Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone And Everyone: Are Your Gluten Exposure Symptoms Usually Consistent?


StacyA

Recommended Posts

StacyA Enthusiast

I know that symptoms vary from person to person when they have exposure to gluten. But have you all noticed if your own individual symptoms are consistent each time you are glutened, or do they vary?

I would like to be able to tell when I'm glutened, to help me figure out what products or kitchen habits are risky (I'm diligent in reading labels, but sometimes I've tried products that are gluten-free but are 'made on the same equipment'; and I also have a shared kitchen and a husband who cooks for me sometimes but I'm not standing over him watching...)

My celiac's disease was only triggered this summer, so I don't have years of symptoms and years of a gluten-free diet to help me differentiate between things. My GI system is still recovering, and I'm still having diahrrea, so that's not a good symptom to track. (I'm on a probiotic currently.)

I do suspect that low back pain and severe irritability may be my own personal gluten exposure symptoms (and I've read enough posts to know that they are common). But I've considered purposely exposing myself again just one or two times in order to monitor my symptoms, although if my own personal symptoms could vary with each exposure then that wouldn't help much, would it?

Chime in and let me know if your own symptoms are the same each time... Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Mine are always the same and follow the same progression for the 3 weeks it takes to get over them. I don't know if this holds true for others.

Have you eliminated dairy? We often need to in the beginning to heal. You need to try and do as much whole unprocessed food as you can. Also make sure you check all meds and supplements and generic meds need to be checked at each refill. You should have had some relief from the D by now and I suspect that either gluten is sneaking in or you may have another intolerance such as casien or soy if it is still a regualr occurance. Unprocessed food is really the way you need to go for a while. You don't have to worry about gluten in fresh or single ingredient frozen veggies and fruits, beans, rice, fresh meats etc.

HS7474 Apprentice

I know my personal symptoms of: Gas (very frequent and very unique scent), bloating, and irritability (debatable) are always there. It's possible that I have other varying symptoms but I know if I have "that gas" that I've been glutened. I'm in a very "dangerous" household so it's hard for me to say whether or not I have other symptoms since, until I get my own place, I have an incredibly high risk of CC.

carsondcat Newbie
I know my personal symptoms of: Gas (very frequent and very unique scent),

Lols, on the unique scent.. me too smells like something has crawled inside me and died (falls off chair with laughter, my poor husband...) I have lots of different symptoms, including pain in various parts of my stomach and intestines and red welts and blotches on my tongue, brain fog, tingling in the arms and hands, debilitating headaches not to mention feeling as if I'm about to explode.... As always great advice from ravenwoodglass :)

HS7474 Apprentice
Lols, on the unique scent.. me too smells like something has crawled inside me and died (falls off chair with laughter, my poor husband...)

Lol! What a perfect (and of course horrible) description. I'm not sure much can make a person feel more unfeminine than that one symptom! Febreez has my eternal gratitude :D

amberlynn Contributor

Yes, usually... chocolate triggers migraines (even in the smallest, minute amount-and that sucks cause I LOVE chocolate), but my gluten triggers AWFUL gas that, yes, puts my husband to shame. I get VERY tired, lethargic, and irritable. Crazy, almost. Stomachaches, not so much - but the gas comes with bloating, yay. And I look like I'm a few months pregnant :(. Every muscle and joint aches, and my hip starts to bother me again.

And its pretty much the same everytime.

ang1e0251 Contributor

My symptoms kind of vary so I'm not much help. A food journal could help you though. Note what you eat and drink and how you're feeling throughout the day. I'm two years in and I still have some D almost every day. But I mostly have normal stools now. So I'm not sure everyone can completely stop the D. I haven't been able to and I'm strict about my diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,337
    • Most Online (within 30 mins)
      7,748

    jojocle
    Newest Member
    jojocle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.  
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
×
×
  • Create New...