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Udi's Bread


DMarie

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shayre Enthusiast

I don't understand all this talk about enzymes, etc., but i've been eating Udi's bread for about a year and have developed severe malabsorption problems (40 lb. weight loss and sudden onset of severe osteoporosis). Just had an endoscope in December and after 14 years of 'clean/no problem' scopes, my villi is once again blunted and flattened. Now I notice that when I eat this bread, I feel queazy. (I didn't pay attention to this beforehand.....how could I be sick, I'm my doc's most 'compliant celiac' - couldn't be an adverse effect of gluten). Now I'm wondering.....anybody else have problems w/this bread? I've heard from a few of you, any others? Udi's bread is GREAT....but it appears that I'm one of the few who cannot tolerate it. Super-sensitive I guess.....alas.

Hi. I have not been able to eat Udi's bread either. I am more sensitive. They test at 10ppm gluten contamination, where 20ppm is allowed in gluten free foods. 10ppm is also the level to be "certified gluten free". I react to that level. I cannot eat most labeled gluten free foods. I seem to be okay with companies that test 5ppm, or undectable at 5ppm. That is the lowest that they can test. My go to company for bread is Kinnikinnick. They are "undetectable at 5ppm". They also test each ingredient as it comes in to ensure that it's not contaminated. Enjoy Life and Gluten Free 123 also test the same. I'm sure that there are others, but you'd have to call each company. Shars has not responded to 2 emails questioning there testing, so I don't trust them. Food for Life was awful for me...they process with barley...hindsight. It sounds like you are going to have to start watching for lower levels of contamination now. You should start checking out the "super sensitive" section of this forum. I know it sucks:(


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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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