Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Need To Learn More


marycubs

Recommended Posts

marycubs Rookie

Hi -

I am rather new to this board - have not yet been 'officially' diagnosed with celiac disease; had my endoscopy/biopsy last week and am waiting for the results. However, I believe that celiac disease is the correct diagnosis, based on my blood tests, my symptoms, etc. I am still very much in the learning phase !! ;)

My question: from reading these posts, it seems that once you go gluten-free, if you accidently ingest any amount of gluten your body reacts very strongly. Does any one know why that is ? Do our bodies become hypersensitive to the gluten ?? Are there any articles or books that you recommend I read to get me up to speed on this disease ?

Also, did any of you not experience celiac disease until mid life ? While I have dealt with anemia, headaches, fatigue for several years, I did not have any digestive problems until a few years ago (I'm 42 now). Is that unusual ? It seems that many of you have been dealing with full blown celiac disease for years.

thank you ! This site has been very helpful ! :rolleyes:

Mary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debberdee Newbie

I am new to all of this so please excuse me for not answering all of your questions. I simply don't have the answers. What I do know is that you need to read everything you can get your hands on. As far as onset of symptoms, I am 45 and was recently diagnosed. Symptoms do vary! I was diagnosed with fibromyalgia in the early 80's. I have had osteoarthritis since childhood. My gastro problems did not get bad until my late 30's. I also started having symptoms that my doctors thought were MS! Went through a myriad of tests for that until my doc decided to test for celiac disease. NOW, I believe ALL my symptoms were from celiac disease! and that I have had it since childhood! The fatigue itself is a major symtom as well as the anemia. For info go to Celiac.org and also do searches on the web for info on celiac disease. lots of info on the net. I have also read several books. Go to your library and I am certain you should be able to check out books that will be helpful. Good luck to you and to all of us still searching for answers! :rolleyes:

KaitiUSA Enthusiast

I did not react strongly at first but now however I do. The longer you are off of gluten the more sensitive to it you become.

Your body is used to not having gluten then you have gluten and are giving it something it does not tolerate and your body will let you know about it.

Some people however just never get symptoms so it depends on the person.

Not all people have digestive symptoms and you do not have to have digestive symptoms to have celiac...you don't have to have any symptoms at all.

Anemia, fatigue, and what you named are all symptoms of celiac. There are over 200 symptoms that can be involved with celiac and not everyone had the same ones.

lovegrov Collaborator

Sensitivity after going gluten-free depends on the person. I never have gotten more sensitive.

richard

tarnalberry Community Regular

I haven't gotten signficantly more sensitive, but some. (Then again, if you walk around with your nose stuffy all day, do you notice it getting a little more stuff? Not nearly so much as if you nose clears, and then gets a little stuff.)

I was dx'ed at 24, and may have had it for two years or so prior to that, but I don't believe I had it in childhood, but had it triggered due to a long bout of repeated respiratory infections and the subsequent treatment.

marycubs Rookie

Thanks for the replies

I just heard my results from the endoscopy - and I am now confirmed with celiac disease.

I'll have to read and learn to be gluten-free and I hope for better health in the near future !

:)

Mary

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,902
    • Most Online (within 30 mins)
      7,748

    Amazingwhale789
    Newest Member
    Amazingwhale789
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
    • trents
      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying finding that is commented on in the post scope/biopsy notes when people are positive for celiac disease. 
    • Tyoung
      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs or something entirely different? Thank you!!
    • plumbago
      The last time my vitamin D was very low, according to a lab test, was before I was diagnosed with celiac disease. I've been supplementing ever since, and now the numbers on the lab tests are within their normal ranges, oftentimes way above. I've also been supplementing with methylcobalamin (B12) since I was low before diagnosis in 2010, and now I'm fine. I'm surprised I ever requested a folate level, but I did, in 2019. Result 9.4 ng/mL (range >3.0).    
×
×
  • Create New...