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Anyone In Florida?


simplyconfused

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simplyconfused Newbie

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

  • 2 weeks later...

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K.Darling Rookie

hi, i live in florida and im 20 and very confused as well? have you been diagnosed?

twe0708 Community Regular

I live in Tampa and was diagnosed about 6 months ago.

laurelfla Enthusiast

I was in Florida but have moved. There is a great support group in Orlando! Look them up and try to go to a meeting, if you can. :)

  • 1 month later...
taylor- Rookie

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

  • 1 month later...
RideAllWays Enthusiast

Sarasota has an amazing gluten free bakery!

GF Traveling Dude Newbie

I'm moving to Florida in a couple years; seeking friends in the meantime. I'm 30 and travel there often.


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  • 5 months later...
glutenfreemamax2 Enthusiast

HI! I"m 28 in the Daytona Beach area. Have a 3 year old, and a 5 year old. Waiting on test results to come back next week. Have been gluten-free for 2 weeks now. Was also on Dr. Phil in Sept, and if it wasn't for all his show has done for me, I would have NEVER known!

I can't find any support groups in the area and thinking about starting one.

  • 2 months later...
jparsick84 Rookie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

cO-ol Explorer

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

I'm from the Tampa Bay area too! Still live here as well. :)

  • 1 month later...
laurelfla Enthusiast

jparsick84, you don't have to be that paranoid in my opinion -- of course, we all have differing levels of sensitivity and you will hear of people that do not worry about such things and people that would never dream of kissing someone who had had a beer. I make my husband rinse his mouth out after beer, and brush his teeth after eating gluten. I haven't ever gotten sick from kissing him. :)

  • 4 weeks later...
scuzy Rookie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

I can vouch for the kissing thing, IT SUCKS!!!!!!!!!!!!, I guess everyone is different though, but one night I kissed a guy after he had eaten pizza a few hours earlier and I still got glutened... I read in a book somewhere that if you are dating a not gluten free person make sure they brush there teeth before you ever kiss them to avoid the horrible consequences.

  • 1 month later...
NolesChick Newbie

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

  • 3 weeks later...
taylor- Rookie

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

Hey Christy! I live in Tallahassee too! Welcome :)

  • 8 months later...
lsteward68 Newbie

Hi, My name is Laura I live in Cocoa Fl. My Son who is 14 almost died of type 1 Diabetes, I went to the library to get info on Diabetes and a cook book, in the same area I found a book for ADHD & Autism cookbook going gluten free and casein free which my second son is very hyper with low concentration? So I picked up that book too, to my realization all the symtoms that were described in the book was what I myself was feeling... So being un-employed with no insurance I went on an internet scout of my own and found some very interesting and scary facts about type 1 Diabetes and Celiac Disease. After a day of information overload, I went to my cabinet and filled three boxes full of food and frozen foods that I imediately gave away went to the store to see what I and my family can eat. I bought bread flour and all the other things that I could imediately eat and fix for dinner. From that day on which has been two weeks now, I can get out of bed without feeling bad and I have eaten food that does not make my stomach hurt, and I do remember things now. Not sure if I am Coeliac or not but the whole Me is much better. I told my ex to take my oldest son to the Dr. to get the test ( he has insurance for him ) hopefully he will, have not heard or not. Thanks for the vent session. If there is anyone out there with input or more info that will help feel free to let me know...

Mike Menkes Newbie

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

I have lived in Florida off and on since 1970. I have found gluten-free foods to be more accessible than ever.

Mike Menkes Newbie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

IrishHeart Veteran

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

Just so you know, you are replying to a post that is old---(Dec. 2010) and the person may not see your reply.

  • 2 weeks later...
TravelnVal Newbie

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

IrishHeart Veteran

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

MarilynR mentioned it to me. PM her! :)

kareng Grand Master

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

Looks like several forum members will be there:

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  • Posts

    • Marie70
      Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
    • DayaInTheSun
      It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.
    • cristiana
      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
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