Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diarrhea In The Middle Of The Night?


LisaaaNoel

Recommended Posts

GottaSki Mentor

Welcome!

 

Yes, your symptoms could be Celiac Disease.  I had abdominal bloating without gas for years and we all have variations of diarrhea or constipation -- some quite serious.  Also of note is Celiac Disease can prevent the production of the enzymes necessary to process dairy.

 

You mentioned your blood tests were negative.  Do you know if your doctor ordered the complete Celiac Antibody Panel?

 

Total Serum IgA

tTG IgA and IgG

EMA IgA

DGP IgA and IgG

 

If you don't already...request written or electronic copies of all medical tests.

 

If the entire panel is negative -- it is time to remove ALL gluten for at least 3 months (six is better) to monitor symptom improvement -- as this is the ONLY test for Non-Celiac Gluten Sensitivity.  NCGS can present with many of the same symptoms as Celiac Disease.  

 

As for the incident you mentioned at Day 3 gluten-free -- it can take time for your system to heal -- thus the need for at least a three month trial.  

 

A food/symptom log is a good idea especially since you have removed Lactose and Gluten along with following FODMAP.

 

Here is a great thread to help you get started living gluten-free:

 

Newbie Info 101 - Celiac Disease - Coping With - Celiac.com Celiac Disease & Gluten-Free Diet Forum

 

Let us know if you have more questions.

 

Good Luck to you :)

  • 3 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EileenaBalerina Newbie

I've suffered with this for a very long time and never knew it was part of celiac. At age 13 I had the very first episode that I can recall.  Much later in life I had the bad peristalsis that accompanies celiac and would suffer for up to an hour after the initial symptoms began accompanying the D.  Mine would courteously wait until later in the mornings as I would get up at 4AM to get ready for work, and then it would burst upon the scene at about 7:30 AM with a vengeance. 

Finally, 17 years ago, I did a search on my computer for causes for D and learned it could be caused by wheat, or celiac most likely.  Afterward I visited my MD who poopoo'd the idea that an adult could possibly have have celiac, her words "That's a children's disease".  She then sent me to gastro for a Sigmo, and it was then labeled IBS.  

The symptoms continued until I got all the glutens out of my diet and then there was mostly quiet in my gut.  Then 10 years ago she sent me back to gastro to have a look at why it kept happening, had both upper & lower GI and the old Doc could not confirm anything as by then there was healing.

Had it been caught back when I was 13, sure the food choices would have been plain foods instead of the cool pies and cookies offered at home, but better health.

BUT, yes Night D does accompany celiac disease.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,091
    • Most Online (within 30 mins)
      7,748

    Michelle24077
    Newest Member
    Michelle24077
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
×
×
  • Create New...