Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hopeful

martha37

By martha37
in Dermatitis Herpetiformis

Recommended Posts

martha37 Newbie
martha37
Posted

Hi. I have been gluten-free for about a year. The rash is HORRID. :angry: No biopsy was done right, and no doctor has known what to do---though I have spent lots trying. :unsure:

For the first time, reading these blogs, I have hope of somehow finding the answer. :) I don't know anyone else either who has this rash, so it is nice to have this place to learn and share.

Thanks to all of you out there trying to find the 'cure' with me. I would love to wear a shorter skirt, or deck pants, or---beyond my imagination right now---a swimsuit.

Thanks again. Am going to try the med. suggested that my doctor will have to check out and call the company direct.

stay warm.

martha

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Hi. I have been gluten-free for about a year. The rash is HORRID. :angry: No biopsy was done right, and no doctor has known what to do---though I have spent lots trying. :unsure:

For the first time, reading these blogs, I have hope of somehow finding the answer. :) I don't know anyone else either who has this rash, so it is nice to have this place to learn and share.

Thanks to all of you out there trying to find the 'cure' with me. I would love to wear a shorter skirt, or deck pants, or---beyond my imagination right now---a swimsuit.

Thanks again. Am going to try the med. suggested that my doctor will have to check out and call the company direct.

stay warm.

martha

Martha, if you have been on the diet for a year and still have active lesions you have gluten sneaking in somewhere. Before going on a med please recheck all you are eating, make sure you are not getting CC'd in your kitchen, check all scripts and supplements and also check all your toiletries and lotions etc. If you have DH and are completely gluten free the outbreaks should stop without meds.

dh mom Newbie
dh mom
Posted

Martha, if you have been on the diet for a year and still have active lesions you have gluten sneaking in somewhere. Before going on a med please recheck all you are eating, make sure you are not getting CC'd in your kitchen, check all scripts and supplements and also check all your toiletries and lotions etc. If you have DH and are completely gluten free the outbreaks should stop without meds.

Hi, Although you could be correct in your anwser to Martha, it is NOT necessarily true the the DH rash will stop when gluten is eleminated. Even if you are perfect on your diet and environmental items, the dh rash CAN appear. This was explained to us at the Center for Blistering Skin Diseases in Boston, Ma. run out of Baptist Hospital.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,044
    • Most Online (within 30 mins)
      7,748
    Teddyboss
    Newest Member
    Teddyboss
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sarah Marie
      Bloodwork Help for my Teen

      By Sarah Marie · Posted

      Is it worth it to remove gluten before they potentially do an endoscopy & biopsy? I thought I read it’s best to be eating gluten for 3 months prior to it. So hoping they have a cancellation and call us in sooner. 
    • LCO
      Travel Abroad

      By LCO · Posted

      Thank you very much!
    • Aleda D
      Celiac Maybe a Possibility?

      By Aleda D · Posted

      Thank you for the warning. I get blood tests twice a year to check where I stand with the vitamins I regularly take, so I appreciate the extra reminder. I know some vitamins don’t build up but now I will watch the B6 for sure. 
    • trents
      High dosage of B12 gave me life.

      By trents · Posted

      I think you would do well to take a high potency B-complex such that you get more balanced dosage across the spectrum of B vitamins. They work in concert.
    • Scott Adams
      Travel Abroad

      By Scott Adams · Posted

      Around 5 years ago I visited Tokyo, and luckily had my sister in law with me who is from there, otherwise it would have been more difficult. The bottom line is that there are tons of naturally gluten-free food options there, but you need to be able to communicate your needs to restaurant staff. Here is a gluten-free restaurant card for American visitors in Tokyo. It includes a request for a gluten-free meal and mentions common gluten-containing ingredients to avoid, like soy sauce and miso. English: Thank you. Japanese:   You can also download the Google Translate app, and besides being able to help you speak with people there about this, it has a camera app that translates Japanese text to English in your camera, so you can use it when shopping in a supermarket.
×
×
  • Create New...