Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired Of This....


GlutenGuy36

Recommended Posts

GlutenGuy36 Contributor

It's bad enough that you have to scrutinize every ingredient in the things you eat but when you buy things that are SUPPOSED to be gluten free and you get glutened by them, it just makes me very irate.

I have only been eating glutino gluten free bagels, and hormels natural choice turkey lunch meat which clearly states no gluten and ditto for the bagels. I was fine with these then I bought some gluten free corn dogs and got sick a day later. Had abdominal pain and tons of mucus in my stool. (sorry tmi). I am so tired of this.

I watch everything that goes into my mouth. I live in a shared home so CC is a big concern. I have my own toaster and I wash off everyplate before I set something on it. I was actually starting to think I may have turned the corner starting December 11th as I actually had my first not so horrible day in over a year and 5 months and now this happenes. My stools had returned to solid but I still have alot of overall pains. When you try so hard to be careful and then you think you are buying safe product it just makes me very angry with this whole thing. I'm so tired if being sick. It seems like everything I put in my mouth makes me feel bad. Sorry for venting ..I'm just tired of it all.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Ugh - that is frustrating. I will say this though. You may want to consider eating less processed foods. I tried to do processed foods in the beginning. Oh my gosh, the misery just continued. Now I eat all whole foods and things I've made myself, and eat out very little, and I'm finally starting to feel better. Hang in there...this is very frustrating, but it's also going to be healthier for you over time...and hopefully, you'll discover things you like even better.

Link to comment
Share on other sites
Korwyn Explorer
It's bad enough that you have to scrutinize every ingredient in the things you eat but when you buy things that are SUPPOSED to be gluten free and you get glutened by them, it just makes me very irate.

I have only been eating glutino gluten free bagels, and hormels natural choice turkey lunch meat which clearly states no gluten and ditto for the bagels. I was fine with these then I bought some gluten free corn dogs and got sick a day later. Had abdominal pain and tons of mucus in my stool. (sorry tmi). I am so tired of this.

I watch everything that goes into my mouth. I live in a shared home so CC is a big concern. I have my own toaster and I wash off everyplate before I set something on it. I was actually starting to think I may have turned the corner starting December 11th as I actually had my first not so horrible day in over a year and 5 months and now this happenes. My stools had returned to solid but I still have alot of overall pains. When you try so hard to be careful and then you think you are buying safe product it just makes me very angry with this whole thing. I'm so tired if being sick. It seems like everything I put in my mouth makes me feel bad. Sorry for venting ..I'm just tired of it all.

Hey GG, I have to say I have had the same experience and wound up in the same place Ciavyn has. I pretty much can't seem to handle any processed foods or ingredients. The more refined it is, the worse I react. A little here and a little there (some every few days) seems to be OK, but more than that and I start having various reactions. A perfect example of this for me is corn. Fresh (or frozen) corn is fine in any amount day after day. Ground corn (corn meal, corn chips) I can have some every two or three days in moderations, but daily and I start reacting. Corn starch and corn syrup are big no-nos. I have the same issue with most starchy carbs and grains. I can have some in small amounts spaced out over a couple days but any more and I react. If I have bread (home-made by me, so I KNOW there is no CC) more that three times in a week I start having issues.

We pretty much live on fresh veggies, fruits, natural sweeteners (raw honey, raw agave, and pure maple syrup) and protein (beef, lamb, pork, chicken, fish, eggs, etc) with some refined/processed foods occasionally. For me any refined sugars are out regardless of the source.

It wasn't until we started this way of eating that my system began to really heal and started showing serious long-term improvement. I still have some ups and downs (down right now which is why I'm typing this instead of sleeping) but significantly more ups.

Link to comment
Share on other sites
dilettantesteph Collaborator

Me too. I got so tired of it that I also stopped eating almost all processed foods. It's the only way for us sensitives.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,077
    • Most Online (within 30 mins)
      7,748

    Graleymary24
    Newest Member
    Graleymary24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I think potato chips can be fine depending on the oil used and the amount of salt on them, so if they help you gain weight you may want to keep them in your routine.
    • Scott Adams
      I also had issues with severe neck and shoulder pain for years, so this may be a symptom of celiac disease.  In case you end up screening negative for celiac disease, approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Sarah Grace
      Many thanks to everyone for the advice received and especially to Knitty Kitty.  I have ordered a one month supply of Benfotiamine and very much look forward to trying it.  The expression "I felt like I was dying" really resonates with me.  I have other symptoms which I didn't mention, such as vertigo and brain fog which are referenced by knitty kitty in her very detailed post. Clearly, there is other stuff that I should be trying, but I can only cope with one thing at a time at present! I will be back to let you know if the Benfotiamine, which should arrive in the next few days, has had any impact.🙂
    • glucel
      OK maybe I will look at future blood test just for historical changes. I am taking b vitamins as I mentioned in my other post to you. Definitely interested in Benfotiaminefor intestinal issues. However I already seem to be feeling some improvement in diverticulosis. Constipation gone but I think that resuming glucosamine may have something to do with that as well as general healing. Beans are antagonizing for me but I eat them anyway every few days in the form of pasta as well as baked beans. gluten-free for 4.5 months so still experimenting. Thanks for the info.
    • glucel
      Thanks @knitty kitty, I read your v b info with much interest for last few months. Here is my weight per event: sept 8, 2022- 181 lbs june 1, 2024 gluten free july 4- 143.5 lbs july31- changed from regular b to methyl folate and b12. oct 8- 150 lbs So weight hopefully coming back albeit very slowly. So probably my villi may be healing and methyl helping although also eating potato chips every few days so that is probably helping too.  Taking 100 mg of b1 along with complex. I took all thiamine maybe 100 or so tablets. Brain fog diminished some and it seems swallowing trouble also diminished. Stopped taking it couple months or so ago and did not notice any reversals. I think I will finally look into bentofothiamine. Also eat 1/2 ounce liver every morning for additional v b support.
×
×
  • Create New...