Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having A Poor Me Day


SharonF

Recommended Posts

SharonF Contributor

Yes, it's great to be feeling better and not exhausted tired all the time, but man, why me? I just want to eat a piece of pizza. Or a bagel. And not those rice flour substitutes, which are just not as good. I just want a piece of Papa Johns pizza.

Grr.

/rant


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Is it really that bad? I mean look at other things you could be suffering from. What about alot of people that don't even have food to eat? Does it really matter that we can't have this crap? We can have food that tastes just as good and won't hurt us.

For everything with gluten there is something without it too.

There are bagels, etc..that are just as good that are gluten free

Think about it ...it could be worse.

There is a lady we know who is 41 I believe and she is a cancer survivor. Well she just found out not only did it come back but it spread to her liver as well. She has 3 young kids....6, 3, and 1. Looking at those situations really hits me hard...I have no right to complain..I have been so blessed.

I hope you feel better, I know how those days are..I had a lot of them when I first was dianosed.

Wandering Hermit Contributor

Yep, Kaiti is right, in the grand scheme of things celiac is not so bad. I have a friend with Ulcerative Colitis - yeah, he can eat bread and drink beer, but he will likely have to have his colon removed someday. I'd rather have this problem.

I have bad days too, so I totally sympathize. I walked by a pizza place a few days after going gluten-free and I almost strated crying from the smell.

The way I look at it, this wole thing is just an opportunity to make myself a better, mentally tougher person. I love challenges. Bring it on.

tarnalberry Community Regular

This just means it's time to find a new "I must have some" food that is gluten-free. Think of the taste exploration this means! :-D

Emme999 Enthusiast

Sharon,

I am sorry that you are having a rough day. I've had a lot of them myself lately.

We both know that there are a lot of other people who have it a lot worse and I don't think that either of us would be likely to change positions with burn victims or cancer patients or whatever. But *right now* hurts and I think it's okay to feel that.

I wish that I could be a nearby friend and we could go out on a screaming/ranting/damn-it-all rampage, but I'm not :( So, maybe you ought to do something that an old friend and I used to do when we came to struggles:

Make the maddest face you can, and then repeat: "I HATE my stupid life! I HATE my stupid life!" - do it until it gets you silly and you realize how dumb it sounds.

I'm certain you are a very intelligent person with countless beautiful qualities. Make a list of them. Make yourself feel better. Turn on your favorite music really loud and dance and sing your guts out.

But I don't think that denying yourself a little self-pity in the short-run is such a good idea. Just try to keep it short ;)

Honor yourself.

- Michelle

thomas3000 Rookie

Hey Kaiti,

I noticed you have graves disease...What are you doing about it? Did you know that gluten sensitivity and graves share the same genetic marker??I can steer you in the right direction if i'm aloud to post a website on here...It's a company that I've been working with...have a great day..

KaitiUSA Enthusiast

Hey~

The graves disease is in beginning stages so I am not on medication or anything yet. They are just monitoring it every couple months. What annoys me about it is that every test I have had done it has got worse so I'll probably have to get on meds at some point.

I know that thyroid disorders are common among celiacs. Do you have that as well? You can email me anytime as well....and yes you can post links on here :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
There is a lady we know who is 41 I believe and she is a cancer survivor. Well she just found out not only did it come back but it spread to her liver as well.
There are a lot of people suffering from cancer... I mean prayer lists at my church and bible studies are growing with more and more people that have cancer. It's really sad.

In my opinion, I think that we are lucky in many ways. (1) I mean this disease won't kill us as long as we stick to the diet. (2) We are forced to eat a lot of veggies and fruits and scientists are finding now that veggies + fruits like broccoli, cauliflower, cabbage, tomatoes, blueberries, and cranberries are helping to slow down, prevent, and/or stop cancer. Personally, before I got celiac, I hardley ate enough veggies and fruits, but know I have no choice! and it's only for the best. (3) we've all found a lot of nice people on this site!

I still have days where I wish that I could eat fast food but overall, I am happy with the gluten-free diet and all the yummy things we can eat.

ianm Apprentice

Yes it could be worse. All we have to do is not eat gluten and we can enjoy good health. I am more than happy to give up pizza so that I can finally feel alive. It is not a hard sacrifice to make. Eat pizza=feel like crap or Don't eat pizza=feel alive.

stef-the-kicking-cuty Enthusiast
scientists are finding now that veggies + fruits like broccoli, cauliflower, cabbage, tomatoes, blueberries, and cranberries are helping to slow down, prevent, and/or stop cancer.

Hello Carrie,

did you find that on an internet page? If yes, would you give me the name? I'm very interested in that.

Hugs, Stef

KaitiUSA Enthusiast

I have heard as well from various sources that eating proper veggies/fruits etc. can help prevent cancer.

stef-the-kicking-cuty Enthusiast

Hey Kaiti,

I heard that, too. It just sounded like if medaka ment that those fruits/vegetables are even helping more than normal fruits/vegetables.

Hugs, Stef

Carriefaith Enthusiast

Hey stef_the_kicking_cuty, I am also very interested in this research. I have read/heard that broccoli, cauliflower, cabbage, blueberries and cranberries, and tomatoes have phytochemicals that help prevent cancer. I know people that do research on blueberries and cancer. I could ask for their journal article references if you are interested.

Here are some links from the net:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I personally think that a lot of cancer can be prevented by proper diet and exercise. There are a lot of things that can cause cancer that we cannot avoid in certain situations like second hand smoke for example. But I think that eating healthy and excerising should help reduce this risk.

I also try and buy as much orgainc food as possible and if I can't, I'll usually just wash the non-organic stuff very well. It's just that non-organic stuff may contain pesticide residues and if not washed proporly you could injest them which = bad.

Hope this helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,412
    • Most Online (within 30 mins)
      7,748

    Susan Marble
    Newest Member
    Susan Marble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.