Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free And Still Have Problems? This Might Help/


Sulevismom

Recommended Posts

Sulevismom Apprentice

Hi everyone,

I've know about having celiac disease for almost a year now, and I'm one of those people for who a gluten free diet alone does not seem to work. I was constantly thinking I was getting 'gluttened' by my husband and my son's crumbs, or by some cosmetic that I had not checked. Frustrated, I dedicated a significant amount of time searching. What I found might help many others.

Like many other people with celiac disease, I came to the conclusion that I have a 'leaky gut'. When I was first diagnosed, reading those two words together was repulsive. I did not want to consider that in addition to the realization that I have a disease, I also have significant damage to my intestines.

For all of you out there who think they've tried everything, and are so frustrated because you get 'gluttened' every week or few days, PLEASE pick up the books the Specific Carbohydrate Diet and Gut and Psychology Syndrome. These books go into quite a bit of detail explaining why people with celiac disease and other digestive disorders have permeable intestines and how this is connected to many other ailments.

The diet that these books (and websites-just google them) recommend is to have no grains and no starches (potatoes, yams, etc.), and most importantly, NO SUGAR. After the introductory protocol to this diet is followed, it is basically the same as a paleo/primal diet, which makes sense, because these diets are fashioned after what humans are known to have evolved eating before agriculture only 10,00 years ago. It makes sense that many of us have not evolved to incorporate high carb foods well, especially the overly processed versions of the last 50 years.

I am doing so much better now that I'm following the diet. I can't even begin to describe. I can even brush off the croissant crumbs from my son's shirt with my bare hand without freaking out that I'll get contaminated!

I hope this helps some people. SCD/GAPS, Etc., is a pretty strict diet, but there is tons of online support.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,041
    • Most Online (within 30 mins)
      7,748

    JaneRo
    Newest Member
    JaneRo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Have you tried a diet with a lower carb, higher fat content, something similar to the Keto diet? Are you familiar with the ketogenic diet? Fat satisfies and so curbs hunger and levels out blood sugar.
    • Sarah Grace
      I've was diagnosed celiac over 10 years ago when in mid 50s.  For a long time I have been getting headaches at night and in the morning and I suffer a lot of insomnia.  The headaches can be very severe and sometimes develop into a full migraine but other times they wear off within an hour of getting up and eating breakfast.  I have self diagnosed this a hypoglycaemia.  The medical profession in UK, where I live, does not seem to know anything of this and simply tests me for diabetes, which I do not have.  I know this condition is diet related and caused by carbohydrates, I avoid eating in the evenings.  Whatever I do, this condition seems to be getting worse and is very difficult to control.  Any advice would be much appreciated.
    • trents
      But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
    • Jammer
      Hi Kate,   I am unsure if this is helpful or not. I have Webber calcium citrate everyday. I also react to less than 20 ppm of gluten. I have not reacted to Webber ever. (Fingers crossed it stays that way). Also, I get my blood tested every 6 months to ensure I have zero gluten exposure. It consistently comes back negative(0) to gluten.  A few years ago, my stomach would feel nauseous after taking Ca+  but thankfully that doesn’t happen anymore. Good luck and I hope you find something that works for you.    all the best,    J 
    • J1707
      Honestly that's a good question, but I would like an official answer since I'm not a professional and my doctor's in my opinion no offense to them I'd say gone about it in a unprofessional way unless other's have been told to go gluten free, get a biopsy, just to go back gluten due to a possible false reading and then gotta go back for another biopsy But if it really was up to me per say then I'd definitely stay gluten free like this diet change has really helped me a lot in a lot of ways, not just for health reasons, but discipline toward not indulging to much on things i used too, not to mention being more aware of what I'm intaking by reading labels more and calling the manufacturers to find more answers if needed.
×
×
  • Create New...