for as long as a week or so.

passionfruit877 Apprentice
passionfruit877
Posted
  • Author

Thank you all for the quick responses! I'm glad I brought up a topic that may be helpful to others!

Lynayah,

I have had severe sinus allergies my whole life as well. I used to get sinus infections and had to take Claritin year-round, although as I've gotten older they have improved. I'm interested to see if they keep getting better on this gluten free diet. I am also very sensitive to perfumes, as well as strong soaps ( once I used my husbands AXE body wash and when I got out of the shower my stomach and upper legs were covered in giant welts!).

My point is I already have allergies, so it is not so unusual to think that I may be allergic to wheat. I see that some people have quick responses after being glutened, does anyone have the chest tightness I described, followed by the upper stomach bloating and pain? Oh, and once I got a feeling like my throat was sore, and it felt like I had this bubble I couldn't swallow.

It just seems like the chest tightness could be an allergic response. I'm going to talk to my doctor. I think I may be lactose intolerant as well ( milk gives me a gurgly stomach). Is the skin prick test the only allergy test? I would be interested to know what other foods get to me (I still get mildly bloated after some meals). Thanks!

ciavyn Contributor
ciavyn
Posted
Thank you all for the quick responses! I'm glad I brought up a topic that may be helpful to others!

Lynayah,

I have had severe sinus allergies my whole life as well. I used to get sinus infections and had to take Claritin year-round, although as I've gotten older they have improved. I'm interested to see if they keep getting better on this gluten free diet. I am also very sensitive to perfumes, as well as strong soaps ( once I used my husbands AXE body wash and when I got out of the shower my stomach and upper legs were covered in giant welts!).

My point is I already have allergies, so it is not so unusual to think that I may be allergic to wheat. I see that some people have quick responses after being glutened, does anyone have the chest tightness I described, followed by the upper stomach bloating and pain? Oh, and once I got a feeling like my throat was sore, and it felt like I had this bubble I couldn't swallow.

It just seems like the chest tightness could be an allergic response. I'm going to talk to my doctor. I think I may be lactose intolerant as well ( milk gives me a gurgly stomach). Is the skin prick test the only allergy test? I would be interested to know what other foods get to me (I still get mildly bloated after some meals). Thanks!

Wow - passionfruit - I get the same reaction when I have "too much bread." I just recently approached the gluten-free option after some serious embarrassment and I am tired of feeling "ick." But when I eat a lot of grains, especially pizza or bread, I get this really sick feeling in my stomach, and the feeling of a bubble in my throat that I can't swallow - that is exactly how I would describe it. I thought it was just me. =) It feels terrible, and takes several hours and some severe diarrhea to get rid of it. Weird yet cool to find out I'm not crazy, and that other people have similar reactions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


passionfruit877 Apprentice
passionfruit877
Posted
  • Author

Update:

I saw my doctor yesterday. He told me I was not having an allergic reaction, and that it would have been discovered at a younger age. He pretty much said I couldn't have been eating wheat my whole life and been able to tolerate it. So that clears that up.

He also said he doesn't think I have Celiac because of my symptoms.

He said he's pretty sure I have IBS because of my age and because of the GI symptoms I am having. He said my recent intolerance to gluten has probably been somewhat present my whole life, but has been amplified by the IBS, and he predicted that most of my symptoms should go away after a few years.

What he said makes sense. Now that I am off gluten I am doing well, and my reactions to it usually happen within 15 minutes and go away a few hours later. Hopefully he is right and they will go away on their own.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,916
    • Most Online (within 30 mins)
      7,748
    TrevorT
    Newest Member
    TrevorT
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

      My old results (almost a year ago) are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   I didn't have any symptoms now except tiredness but I think it's just work. I'm not IgA deficient as you can see so I don't need to do this Deamidated gliadin peptide IgG test. But I do because it's sometimes not in the normal range. What do you think this time? I think I don't have celiac disease. But this test... 
    • Wheatwacked
      Anyone else with very high HDL?

      By Wheatwacked · Posted

      @plumbago, I found a good PDF on cholesterol:  Unlocking the mysteries of VLDL: exploring its production, intracellular trafficking, and metabolism as therapeutic targets I just started it, but it may have answers for us, with whacky cholesterol.  The pharmaceuticals don't seem to be interested in anything but statins.   "The nicotine in tobacco causes a decrease in the HDL cholesterol level. " Maybe you should start smoking? 🤪 I have high LDL and low HDL.  It is genetic mutations in the LDLR, APOB, PCSK9, or LDLRAP1 genes. My whole family is on statins for Familial Hyperliperdemia except me.  December I had ultrasound and cat scan for Carotid Artery blockage and both sides are above 85% blockage.  I started on Atorvastatin and that made me weaker than ever, even with CoQ10.  I asked for and got prescription for 2000 mg/day Nicotinic Acid B3 and in the 3 weeks my numbers changed. I am feeling realy good lately.  Stronger and more flexible.  Sleeping better.  Getting roto router (TCar) as soon as I get clearance from a cardiologist.  I expect that by my next blood panels in April to be even better. I am beginning to believe that like vitamin D where the RDA only accounts for preventing Rickets, the RDA for B3 is way underestimated.   From Oct 22 to Jan 17: A1c from 13.5 to 10.2 eGFR from 55 to 79 Triglyeride from 458 to 362 Total cholesterol from 245 to 264 HDL from 27 to 44 VLDL from 84 to 68 LDL from 134 to 154
    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
×
×
  • Create New...