Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain Pills/Anti Inflammatory For Celiacs?


mysecretcurse

Recommended Posts

mysecretcurse Contributor

So I noticed for awhile now that every time I got my period I got gluten like symptoms... I began to connect it to taking Motrin, because the same things happened other times I took Motrin (I don't often, but the occasional headache, etc). So then I looked and found out Motrin (which I'd long ago put on the "safe" list, before I knew I had other sensitivities aside from gluten) contains CORN STARCH. *sigh* does it ever end? No wonder I've been feeling ill and having breakouts whenever I took this stuff.

My problem is now I'm in terrible pain! :( I started my period today and have the most horrible cramps. Usually it takes 4+ Motrin to even dull the pain. Heating pad and lots of water is helping a little but it's still really bad. Is there anything natural I can do for this? It seems like every major brand of painkiller has something Im sensitive to in it! I'm free of gluten, corn, soy, dairy, and chickpeas. Also any forms of corn like corn starch, dextrose, maltodextrin, etc. Give me just as bad a reaction as gluten..

:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DownWithGluten Explorer

So I noticed for awhile now that every time I got my period I got gluten like symptoms... I began to connect it to taking Motrin, because the same things happened other times I took Motrin (I don't often, but the occasional headache, etc). So then I looked and found out Motrin (which I'd long ago put on the "safe" list, before I knew I had other sensitivities aside from gluten) contains CORN STARCH. *sigh* does it ever end? No wonder I've been feeling ill and having breakouts whenever I took this stuff.

My problem is now I'm in terrible pain! :( I started my period today and have the most horrible cramps. Usually it takes 4+ Motrin to even dull the pain. Heating pad and lots of water is helping a little but it's still really bad. Is there anything natural I can do for this? It seems like every major brand of painkiller has something Im sensitive to in it! I'm free of gluten, corn, soy, dairy, and chickpeas. Also any forms of corn like corn starch, dextrose, maltodextrin, etc. Give me just as bad a reaction as gluten..

:(

Ahhhh yes. The dilemma of period cramps. I have a similar problem in that I'm in a quandry. I have a post a few pages back asking about Pamprin. The site says they do not have gluten in them, but I just wanted confirmation from either people on this site or from them and haven't gotten either yet. I might just jump in and try it next month. But I'm not sure if that would help you with corn starch and all that.

But anyway my problem with Motrin was the incredible heartburn it gave me. Doctors prescribed Vioxx for me years ago, and it worked great, but now it's off the market. So they told me to take 3 motrin instead of two. And, yeah..like you, it would take usually 3-4 to get it to help. It was not good. After about 5 years of this, I would get heinous and intense heartburn that intensified into what I believe was a near ulcer, which they gave me Nexium for blah blah. But I won't touch Ibuprofen with a 10 foot pole now.

So then they suggested Celebrex, but that's also a NSAID like ibuprofen and I didn't feel comfortable with that either. My friend got an ulcer from Celebrex. It just seemed counter intuitive. I got some but...I had some side effects that gave me concern after taking it for a bit (some light blood in the toilet...maybe it wasn't the Celebrex but I just didn't want to risk). So...they suggested birth control which they tried to give me when I was 13. I gave in and now am taking that...but there are still cramps around that time (different though...feels more like pulled muscles now versus the burning searing pain of before) WHICH is why I was hoping Pamprin might be okay, to work with that. midol makes me jittery and weird. The hot pads never worked well for me, and that doesn't help when you're at work and stuff anyway :/

So long story short...I feel your pain (literally). We go through all these gyrations trying to find something that's okay and we still suffer. So if anyone has suggestions, I'd like to hear them! And if anyone has successfully taken pamprin, let me know :P

I was on the verge of asking my doctor for Tylenol with codeine for cramps. I had leftover codeine from before for something else, and it actually dulled the pain. Also a sedative. But I was afraid to just go in and ask for that, might think I'm drug peddling or pulling a Michael Jackson or something. But...maybe you could get that if you explain your dilemma? I tried a gynecologist, general practioner and even a GI person (after explaining the heartburn/gastritis response). They all said Celebrex (which has GI side effects) or birth control. So I guess that's what we're left with. ...eh.

mysecretcurse Contributor

Thanks for the reply! I've basically been riding it out... it's okay on a day off like I was lucky enough to start on today, but I am concerned about when I get my period and have to work... I can't work in that sort of pain. One good thing though, it seems when I'm not glutened/corned/soyed (lol) or whatever during the month, my period that month is much less cramping. I think the severe periods come from the autoimmune system doing something to the hormone balance... so I'm interested to see if I stay off all the allergens and the pain pills, if maybe it will sorta put the cycle into reverse to where I wont have to take pain pills at all! Will report back how my next period goes.

I do agree that Nsaids are horrible, especially for people with leaky gut issues since they basically destroy the gut. So corn or no corn, I need to get off them either way. I guess it's a blessing in disguise.

Just a general FYI for anyone interested, Tylenol unfortunately also contains corn starch. :(

OptimisticMom42 Apprentice

What about liquids? Maybe a liquid med made for kids? Or are they all corn syrup?

mysecretcurse Contributor

Tylenol Liquid:

Active Ingredient (in each 15 ml = 1 Tablespoon): Acetaminophen (500 mg). Inactive Ingredients: Citric Acid, Corn Syrup, D&C Red 33, FD&C Red 40, Flavor, Polyethylene Glycol, Propylene Glycol, Purified Water, Saccharin Sodium, Sodium Benzoate, Sorbitol.

Ug. :(

Well I've survived the worst day of my period without any pain pills. Hopefully it's all up from here..

tarnalberry Community Regular

You may want to talk to your doc about getting a prescription for the pain reliever of your choice (acetaminophen, ibuprofen, naproxyn sodium, etc.) for a compounding pharmacy that can make it out of ingredients that you can tolerate. May be more expensive, but may also be the only way to avoid something as ubiquitous as corn.

(Also, consider taking additional calcium/magnesium to help with the cramping. It has to be taken all month long, not just as a pain reliever, but can help for many people.)

DownWithGluten Explorer

I might have to try that about calcium/magnesium thing.

And yes, asking the doctor for painkiller might help as person above me suggested, but again I went to three different kinds of doctors and they all said "birth control or Celebrex." I made a slight noise after a second appointment about tylenol codeine and the doc mentioned how that was a narcotic and wouldn't be suitable for working days anyway and that was the end of that. And ibuprofen = bad after a while. So UGH.

Mysecretcurse, I remember when I used to have gluten attacks more frequently, before I knew what I had, sometimes having my period would stir those gluteny-pain feelings. Maybe it is all connected. And I didn't know that about tylenol and corn starch. You're not missing much as far as headache or general pain relief, I don't think...Tylenol doesn't do much of anything for me. :lol: But if it was spiked with codeine, it might. oh well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jana315 Apprentice

I've been on the generic version of Voltaren for several months now for back pain without adverse gastro side-effects. It may be worth looking into though it is still an NSAID. Short of that, try looking into herbal supplements that may help ease your menstrual pain - there's a lot out there though I don't know the specifics of them I was using them for fertility several years ago.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748

    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.