Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge Help And Dna Test Question


kthies2

Recommended Posts

kthies2 Apprentice

Oh thank goodnes for this forum! I am lost and need some direction please!

I finally found a doctor who seems to know what celiac disease is. Thank goodness. I'm still not sure I have it but want to find out for sure. I have long been avoiding all food with gluten and lactose so he says I need to take the gluten challenge so we can test for it. To help ease any discomfort that eating gluten again may cause, and to ease the pain in case it isn't celiac disease and its IBS, he gave me Apriso medication to take once daily (only 0.375g dose).

Questions:

1) does anyone have an opinion on this medication?

2) how do I find a list of high gluten foods so I can consume enough each day while on the test without having to chew bread all day long? whats the biggest bang for my buck with total health in mind. I'm trying to manage my weight so not trying to tip the scale while doing this.

3) do you think I should take the DNA test and how does that work? Can that test rule out celiac disease for sure? Feels like that might be easier to do but the doc says it only tells you your liklihood of having celiac disease but can't tell you anything definite.

HELP!!!!

Thanks to anyone who can give me some guidance! Much appreciated!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

Doctor is right, the DQ test is mostly about risk.

Do any of your family have celiac? That is the highest risk, next is having a postive test for DQ2 or 8.

I baked bread with added wheat gluten to increase the gluten content.

If you read the protein content of flour and bread, you can assume that 90% is gluten. So there is no food higher i gluten than bread or items baked with wheat flour, and the bread that risis highest I guess has most gluten, but then you must eat more slices since it is so light...you just have to weigh some samples and figure out how much gluten is in each type of bread.

Pasta has lots of gluten too.

I actually got more hungry the more bread etc I ate...but I did not feel too bad. My insides felt a bit like there was some barb wire but not too bad. Others have pains all the time.

mushroom Proficient

Before I knew I was gluten intolerant I had to quit eating pasta because of the digestive problems I had with it. I did not have these problems with bread at the time. I think perhaps the gluten might be denser in pasta than in bread. Just one opinion. I used to note all the athletes who did carb loading before a race with pasta, and thought, how could they compete after that?? :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    2. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    3. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    4. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    5. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,337
    • Most Online (within 30 mins)
      7,748

    Marleyj23
    Newest Member
    Marleyj23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Richardo
      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
×
×
  • Create New...