Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-free For 8 Months And Current Numbers And Questions..


foodiegurl

Recommended Posts

foodiegurl Collaborator

I went to the University of Chicago celiac center 2 weeks ago. I have a local GI dr who diagnosed me, but wanted an expert on the subject. I have been gluten-free for just under 8 months now, and I have gone through my house with a fine tooth comb...and we are 100% gluten-free. I love cooking, so we don't eat out often, but when we do (maybe once a month), I ask a million questions before I order.

Anyway, initially at diagnosis my TTG was 120, and now it is down to 34. I only had a chance to speak to the nurse so far, who said it was excellent and going in the right direction, and that it can take up to a year to get under 20. But, I have to wonder...could I be getting gluten somewhere? Or should i not be stressing since it has dropped so much and then retest at 12 months? I am like the gluten-nazi, and check EVERYTHING. no lotion, soap, laundry detergent, shampoo, facial moisturizer, chapstick enters this house unless I check the web site or with the manufacturer by phone.

Second, my B12 at diagnosis was pretty low, and I did injections weekly for a month, and then did the under-the-tongue b12, 1000 mg/ day daily since. It is now up to 894. I have a feeling the doctor will tell me to stop now. Should i, or do people continue to keep taking it?? Or do I cut down to a couple of times a week?

Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



foodiegurl Collaborator

anyone? =)

ang1e0251 Contributor

I am no expert on test results but everything I have read agrees with what you were told. It seems to take about a year to get the numbers you are already showing. It seems like terrific progress to me.

As far as the B12, I can only tell you if I miss it, I drag my tail around all day. Two days without I'm back to brain fog, tingling toes, restless legs and lethargy. I think the magnesium also ties into those symptoms, but the B12 seems to be the key for me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,230
    • Most Online (within 30 mins)
      7,748

    DogMom3
    Newest Member
    DogMom3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I have concerns about the calcium supplementation as well. Sounds like a good idea on the surface if you are trying to address bone density issues but when overdone it can have the opposite effect. Calcium supplementation increases gut PH (i.e., lowers gut acidity) which can interfere with vitamin and mineral (including calcium itself) absorption. Often, bone demineralization is not due to lack of calcium intake but to low gut acidity. This is why you will often see calcium supplement products paired with vitamin C (ascorbic acid). Drinking OJ or tomato juice along with the calcium supplement can help with this as they are acidic juices. Calcium supplementation can also contribute to plaque arterial buildup I believe. I think it might be best to focus on rich natural sources of calcium.
    • Wheatwacked
      In that case if you answer "no" does that mean the chef doesn't have to be as diligent?  If you ask for "pork free" do they ask if it is an allergy too? How's this for an answer: "I get violently sick if I eat wheat, barley or rye"?
    • Wheatwacked
      I order my vitamins from Pipingrock.com. They also make Cream of Rice.  Clearly marked gluten free. Right next to the Cream of Wheat. Stoneyfield Whole Milk Yogurt will help repoputate your gut bacteria.  It has lactase so is ok for lactose intolerance. 6 ounces has 210 mg calcium. For magnesium I get the 10 ounce bottle of liquid Magnesium Citrate at the supermarket or drugstore ($3).  One or two ounces of it  in a glass of water.  Add ice and sugar if you like.  I like the Cherry or Grape best. Instead try: Cream of Rice, Cheese and Good Thins (rice crackers), scrambled eggs and gluten free toast. Do you need Calcium supplement?  Calcium from supplements can cause hypercalcemia, a condition that can lead to serious health complications.  Vitamin D increases calcium absorption.  Monitor 25)(OH)D vitamin D plasma and  parathyroid hormone (PTH).    
    • trents
      The forms that vitamin and mineral supplements come in can be important. Bioavailability (i.e., how well they are absorbed) is often sacrificed for the sake of cost and shelf life. The vitamin or mineral you are targeting is always chemically combined with other elements to make them into a dispensable form (such as a powder, liquid or a pill) and to give them some chemical stability for shelf life.
    • llisa
      Thank you so much! I will look for that.
×
×
  • Create New...