Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ten Months Gluten Free And Still Having Slight Digestive Issues Regularly


tfrankenberger

Recommended Posts

tfrankenberger Apprentice

I am a mother of a teen with Celiac, so I thought I'd get some teen feed back on this. My 15 year old son has been gluten free for ten months and dairy and soy free for five months. He says that every night after dinner, within an hour, he still has issues. Most of the time they are minor and he doesn't even ask for pepto or anything like that. Sometimes he takes Pepto to get it to go away. Any idea why he would still be having digestion issues and only after dinner most of the time? We are very, very strictly on the diet. Our whole house is gluten free and we NEVER eat out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Have you checked your vitamins, medicines, lotions, deodorants, toothpaste for gluten? Is there a food he has for dinner that he does not have during the rest of the day?

tfrankenberger Apprentice

We have checked all those things. This week we're going to try switching his "dinner" meal to lunch and his lunch meal to dinner time. If he still has issues only at the same time of day, we may at least be able to say it's not the food. The only thing I do differently at dinner is make things with a bit more in them such as seasoning, vegetables, etc. I've checked and double checked all seasonings we regularly use. He generally likes his meals more on the bland side, so I don't go too far with seasonings.

emcmaster Collaborator

Just a thought - when you say that he has digestion issues after dinner within an hour, I assume you mean he has to go to the bathroom? If so, could it be not that the dinner is causing a reaction but that it is stimulating him to have to go? For some people, eating makes their bowels move.

tfrankenberger Apprentice

What I mean by digestion issues is he will tell me his stomach is slightly upset and ask for Pepto or Tums. Sometimes that makes him feel better and sometimes it lingers until he goes to bed. There are nights he doesn't ask for anything, but he says he feels it most every night.

mysecretcurse Contributor

Its either 1) something he is eating or 2) everything he is eating, meaning that his body is just so broke down and damaged that digesting ANY food causes him problems.

If its the first option- have u thought about corn? I was gluten free for a long time before even considering that I had other sensetivies. I healed a lot just from being gluten free but still was having a lot of problems. I suspected dairy and soy but ended up giving up dairy, soy and corn all at once so I could test them individually for a reaction. I am still unable to tolerate all three but I find it interesting that out of all of them, CORN gives me the most violent reaction. I had no idea. It really sucks because corn is in everything. Soda, medications, candy... blah.

The only other thing I can think is maybe he is sneaking something somewhere and not telling you...?

tfrankenberger Apprentice

I try to vary all his grains and I keep a very detailed food journal. I don't give him straight corn because that's difficult to digest. When he has corn in things, like sprite or gluten-free cornbread, etc., he doesn't seem to have problems with it.

I'm positive he is not sneaking food. He is extremely strict on himself and will avoid all possibilities of contamination. He is very afraid of getting gluten accidentally. We home school, so I know everything he eats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

He could try a glass of oj, lemon water or a tablespoon of apple cider vinegar (not flavored but real apple cider vinegar) before eating. It may help him.

emcmaster Collaborator

I'm thinking it is a secondary intolerance of some sort. I'll be interested to see what you find when you switch his lunch and dinner foods around.

Sometimes it's a good thing to completely change your diet. We get into such a routine with what we eat.

GFinDC Veteran

You could look at the top 8 allergens lists to see if there might be something there he is reacting too.

McCormick single ingredient spices are ok, but spice blends (any brand) are possible problems.

Vitamin pills and medicines, sodas, tea, coffee, all that good stuff should be checked or eliminated by a trial abstinance.

There is most likely something sneaking in his diet daily that is affecting him.

Some of us have problems with oats also. Not Hall and Oats, but the kind you eat.

Preservatives and food colorings affect some people as well.

Then there is fructose malabsorption to consider.

Nightshades bother some people, and rice.

Just throwing out some ideas.

ang1e0251 Contributor

I have a hard time with alternate grains. I've eating a little saurkraut lately and that is helping with my digestion. If he's eating grains at dinner, that could explain it. That would be pasta, crackers, breads or anything with grain. Also some of those products have small amounts of gluten in them even though they are considerd gluten-free. You might stop anything like that for a bit and see how it works.

Chef16 Apprentice

Ask his doctor about taking digestive enzymes with his meals. I was having the same problem after being gluten free for a while, to the point where I couldn't even eat an apple without feeling sick. For some people (including me) your body is so damaged from eating gluten that is partially loses the ability to digest food properly and absorb nutrients. The digestive enzymes don't mask the symptoms, but rather help the body digest food until it can do it on its own. I noticed a difference right away and I could eat full meals without a problem. And after just a few months of thaking them with my meals I didn't need them anymore. Hope this helped!

  • 3 weeks later...
emilyailish Newbie

I'm having a similar problem although ive only been gluten free for 2 months. could anyone tell me how long it usually takes? I was told ten days

Squidge Newbie

I'm having a similar problem although ive only been gluten free for 2 months. could anyone tell me how long it usually takes? I was told ten days

Who told you that? It could take months depending on how much damage there already was. Your digestive tract can take more than ten days to heal. Furhtermore, there are other sensitivities that could be causing problems. Try eliminating milk, soy, and things that can irritate a healthy digestive tract, like corn, especially popcorn, and nuts. Start a food diary where you record everything you ate, every ingredient, and every allergy warning with dates and times. Also record how you feel, again with dates and times. Then look for patterns between feeling ill and what you ate. Eliminate possible causes and then if you feel better reintroduce what you eliminated to see if you get worse. Keep in mind that things can take some time to get where they cause problems, so look for time delayed symptoms as well. You have to figure the timing out on your own, because it can vary from person to person.

Squidge Newbie

I have a hard time with alternate grains. I've eating a little saurkraut lately and that is helping with my digestion. If he's eating grains at dinner, that could explain it. That would be pasta, crackers, breads or anything with grain. Also some of those products have small amounts of gluten in them even though they are considerd gluten-free. You might stop anything like that for a bit and see how it works.

If that's the case try mainly rice products. Alternate grains often acquire trace amounts of gluten from cross-contamination. Grains are usually processed close to where they're grown, and rice isn't grown anywhere near wheat. Wheat doesn't like quite as much wet as rice does. Also, General Mills, which includes Betty Crocker, has a rather novel, pretty much fool-proof way of dealing with cross contamination. They use a different building for all of their gluten-free products, including Rice and Corn Chex.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,882
    • Most Online (within 30 mins)
      7,748

    Billmer
    Newest Member
    Billmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...