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Getting Tested For Other Sensitivities


Googles

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Googles Community Regular

Is there a way to get tested for other sensitivities/in tolerances besides gluten besides elimination? Are there tests my doctor can do? I seem to be sensitive to pumpkin :angry: (it gives me heartburn) . I just feel crappy and am unsure if it is related to food or other stress in my life. I have been doing well up until recently. I just feel like a mess now. :( I'm so stressed out. I just want to be able to enjoy food again.


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missy'smom Collaborator

There may be more ways than what we've done but this is our experience. I found an allergist/immunologist who does food testing with the skin prick method. They have a list of about 100 foods. Pumpkin is on the list! Per Dr.'s orders, I eliminated all the foods that showed a reaction and quite to my suprize I felt almost nothing after eating the meals that were absent of the offenders. My tummy was so calm it felt so strange! So, it sounds like you may be right and you may benefit from such testing. We are lucky that our allergist is up to date on gluten as well. Our previous allergist didn't believe in dietary changes unless a life threatening allergy presented.

Googles Community Regular
There may be more ways than what we've done but this is our experience. I found an allergist/immunologist who does food testing with the skin prick method. They have a list of about 100 foods. Pumpkin is on the list! Per Dr.'s orders, I eliminated all the foods that showed a reaction and quite to my suprize I felt almost nothing after eating the meals that were absent of the offenders. My tummy was so calm it felt so strange! So, it sounds like you may be right and you may benefit from such testing. We are lucky that our allergist is up to date on gluten as well. Our previous allergist didn't believe in dietary changes unless a life threatening allergy presented.

Thank you for the information. I will look into it in the new year when my school health clinic can refer me. Do these other intolerances keep my small intestine from healing from the celiac damage?

missy'smom Collaborator

That's a good question and that may be the case for some, but I'm afraid I don't have the answer. You might look up leaky gut syndrome. It seems that's what my problem is. Basically the opposite of your question if I understand correctly. The leaky gut causes these intolerances.

jackay Enthusiast

I had a food and chemical sensitivity blood test done about 18 months ago. I reacted to quite a few things, including severe reactions to chlorine, flouride, apples, beets, beet sugar and safflower oil. At that time, I did not react to oats, wheat, rye or barley. The test results said they are 80% accurate. I went on an elimination/rotation diet and didn't see much improvement. Believe me, I stuck to it 100%.

Six months ago I had a saliva test for milk, soy, egg and gliadin. All were positive. I am very careful about avoiding all of these although I have tried dairy a couple. The most recent time it didn't seem to bother me too much.

I just had an expanded food and chemical sensitivity blood test done and am waiting for the results. I am hoping that I will have more positive results from following the elimination/rotation diet this time around since I will be avoiding gluten. Eliminating gluten, dairy, eggs and soy has helped some but I don't think it is the complete answer for me.

I am wondering what there will be left for me to eat??????????? I am guessing that grapefruit, oranges, bananas, grapes, tomatoes and most nuts will be added to the list of foods to avoid. I'm sure there will be lots of surprises.

I don't know how much to trust the 80% accuracy but it gives me another place to look. I'll post when I get my results.

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    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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