Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain Pills/Anti Inflammatory For Celiacs?


mysecretcurse

Recommended Posts

mysecretcurse Contributor

So I noticed for awhile now that every time I got my period I got gluten like symptoms... I began to connect it to taking Motrin, because the same things happened other times I took Motrin (I don't often, but the occasional headache, etc). So then I looked and found out Motrin (which I'd long ago put on the "safe" list, before I knew I had other sensitivities aside from gluten) contains CORN STARCH. *sigh* does it ever end? No wonder I've been feeling ill and having breakouts whenever I took this stuff.

My problem is now I'm in terrible pain! :( I started my period today and have the most horrible cramps. Usually it takes 4+ Motrin to even dull the pain. Heating pad and lots of water is helping a little but it's still really bad. Is there anything natural I can do for this? It seems like every major brand of painkiller has something Im sensitive to in it! I'm free of gluten, corn, soy, dairy, and chickpeas. Also any forms of corn like corn starch, dextrose, maltodextrin, etc. Give me just as bad a reaction as gluten..

:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DownWithGluten Explorer

So I noticed for awhile now that every time I got my period I got gluten like symptoms... I began to connect it to taking Motrin, because the same things happened other times I took Motrin (I don't often, but the occasional headache, etc). So then I looked and found out Motrin (which I'd long ago put on the "safe" list, before I knew I had other sensitivities aside from gluten) contains CORN STARCH. *sigh* does it ever end? No wonder I've been feeling ill and having breakouts whenever I took this stuff.

My problem is now I'm in terrible pain! :( I started my period today and have the most horrible cramps. Usually it takes 4+ Motrin to even dull the pain. Heating pad and lots of water is helping a little but it's still really bad. Is there anything natural I can do for this? It seems like every major brand of painkiller has something Im sensitive to in it! I'm free of gluten, corn, soy, dairy, and chickpeas. Also any forms of corn like corn starch, dextrose, maltodextrin, etc. Give me just as bad a reaction as gluten..

:(

Ahhhh yes. The dilemma of period cramps. I have a similar problem in that I'm in a quandry. I have a post a few pages back asking about Pamprin. The site says they do not have gluten in them, but I just wanted confirmation from either people on this site or from them and haven't gotten either yet. I might just jump in and try it next month. But I'm not sure if that would help you with corn starch and all that.

But anyway my problem with Motrin was the incredible heartburn it gave me. Doctors prescribed Vioxx for me years ago, and it worked great, but now it's off the market. So they told me to take 3 motrin instead of two. And, yeah..like you, it would take usually 3-4 to get it to help. It was not good. After about 5 years of this, I would get heinous and intense heartburn that intensified into what I believe was a near ulcer, which they gave me Nexium for blah blah. But I won't touch Ibuprofen with a 10 foot pole now.

So then they suggested Celebrex, but that's also a NSAID like ibuprofen and I didn't feel comfortable with that either. My friend got an ulcer from Celebrex. It just seemed counter intuitive. I got some but...I had some side effects that gave me concern after taking it for a bit (some light blood in the toilet...maybe it wasn't the Celebrex but I just didn't want to risk). So...they suggested birth control which they tried to give me when I was 13. I gave in and now am taking that...but there are still cramps around that time (different though...feels more like pulled muscles now versus the burning searing pain of before) WHICH is why I was hoping Pamprin might be okay, to work with that. midol makes me jittery and weird. The hot pads never worked well for me, and that doesn't help when you're at work and stuff anyway :/

So long story short...I feel your pain (literally). We go through all these gyrations trying to find something that's okay and we still suffer. So if anyone has suggestions, I'd like to hear them! And if anyone has successfully taken pamprin, let me know :P

I was on the verge of asking my doctor for Tylenol with codeine for cramps. I had leftover codeine from before for something else, and it actually dulled the pain. Also a sedative. But I was afraid to just go in and ask for that, might think I'm drug peddling or pulling a Michael Jackson or something. But...maybe you could get that if you explain your dilemma? I tried a gynecologist, general practioner and even a GI person (after explaining the heartburn/gastritis response). They all said Celebrex (which has GI side effects) or birth control. So I guess that's what we're left with. ...eh.

mysecretcurse Contributor

Thanks for the reply! I've basically been riding it out... it's okay on a day off like I was lucky enough to start on today, but I am concerned about when I get my period and have to work... I can't work in that sort of pain. One good thing though, it seems when I'm not glutened/corned/soyed (lol) or whatever during the month, my period that month is much less cramping. I think the severe periods come from the autoimmune system doing something to the hormone balance... so I'm interested to see if I stay off all the allergens and the pain pills, if maybe it will sorta put the cycle into reverse to where I wont have to take pain pills at all! Will report back how my next period goes.

I do agree that Nsaids are horrible, especially for people with leaky gut issues since they basically destroy the gut. So corn or no corn, I need to get off them either way. I guess it's a blessing in disguise.

Just a general FYI for anyone interested, Tylenol unfortunately also contains corn starch. :(

OptimisticMom42 Apprentice

What about liquids? Maybe a liquid med made for kids? Or are they all corn syrup?

mysecretcurse Contributor

Tylenol Liquid:

Active Ingredient (in each 15 ml = 1 Tablespoon): Acetaminophen (500 mg). Inactive Ingredients: Citric Acid, Corn Syrup, D&C Red 33, FD&C Red 40, Flavor, Polyethylene Glycol, Propylene Glycol, Purified Water, Saccharin Sodium, Sodium Benzoate, Sorbitol.

Ug. :(

Well I've survived the worst day of my period without any pain pills. Hopefully it's all up from here..

tarnalberry Community Regular

You may want to talk to your doc about getting a prescription for the pain reliever of your choice (acetaminophen, ibuprofen, naproxyn sodium, etc.) for a compounding pharmacy that can make it out of ingredients that you can tolerate. May be more expensive, but may also be the only way to avoid something as ubiquitous as corn.

(Also, consider taking additional calcium/magnesium to help with the cramping. It has to be taken all month long, not just as a pain reliever, but can help for many people.)

DownWithGluten Explorer

I might have to try that about calcium/magnesium thing.

And yes, asking the doctor for painkiller might help as person above me suggested, but again I went to three different kinds of doctors and they all said "birth control or Celebrex." I made a slight noise after a second appointment about tylenol codeine and the doc mentioned how that was a narcotic and wouldn't be suitable for working days anyway and that was the end of that. And ibuprofen = bad after a while. So UGH.

Mysecretcurse, I remember when I used to have gluten attacks more frequently, before I knew what I had, sometimes having my period would stir those gluteny-pain feelings. Maybe it is all connected. And I didn't know that about tylenol and corn starch. You're not missing much as far as headache or general pain relief, I don't think...Tylenol doesn't do much of anything for me. :lol: But if it was spiked with codeine, it might. oh well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jana315 Apprentice

I've been on the generic version of Voltaren for several months now for back pain without adverse gastro side-effects. It may be worth looking into though it is still an NSAID. Short of that, try looking into herbal supplements that may help ease your menstrual pain - there's a lot out there though I don't know the specifics of them I was using them for fertility several years ago.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.