Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pancreatic Enzyme Deficiencies?

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Yes, Jason it is common. I have the same issue. I take enzymes with any remotely hard to digest foods, otherwise, they tend to come out looking exactly as they went in :blink: Take enzymes with every meal (I would think 3 caps each meal would be fine, that's what I took). Now I am down to only with harder to digest foods, 2 caps.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks!

Can you ween off eventually or should we take them indefinitely? is there any long-term adverse effects associated with enzyme supplementation?

jasonD2 Experienced
jasonD2
Posted
  • Author

Also....can insufficient enzyme production prevent healing of leaky gut?

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks!

Can you ween off eventually or should we take them indefinitely? is there any long-term adverse effects associated with enzyme supplementation?

I had to take them after a bout with pancreatitis. They helped a lot. I only needed to use them for a couple of months. A couple weeks with every meal, then I took them just when I ate something heavy in fat or hard to digest and then was able to stop them. Talk to your doctor but you should be able to stop them after you have healed enough for your body to produce the enzymes again.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks- that was very helpful! ;)

jasonD2 Experienced
jasonD2
Posted
  • Author

Do the supplements cause constipation? My colon is quite sensitive and whenever i start taking new things it goes into a spasm and my stools get really thin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I go on and off digestive enzymes. I'm back on them right now, with lactaid, as I'm trying out lactose again. They don't give me constipation; I take them because I'm having the big D and gas. I was diagnosed with insufficient pancreatic enzymes and took them for almost a year, consistently. Then was able to wean from them, but now I'm taking them consistently, at least with the evening meal. I am going to retest when I return to Nevada this summer and see where I'm at. Constipation has never been my problem :D

I too would urge you to have the lyme test with a LLMD. I even thought of doing it myself because I had had a tick bite but no rash.

jackay Enthusiast
jackay
Posted

I tested as having abnormally low pancreatic enzymes. My doctor put me on them and they made my stomach churn like crazy. Also, got worse D. My doctor told me to go off them for the time being. The D is now controlled. I do not know if my enzyme level is up. What I'm eliminating is looking more normal so I hope that is a good sign. I had blood work done for nutrients so once I get those results I should have an indication if my pancreatic enzyme level has come up. Sure hope so!

  • 2 weeks later...
BlueTaelon Rookie
BlueTaelon
Posted

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Yes, I have the same issue and have been on Pancrease MT 20 (same thing as Ultrase just different brand name) for 3 years now. They actually did studies on it that you can Open Original Shared Link or google "celiac pancreatic exocrine insufficiency" it took about 2 weeks on the enzymes before I started feeling better but man, they really messed with my stomach the first couple weeks. They eat all the garbage thats been siting in your GI tract (I lost I think it was 3 lbs the 1st week) which may expose ulcers that can begin healing but it will get better.

BlueTaelon Rookie
BlueTaelon
Posted

Yes, Jason it is common. I have the same issue. I take enzymes with any remotely hard to digest foods, otherwise, they tend to come out looking exactly as they went in :blink: Take enzymes with every meal (I would think 3 caps each meal would be fine, that's what I took). Now I am down to only with harder to digest foods, 2 caps.

I think your talking about the OTC ones which are not nearly as powerful as the prescription ones the OP is talking about.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,134
    • Most Online (within 30 mins)
      7,748
    Kayla Conklin
    Newest Member
    Kayla Conklin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Welcome to the forum, @Skg414228! You say that your DGP-IGA score is high and you give the absolute test score but you do not give the scale or units used by the lab doing the analysis so we cannot comment further on your conclusion. Different labs use different reference ranges for the same tests. There is no industry standard for these celiac antibody tests. So, could you also post back with the scale and the units? If you already have an endoscopy/biopsy scheduled, the important thing is to hold off on going gluten free until that is done. There are some things besides celiac disease that can cause elevated celiac disease antibody levels so it is still possible you may be looking at something else. This is especially true when you are not IGA deficient and the tTG-IGA is within normal range. But you are correct in saying that very high antibody antibody scores strongly weight the probability in favor of celiac disease. Keep us posted. By the way, kudos to your physician for ordering a more complete antibody panel. Many will only order the tTG-IGA.
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      I went to the gastroenterologist for what I thought was IBS. They thought it sounded like celiac. I got a blood test with normal everything except a deamidated gliadine peptide iga of 688. Total iga was in normal range so not deficient.    My question is with a dgp iga like that is it pretty much only celiac at that point. I haven’t seen anything else that would cause the dgp iga to be that high. Already have the biopsy scheduled so nothing is going to change I’m just curious what else it could be and is the number high enough that I should really be preparing expecting a positive biopsy and it’s just a confirmation at this point? 
    • Aussie Celiac
      Increasing symptoms after going gluten free

      By Aussie Celiac · Posted

      Sometimes celiacs can also have other things like lactose intolerance which is fairly common. Also research fodmap foods, it's quite complicated but there are some other foods which can cause digestive issues. For me it's too many onions and garlic.
    • Wheatwacked
      Less than 10 parts per billion issues

      By Wheatwacked · Posted

      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      Endoscopy

      By Soleihey · Posted

      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
×
×
  • Create New...