Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Gluten Free


CoCo-Rojo

Recommended Posts

CoCo-Rojo Newbie

I've been gluten free for a year which has made it the best year of my life! Aside from accidentally being served gluten at restuarants 3 or 4 times, I've been able to easily steer clear of gluten.

However, today I ate soup (a brand I've never eaten before) that said "No Gluten" on the label and within an hour I KNEW I had eaten gluten! Ugh! Now I'm in for 2 days of... well, you know.

Has anyone else ever eaten something that said it was gluten-free, but you KNOW it had gluten in it anyway? Please tell me I'm not crazy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

That's how I feel about Amy's frozen dishes. They gluten and dairy free, two of my big no-no's, yet I feel like crap afterwards, and have all the symptoms of having eaten gluten. You are definitely not alone!

Ahorsesoul Enthusiast

Many times, probably because of cross contamination issues.

CoCo-Rojo Newbie

Ciavyn, I've never had a problem with Amy's. I eat it often, but I only eat the Mexican dishes.

Today it was Dr. McDougall's Right Foods Tortilla Soup that got me. I usually wouldn't eat a pre-packaged food with as many ingredients as this soup. "Natural Flavorings" at the end of the ingredient list always makes me nervous. But this one said "no gluten" so I trusted it.

So what does this mean? Should I not trust when a food or restaurant says "gluten free?" Do most of you just eat natural foods? I find I eat a lot more fruit now that I'm gluten free. When I eat a strawberry, I know there is no wheat hiding in it!

AKcollegestudent Apprentice

Ciavyn, I've never had a problem with Amy's. I eat it often, but I only eat the Mexican dishes.

Today it was Dr. McDougall's Right Foods Tortilla Soup that got me. I usually wouldn't eat a pre-packaged food with as many ingredients as this soup. "Natural Flavorings" at the end of the ingredient list always makes me nervous. But this one said "no gluten" so I trusted it.

So what does this mean? Should I not trust when a food or restaurant says "gluten free?" Do most of you just eat natural foods? I find I eat a lot more fruit now that I'm gluten free. When I eat a strawberry, I know there is no wheat hiding in it!

I can eat the prepacked boxed soups that are gluten free by McDougall, but I too had a similar reaction to the tortilla soup. My solution has been to cook as much of my own food as possible; for me, it's easier to make soups and stews in bulk than to buy prepacked anyway. I also have a similar issue with fruit--I ate nearly an entire flat of clementines by myself in about two days over Christmas.

LDJofDenver Apprentice

I can eat the prepacked boxed soups that are gluten free by McDougall, but I too had a similar reaction to the tortilla soup. My solution has been to cook as much of my own food as possible; for me, it's easier to make soups and stews in bulk than to buy prepacked anyway. I also have a similar issue with fruit--I ate nearly an entire flat of clementines by myself in about two days over Christmas.

Heck, yes! I've come to learn that anything can say "GLuten Free" on the label if they don't add gluten (wheat , rye or barley). However, many many supposed gluten free grocery items say right on the label that it's processed on equipment that also processes wheat, etc.

Now I look for the gluten free items that are certified,with the little gluten-free or some other celiac certification symbol on them.

It is frustrating, when you're trying to be so careful, I know. I hate set-backs!

mysecretcurse Contributor

I no longer eat anything processed for this reason.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      33

      What should I do with these test results?

    2. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      10

      SkinSafe

    3. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      10

      SkinSafe


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,333
    • Most Online (within 30 mins)
      7,748

    Susan5940
    Newest Member
    Susan5940
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Itsabit
    • Itsabit
    • trents
      From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high high.
    • Itsabit
      Thank you for your reply. I’m beginning to think of iodine as another culprit in this, as much as I fear it. I will say my rash is extreme and diffuse - it’s everywhere! I first had it on both sides of my neck in the summer of 2023. My PCP and dermatologist at the time, thought it was a reaction to jewelry I was wearing, even though I had been wearing the same necklaces for literally years with no reaction. The dermatologist at the time repeated over and over again that “allergies are acquired.” Which I knew. But I was not reacting to any other jewelry I was wearing. So it didn’t make any sense to me that it would only be from my necklaces. Anyway, it abated on it’s own. Only to come back with a vengeance months later - and I had not worn any necklaces at all. And the rash involved more area. I was put on Prednisone (oral steroid) taper and it worked well, and the itch and eventually the rash went away. Another trip to a different dermatologist at that time, prior to starting the Prednisone, told me to change all of my hygiene products like soap and shampoo, and to slather on Vaseline. None of which worked, hence the Prednisone. Needless to say, the itch and subsequent rash returned - and now spread everywhere, not just the hollows on both sides of my neck. It’s there, on my upper chest and left breast, both upper arms front and back, and elbows, my entire back, down both of my hips and buttocks and the front of my right thigh. Now the back of that right thigh is starting to itch as well. Also my lower right forearm and middle knuckle on my left hand since going gluten free. I’m just itching everywhere all the time. It keeps me awake, or wakes me up when I do fall asleep. I’m trying my best not to scratch, but it’s nearly impossible! I’ve been using a dry washcloth to rub instead of scratching. And I have used cool wet washcloths which help, but only lasts for a few minutes before starting up again. I’m pretty much at my wit’s end. Just waiting for something to indicate what’s really going on so I can do SOMETHING to stop it! 
    • Itsabit
      Reply to Russ H, Thank you for your input. As a nurse for 46 years I was aware of much of this. However, as a new member to dermatitis herpetiformis, I have been reading and researching everything I can about it in order to educate and help myself. I was hoping that the oral Dapsone would help to alleviate the itching. I knew the rash would take longer to abate. Instead of relief from the Dapsone, I had adverse reactions so had to stop it. After 2 months on it, if hadn’t helped with the itching at all, and I understand it usually helps in the first few days if it’s going to. My itch and rash actually got worse on the Dapsone and with going gluten free - which lead me to question whether I was getting glutined from other products I am using. It’s like a huge puzzle trying to put all these pieces together to somehow make it fit and make sense. Right now, myself and my doctor are perplexed. 
×
×
  • Create New...