Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Travel For A Funeral

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I am probably soon going to be traveling to my grandfather's funeral. I am trying to figure out how to deal with food as I will not be able to travel easily on my own and I have no idea what will be happening with food and meals. I have a very large extended family and so meals will probably be at restaurants that will seat all of us. But until this happens I don't know what is going to happen. When we eat at my grandparent's house I wont be able to guarantee gluten free food or that I can make it to a grocery store (there isn't one close and everyone shares cars) to get food for myself. This will be my first time traveling for more than a day since I was diagnosed. I know there is going to be a lot of stress for everyone. I've never been through this before and then with trying to figure out the gluten free part of it just makes it worse. While some people know, I don't feel that I can do anything to suggest where we eat and what not. I really can't get sick because I will most likely be missing school already and can't take any more time off. Any advice would be much appreciated. I hate first times of doing things.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

I am probably soon going to be traveling to my grandfather's funeral. I am trying to figure out how to deal with food as I will not be able to travel easily on my own and I have no idea what will be happening with food and meals. I have a very large extended family and so meals will probably be at restaurants that will seat all of us. But until this happens I don't know what is going to happen. When we eat at my grandparent's house I wont be able to guarantee gluten free food or that I can make it to a grocery store (there isn't one close and everyone shares cars) to get food for myself. This will be my first time traveling for more than a day since I was diagnosed. I know there is going to be a lot of stress for everyone. I've never been through this before and then with trying to figure out the gluten free part of it just makes it worse. While some people know, I don't feel that I can do anything to suggest where we eat and what not. I really can't get sick because I will most likely be missing school already and can't take any more time off. Any advice would be much appreciated. I hate first times of doing things.

ok, so prepare, prepare, prepare!

Go to your market and stock up on Lara Bars, apples, nuts, all kinds of potable snacks that you can take with you in an extra bag.

With extended family around, I am certain that someone could drive you to a local store to get some fresh produce: bannanas , grapes, etc to keep you going.

Research the gluten free dining options before you go:

google gluten free in xxx city, or post the city here and ask for suggestions.

Figure out who is going to be deciding where to eat. If they know of your issues, it shouldn;t be a big deal. The host can say "here are our choices....." That way, you know you can have a safe meal, and no one else is put out by having to do the research. Almost any restaurant should be able to accomodate a large family gathering.

Always have your snacks so you don't starve. You can always order a baked potato, then take some of those butter pats wrapped in foil with you. You can buy those at many markets. Then there's no risk of cc. Remember you can always ask for a plain piece of meat cooked in its own pan with salt and pepper.

Stay calm,be prepared and you'll be just fine. You may have a few peanut butter and banana meals, but you'll be spending quality time with family, remebering a loved one :P

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Hopefully you've let the family and friends you will be staying with that you have to eat Gluten free. This is not the time to surprise them when you arrive.

ravenwoodglass Mentor
ravenwoodglass
Posted

I am sorry about the loss of your Grandfather. As stated prepare to bring as much as you can with you. If your traveling by car bring a cooler with a few frozen gluten-free dinners you can zap if needed. You might also want to do a search and see if there is a Health Food store nearby so you can give them a call and see what gluten-free stuff they might carry. I hope the trip goes smoothly for you. Traveling with celiac can be tricky but with a bit of preperation it should go okay.

lynnelise Apprentice
lynnelise
Posted

First off I'm sorry for your loss!

The other posters had great ideas. Larabars and Kind bars have saved me many times. Fruit is easily transported. Also I keep Thai Kitchen and A Taste of Thai entrees on hand for emergency travel. They don't require refrigeration and you can just add water and microwave! Of course they are low on protein so you might want to supplement lean meats, nuts, ect.

Googles Community Regular
Googles
Posted
  • Author

My grandmother knows about my celiac and actually has a friend who has it also. So she is not totally unaware of the requirements. However, I don't know how much of my extended family knows about it. I didn't tell them but my dad may have. Packing food is going to be hard as I will have to fly to get there. I find the ongoing stress hard of not knowing what is going to happen with his health and what will be happening with food. As I just got glutened from food that said gluten free on the box my tollerance for ambiguity in food is low. Thanks for all the support and I will use your suggestions as I can.

ravenwoodglass Mentor
ravenwoodglass
Posted

My grandmother knows about my celiac and actually has a friend who has it also. So she is not totally unaware of the requirements. However, I don't know how much of my extended family knows about it. I didn't tell them but my dad may have. Packing food is going to be hard as I will have to fly to get there. I find the ongoing stress hard of not knowing what is going to happen with his health and what will be happening with food. As I just got glutened from food that said gluten free on the box my tollerance for ambiguity in food is low. Thanks for all the support and I will use your suggestions as I can.

It sounds like your best bet may be scoping things out before you go. Perhaps if you tell us the city someone may live there or be able to find out safe stores and restaurants for you. I hope your grandfather takes a turn for better and his health improves.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,817
    • Most Online (within 30 mins)
      7,748
    Terry49
    Newest Member
    Terry49
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Got it. Thanks Scott. I'll set up an appointment with a GI after the holidays and get all the celiac disease screening done. Thanks to this amazing forum and to all who have answered my question, I now know what my next steps are.
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Aah it sucks that there's no definitive way to confirm NCGS or celiac. I've found a GI clinic that is covered by my insurance and I'll contact them after the holidays to setup an appointment. I hope to get some sort of clarity with further tests. 
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Thanks @knitty kitty. I didn't know about thiamine deficiency before you had mentioned it. I'm doing more research into what it is and how I can test for that deficiency. Is Vitamin B1 test the best way to find it? I saw that there is another test: Erythrocyte transketolase activity coefficient (ETKAC) assay to test for thiamine deficiency but I'm not sure how that test is done. Is that something I can take on my own or do I need GI referral. If it does turn out that I'm thiamine deficient, does that confirm that I have celiac disease or could it just mean that I have not been consuming Vitamin B1 rich food and once I address that with a supplement or food, I would no longer be thiamine deficient? Also full disclosure, I'm a vegetarian and only last year I found out that my Vitamin D level was very low. It was 3.7 ng/ml and the ideal range is >29.9 ng/ml. After a year of taking multivitamin supplement, my Vitamin D level has gone up to 27 ng/ml. Though it's better than 3.7 ng/ml, it's still below the range. I'm not sure for how long my Vitamin D level was around 3.7 ng/ml before 2023 as I didn't have my Vitamin D test taken prior to that. My doctor also wanted to check my Vitamin B12 level as I might not be getting enough of it from vegetarian sources. When I took that test last year, Vitamin B12 was 247 pg/ml and ideal range is 200-1100 pg/ml. So it's still within the range though it's on the lower end of the ideal range. I also have recently started taking vitamin b-complex tablets daily. I've never checked other Vitamin B levels including Vitamin B1. Do you know if such a very low level of Vitamin D and moderately lower level of Vitamin B12 would cause celiac disease or may contribute to some of the symptoms I've been experiencing? Regarding the DNA test to test celiac genes, are you referring to HLA DQ2 and HLA DQ8 tests? As soon as I got the result where my IgG was above range, I had ordered the "HLA Typing for Celiac Disease" test in Quest Diagnostics which measures HLA DQ2 and HLA DQ8. The test is 2 weeks from now and I'll post my results here once I receive them.  
    • Russ H
      Grain fed cow milk vs 100% Grass fed cow milk

      By Russ H · Posted

      Small amounts of gliadin are detectable in some samples of human breast milk but these are at too low a level to cause symptoms. No gliadin has been detected in the beef of grain-fed cattle.   https://pmc.ncbi.nlm.nih.gov/articles/PMC5622696/
    • knitty kitty
      Years of testing - no real answers

      By knitty kitty · Posted

      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
×
×
  • Create New...