Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Any 1 Tell Me What Symptoms Cleared After Going Gluten And Or Casein Free?


Internal-Disaster

Recommended Posts

Internal-Disaster Rookie

I have lots of lifetime issues that have never been resolved. I am nervous about some of the issues resemble lyme. I am just now being told to go gluten and casein free and will be doing so but I am finding myself saying " is is really possible that all these strange lifelong symptoms can be from gluten and casein or both"

Can anyone give me a list of symptoms they had that cleared after going either gluten or casein free or both?

1)swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

2)I have headaches every day I wake

when I sit down tingling in my foot (but may be a back issue thats unknown)

swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

3) hormone issues

4)insomnia

5) specks of white stuff that comes and goes in my throat in the tonsils

6) DEPRESSION

7) chronic extrem fatigue especially after eating

8) dark under eye circles and often wake with puffiness-dr sayd adrenal related but unsure about that but I do have adrenal issues

9) sinus mucus all the time

well there is more but I will leave these for now

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



homemaker Enthusiast

For me...going Gluten Free...solved my constipation, chronic headaches and joint pain

Internal-Disaster Rookie
For me...going Gluten Free...solved my constipation, chronic headaches and joint pain

really? and I see it had been about 2 months you have been gluten free. I am looking for some hope!

Thanks

GottaSki Mentor

For me the first improvement was no more bloating...just prior to diagnosis I was severely bloated every afternoon/evening -- looked about 8 months pregnant that would deflate by the next morning.

Other improvements were all digestive - gas, constipation, heartburn.

I still have many other symptoms -

stiff/sore upon rising in the AM - improves once moving

3-4pm extreme fatigue/fog/joint pain/stiffness - basically can't function after 4pm

insomnia

severe heat intolerance

I was recently diagnosed with Fibromyalgia, but am hopeful for more improvement as more time passes gluten-free.

Good Luck and best wishes for quick healing.

-Lisa

  • 2 weeks later...
kayo Explorer

When I got my enterolab results back I was shocked to see I had a soy intolerance as well as gluten. I didn't know anything about soy intolerance so I searched for symptoms. This is when I had a big aha! moment.

I stopped gluten the end of July and while I felt some great improvements I still had inexplicable weight gain (after loosing initially when going gluten-free), big D, cramps, brain fog, insomnia, headaches, dehydration, rashes, tingles in my hands and feet. Plus a persistent sore/scratchy throat, raspy voice, a voice that would disappear, and mucusy sinus issues. This one is weird: sometimes my tongue just can't make words. It feels weak. The fatigue is awful. My RA has been acting up as well.

Search for soy intolerance and see if it describes your issues, I think it does but you would obviously know best. :)

The other Aha! moment for me is how soy can mess up your menstrual cycle. My periods are 7-10 days long and it's been this way for 5+ years. Docs kept telling me, this is just you. Well, it looks like it may be soy related as well.

Good luck!

nmlove Contributor

So my boys are the gluten-free ones. My test came back negative though now that I'm mostly gluten free too (they're young and most processed gluten-containing foods that I would eat has soy or dairy in it). But I'm starting to notice reactions to the times I eat gluten. Like when we order pizza after the kids go to bed. :)

But casein free, that I can address. I actually found out about my intolerance or whatever you want to call it - nothing's official - when I had to take it out for my baby girl. I've been casein (and soy) free since July and I most definitely react to casein. Soy I'm not sure as my daughter reacted so strongly I'm not ready for a challenge. But once the dairy was gone I realized how much it affected me. The big symptoms? Migraines, sinuses/throat filled with mucous, fatigue, some bloating/gas but the worst thing for me was the constant cramping. I felt like I was on my period or ovulating ALL the time. I felt so yucky. Also caused a bit of discharge. And cravings? Completely gone. Amazing!

Lynayah Enthusiast

Check out my signature, below. All symptoms improved - except for white cell count which I have not had checked. :)

Also, years back, I suffered from almost a full year's worth of chronic fatigue with swollen glands every day and a strep-like sore throat every morning and night. I don't know if gluten-sensitivity had anything to do with it, but since you mentioned the swollen glands, I thought I'd mention it, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,847
    • Most Online (within 30 mins)
      7,748

    PDXCeliac81
    Newest Member
    PDXCeliac81
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores for individual IGA tests will be artificially low and can generate false negatives. The TTG-IGA test is the most popular test ordered by physicians when checking for celiac disease, and considered to be the centerpiece of celiac disease antibody testing, but it is not the only one. Ideally, others would be ordered but cost containment in medicine being what it is, physicians seldom order a "full celiac panel" at the outset. Here is an overview of the tests that can be run:  
    • Lizy487
      Thanks for the reply, I will ask for the antibody test. FODMAP does not eliminate gluten so it shouldn’t affect the results.
    • trents
      I would ask to have celiac antibody blood tests done. These tests would not be valid, however, unless you were eating normal amounts of gluten for weeks or months leading up to the blood draw. So, not sure how the FODMAP diet figures into that. Ask for a minimum of 1. total IGA and 2. TTG-IGA. "Villi are swollen, congested, and shorter." "Moderate chronic duodenitis with loss of villi." These two lab findings you list are classic signs of celiac disease but can also have other causes.
    • Ann13
      I never said anesthesia. Medical companies can of course change their ingredients at anytime. What may be listed as gluten free on a website may not be updated so always good to check with pharmacy or the medical company itself. 
    • Scott Adams
      So there can be gluten in pain meds, but I've never heard of it in anesthesia before. Do you have any more info on this claim, perhaps a link to a source?
×
×
  • Create New...