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Glutened By Synthyriod!

Tigercat17

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Tigercat17 Enthusiast
Tigercat17
Posted

HI everyone,

I just wondered if anyone else felt that they been glutened by their synthyriod?

I' pretty sure my new dose of thyroid has gluten in it. I was taking the 137 synthyiod for about a year. I've only been gluten free for three & a half months. I did have my Ab, IgA antibodies tested on Nov. 20th and they were down to a 3. And they were 157 in Sept. 09.

Now I just started taking a new dose (125 synthyroid) been on it for two weeks & I feel horrible. My stomach hurts ( pains on both sides of my abdomen) , very bloated, I feel like I can't eat, anxious, tried and my acid reflux is back. It's the same symptoms I had right before I got diagnosed with celiac. So, I called my doctors & they ordered another antibodies test for yesterday Dec. 16th. This time my Ab, IgA was 67! So, I'm definitely getting glutened! I haven't done anything differently. I don't go out to eat at all & I make everything fresh. Everytime I take it I feel so bloated in the mornings.

Has anyone else have problems with the brand synthriod & felt that it had gluten in it? I called the company twice & they just give me the same answer about them not guaranteeing it's gltuen free. I'm going to call my endo tomorrow & see what else he can give me. I don't have a thyroid so my thyroid med is really important to me. I've been reading so many stories about the generic isn't that consistent. I'm not sure if it's true or not.

What are the guaranteed gluten free thyriod replacement drugs? My endo stats that none of them are guaranteed gluten free? Is that true?

Thanks!

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YoloGx Rookie
YoloGx
Posted
HI everyone,

I just wondered if anyone else felt that they been glutened by their synthyriod?

I' pretty sure my new dose of thyroid has gluten in it. I was taking the 137 synthyiod for about a year. I've only been gluten free for three & a half months. I did have my Ab, IgA antibodies tested on Nov. 20th and they were down to a 3. And they were 157 in Sept. 09.

Now I just started taking a new dose (125 synthyroid) been on it for two weeks & I feel horrible. My stomach hurts ( pains on both sides of my abdomen) , very bloated, I feel like I can't eat, anxious, tried and my acid reflux is back. It's the same symptoms I had right before I got diagnosed with celiac. So, I called my doctors & they ordered another antibodies test for yesterday Dec. 16th. This time my Ab, IgA was 67! So, I'm definitely getting glutened! I haven't done anything differently. I don't go out to eat at all & I make everything fresh. Everytime I take it I feel so bloated in the mornings.

Has anyone else have problems with the brand synthriod & felt that it had gluten in it? I called the company twice & they just give me the same answer about them not guaranteeing it's gltuen free. I'm going to call my endo tomorrow & see what else he can give me. I don't have a thyroid so my thyroid med is really important to me. I've been reading so many stories about the generic isn't that consistent. I'm not sure if it's true or not.

What are the guaranteed gluten free thyriod replacement drugs? My endo stats that none of them are guaranteed gluten free? Is that true?

Thanks!

My room mate also has celiac and has to take synthroid. He gets a generic type called Levothyroxin that seems to be safe for him. the Manufacturer is "Mylan." He specifically insists that his thyroid medicine must be gluten free. I don't know if its guaranteed or not, however he is sensitive and hasn't had any problems with this as of yet.

Bea

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Roda Rising Star
Roda
Posted

I take a generic for synthroid also. The generic name is levothyroxine and mine is manufactured by Mylan. I have not had any problem with this and I have been taking the same medicine from this manufacture before and after gluten free. My ttg was over 70 when diagnosed celiac and 6 months later it was down to 10. Also if anyone takes cytomel it is gluten free as is the generic for it liothyronine made by Paddock. I take the generic liothyronine too.

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MaryJones2 Enthusiast
MaryJones2
Posted

Per the FDA website the starch is corn so it should be gluten-free. A lot of people are sensitive to the various dyes and different strengths often have different additives.

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I don't know off the top of my head of a thyroid medication that is known not to be gluten-free.

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Mtndog Collaborator
Mtndog
Posted

I would call the drug company first.

I don't know of any thyroid meds that contain gluten either (I took Armour and now a compounded version). Did you change anything else at all? Think hair and body products (shampoo, moisturizer, lipstick). Even if you bought the same products you always use, did you read the label? I get lazy and forget that shampoo ingredients can change at anytime and have been glutened by this more than once.

Any changes in routine? Could someone have accidentally used your butter, mayo, pb and forgot t tell you? I know it's frustrating- there's so many possibilities.

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Tigercat17 Enthusiast
Tigercat17
  • Author
Posted

Thanks everyone!

My doctor did change my medicine yesterday to Levoxyl ( the brand name). It's made my King Pharmaceuticals. I called the King company yesterday & they told me it's gluten free & they clean their lines all the time. My doctor recommended this to me first & I though it sounded pretty safe. After he seen my Ab IgA levels raised from 3 to 67 in three weeks, he thought it was best to take me off the synthriod. I just started taking it yesterday & I already feel a little better. The pains I've been having in my abdominal area have lessened & I feel like I can eat a little more. I lost 4 pounds in two weeks after taking the syntryiod 125. I haven't done anything differently. I don't eat out & I have a gluten free kitchen. All my hair & beauty products are gluten free. The same day I started taking the new dose of synthriod I felt serve pains later on that evening. Of course I checked everything I ate for that day & everything was gluten free., but I never thought it was the synthroid until after two weeks of just feeling worse & worse. I was having a hard time eating (feeling very full) bloated, anxious, had trouble sleeping & the stomach pains were just constant. I know this was a glutening. And my antibodies raised in three weeks from a 3 to 67!

I know this sounds crazy, but there must have been a way it got contaminated or Abbott is not carefully monitoring their ingredient suppliers. I called them again & they told me the "synthriod is not marketed as gluten free, but they ask all of their suppliers if their product is has gluten in it." This statement doesn't sound very promising. I won't be trusting the Abbott company anymore & other people who are on the brand synthriod should be careful. I had no problems with the 137, but as soon as I switched to the 125 I felt horrible. They also told me the two ingredients in the 125 that are not in the 137 are: FD & C Red 40 and FD & C Yellow #6. I really don't think it was the color ingredients, but I'll keep it in mind & see if I have similar reactions when I digest these ingredients. I was losing weight again & all my symptoms came back from when I was first diagnosed, so I really feel there was a trace amount of gluten in them. I think I might be one of the sensitive ones. I can't drink the Almond Dream from the Dream company either. So, maybe that's why I felt such a strong reaction.

If I continue to start feeling better I'll know for sure it was the synthriod. I'll keep you all posted. Thanks!

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