Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We'Ll All Be Eating Gluten In About 15 Minutes...Sorry


camprunner

Recommended Posts

gabby Enthusiast

Thermos! Thermos! Thermos! I have several in various sizes (tall, thin, wide, short, big, little) and I take one or two along whenever I go to a dinner or someone's house. I fill it with whatever I feel like eating: sometimes it has hot soup, or hot stew or hot risotto, chili, creamy polenta and sauce, gluten-free noodles and sauce, etc. Everything will stay hot and delicious for around 8 hours. I will also bring a smaller thermos that has my own hot coffee or hot tea in it. I always explain ahead of time to people that I'm bringing my own food.

If I want to eat something cold, then I bring my lunch-sized thermos bag that will keep things cold for a good 4-6 hours. In there I'll stash cold drinks, or cold chicken salad/tuna salad/gluten-free noodle salads, veggies and dip, etc.

I always carry a knapsack with me that is always stuffed with things I might need including: fresh washed fruit, nuts, safe popcorn, etc. Plus I always carry my own little stash of cutlery, small plastic plates, safe packets of salt/pepper/condiments/sugar, a bottle of water. If I need any of these things, I just get them out. If I don't need these things, I leave them in the bag and use them at a later date. The point is that I'm always prepared. The first 2 or 3 times people see you drag out your knapsack, they'll comment on the strangeness of it. But by the 4th or 5th time, they won't even blink an eye. Seriously.

Hope this helps!

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator

I do not necessarily expect the world to revolve around my diet, however I do expect people to consider my feelings.

Mostly just hurt that these are all people who are supposed to love me and don't understand.

camprunner, Your issues with pizza & other foods at home are issues that can be worked out... On the other hand, going out to visit friends and family can create issues... Trveling to visit can cause bigger issues... I have 2 simple rules; True Friends and Loving Family Members will accept me to judge their food, "As safe for me to eat or allow me to bring my own food" or stay at home... True Fiends and Family will miss you and then work out the food issue with you... I find that people who ask what they need to do to prepare a meal for me, are usually ill equipped or lack the ability to comprehend the total picture of details.. So Rule #2; If they need to ask how to prepare a gluten free dish or meal, I just assume they can't pull it off and offer to just bring my own food... I suffered way to many years to chance eating food prepared by someone trying to accommadate my diet without knoweledge of gluten free food prep... I will trust my Daughter's cooking...

Elizabeth5220 Apprentice

I like to use analogies...and I while allergy is not quite accurate, for many uneducated, non-celiacs, it makes sense. Tell your family that while some people are allergic to peanuts, you are allergic to wheat. You get sick if you eat it. Ask them if they would give booze to an alcoholic? It's not quite the same thing, but you get the picture... :)

Cathey Apprentice

I'm sorry your having such a hard time with family and friends understanding your health. Remember NO ONE can take advantage of you unless you let them. Take as much pre-made food as you can with you to eat, make meals and freeze them, pack in ice and travel keeping in mind your health is the most important thing and have an enjoyable Holiday.

I was just speaking today to my son, Christmas Eve has been moved to my brothers instead of my sisters. My sons response "guess you have to bring me a meal". He and my niece are Vegetarians, where ever we go I always bring several dishes for them. Last time my SIL had nothing for them to eat. That's why I always bring my own for them. This year Christmas Eve my sons girlfriend is flying in and she is also gluten-free. She is revealed to know our home is gluten free. Amazing how accommodating some family members can be, Thanksgiving my other sister when above and beyond to make sure I would not be CC in her home.

Have a wonderful holiday and plan ahead, don't worry about how they will feel if you don't eat their food, you are the most important one.

Cathey

mamabear272 Explorer

I have to say that this post infuriates me! :angry: My family isn't very understanding of my disease but they NEVER tell me I can't bring gluten-free things to functions. My friends are really goo about making sure they have plenty of gluten-free items for me and in my house, my hubby (when he makes dinner) makes it gluten-free. I just can't imagine friends and family being quite that un-accepting. You have to take care of you and if your family doesn't get that then I wouldn't visit them!

IrishHeart Veteran

Hey guys,

This post is from January 2010--and the OP may not see your replies.

Just so you know. :)

Cheers, IH

Katrala Contributor

I don't bring things that I can't eat. Period.

If my family said I couldn't bring my own food, I wouldn't go. In-laws or not.

I don't think you have to have what they are eating, though. I mean, it's nice, but part of having dietary restrictions is knowing that there are times that you don't get to eat what everyone else is eating. It sucks, but it happens.

There have been a few evenings here and there where I've picked up a gluten pizza for the kids because I was too exhausted to really cook anything. I think I had a bowl of popcorn for dinner. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamabear272 Explorer

I don't bring things that I can't eat. Period.

If my family said I couldn't bring my own food, I wouldn't go. In-laws or not.

I'm with you. If I can't eat it, I'm not bringing it. I will either buy a gluten-free alternative or make a gluten-free alternative. Don't like it? Don't eat it! It's probably not that different from yours anyway! :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jacki Espo replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    2. - Russ H replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    3. - trents replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    4. - Itsabit posted a topic in Dermatitis Herpetiformis
      3

      SkinSafe

    5. - trents replied to Cathijean90's topic in Introduce Yourself / Share Stuff
      1

      I’m terrified it’s too late for me😭


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,315
    • Most Online (within 30 mins)
      7,748

    Gramma Dukes
    Newest Member
    Gramma Dukes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster.  Hope you have relief soon. 
    • Russ H
      It can take between 6 months and 2 years for the dermatitis herpetiformis rash to resolve. The symptoms of dermatitis herpetiformis arise from deposits of certain antibodies building up in the skin. These deposits attract immune cells leading to inflammation and blistering. It can take 10 years for the deposits to be reabsorbed although symptoms resolve long before this.
    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
×
×
  • Create New...