Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Celiac, Questioning Diagnosis

Caniac

Recommended Posts

Caniac Newbie
Caniac
Posted

Hi,

I am a newly diagnosed Celiac (about 2 months ago). Just this week, I have discovered I have gallstones as well as had an attack of very severe pain. Is it just coincidence that the two health issues arrived at basically the same time in my life, or is it something else? Could the celiac disease actually just be symptom of the gall bladder disease, and maybe I am not celiac at all? Before being diagnosed as celiac, I was having no symptoms. No pain, bloating, indigestion, etc., so it was a real stunner when I was told I am celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

How were you diagnosed? There are plenty of people that are suprised by the diagnosis because they say they did not have symptoms. Alot of those people also, after being gluten free for some time, realize that some of the everyday things that they thought were normal have improved. Sure it could be a coincidence that both gave you problems at the same time, or not, but at least you know.

mushroom Proficient
mushroom
Posted

Often it comes the other way around. People have problems with their gall bladder, some even have the gall bladder removed (unnecessarily sometimes) and they they are diagnosed with celiac. The two conditions often go in tandem.

JillianLindsay Enthusiast
JillianLindsay
Posted

How were you diagnosed? I didn't present with typical celiac disease symptoms, aside from anemia. I had vaso-vagal syncope episodes (fainting) and even seizures. There are many people who have few or no symptoms, but ingesting gluten damages their body just like anyone else with celiac disease.

lizard00 Enthusiast
lizard00
Posted
How were you diagnosed? I didn't present with typical celiac disease symptoms, aside from anemia. I had vaso-vagal syncope episodes (fainting) and even seizures. There are many people who have few or no symptoms, but ingesting gluten damages their body just like anyone else with celiac disease.

Sorry to hijack, but I just have to ask: Is vaso-vagal syncope a symptom? My mom has this, and has been tested for celiac. Negative so far, but her vitamin D level just came back low (19), despite the fact the she LOVES the sun! Just curious.

Thanks :)

mushroom Proficient
mushroom
Posted

I have these fainting episodes when I get an extreme gas attack causing severe pain below the breastbone. This is the only link I am aware of to my gluten intolerance. My doctors told me it is due to pressure on the vagus nerve. I get all the typical pre-warnings of sweating, ringing in the ears, visual disturbance, etc.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,121
    • Most Online (within 30 mins)
      7,748
    painmanagemnet
    Newest Member
    painmanagemnet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aussie Celiac
      Increasing symptoms after going gluten free

      By Aussie Celiac · Posted

      Sometimes celiacs can also have other things like lactose intolerance which is fairly common. Also research fodmap foods, it's quite complicated but there are some other foods which can cause digestive issues. For me it's too many onions and garlic.
    • Wheatwacked
      Less than 10 parts per billion issues

      By Wheatwacked · Posted

      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      Endoscopy

      By Soleihey · Posted

      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
    • TerryinCO
      Status Update...

      By TerryinCO · Posted

      Thank you for direction.  Eating out is a concern though we rarely do, but I'm prepared now.
    • trents
      Celiac or not?

      By trents · Posted

      This might be helpful to you at this point:   
×
×
  • Create New...